It is maddening reading this - the inconsistency of what people are being told, even from the same clinic, the lack of communication between clinics and hospital management and clearly nothing has been done in the 5 months since the announcement was made.
We had already decided to pay for 2 cycles before the announcement was made and forfeited our second free go with this tx as we are still on the waiting list for our first nhs go, but I very aware that we are really lucky to be in a position to do this. I really feel for everyone whose hopes have been raised during what is already a traumatic and emotional time. I'm happy to phone / write etc if it will help keep this issue in the minds of the powers that be and get something done. Sarah, were you given the Minister for Health's details? I wonder whether it is worth a single letter to her with a list of everyone's names who is willing to add theirs - what would be more effective, that or lots of individual letters? Kara, any ideas? The page below is about writing to ministers at the assembly, it seems sometimes civil servants reply on behalf of ministers, but organisers of campaigns should get a letter from the minister.http://wales.gov.uk/about/cabinet/writingtowelshministers/?lang=en
Sam, just read your post while about to post, I agree, a letter asking Edwina Hart for comment on the ensuing confusion might just get her to press the right buttons lower down the chain. I know health is a devolved issue in Wales, but surely they won't want bad publicity around the general election as it will reflect badly on the party, whether it relates to westminster or not.
Good luck ladies, will do whatever I can to help