2nd IVF Funding - Feedback please

[ratsy]

Im waiting until next week to see when i can start my immune tx and then im going to ring next week and book my planning appointment for private tx

I cant wait anymore its taking too long im 39 soon

Goodluck girls hope you all get your bfps 

R x

[kara76]

maybe letters to the hospital is the way forward!

does anyone know what is happening with lwc in swansea?

[jk1]

ratsy, seriously considering the same but willing to wait a couple of months to see if anything gets sorted - def want to do a cycle this year so if that means going private then so be it I guess xx

[ratsy]

kara i just posted on there thread and asked them il let you know

JK1- honestly i really dont blame you i think why wait till nearly 40 waste those 2yrs nearly or a yr in my case the longer you wait the lower your fertility its just not worth it if i was younger then id wait even thats hard tho when all you want is a bfp

when i went to Llandough hospital the gyna there told me when you reach 35 every month in the fertility world is like a yr off your fertility with your eggs he told me that when i was 34

Its always stuck in my head  youve got my number txt me anytime 

R x

[Queenie1]

wow lots been happening on here. how annoying that lwh is starting tx and ivf wales are not. makes you want to go there for tx.

is there any need now for me to contact any one now and if so who is best .

i would like to know that if i have lap in august that i am gonna be able to have tx within the 6months period after it.

well done all of you who have been phoning and writing

[Wrighty]

hello ladies

well had a letter today off my MP Martyn Jones saying he is going to look into it but looking through the last few post seems he doesn't need to so will have to send him a nice email explaining that since i wrote the email it has been sorted out. hope your ladies down south get something sorted out soon.

well im still waiting to hear something. phoned debbie at 11 this morning and still waiting for her to phone back.

[Wrighty]

hello ladies

just had an email and  though i would post what was attached to it for everyone to read

this was the email i had
-------------------------
Mary Burrows, Chief Executive has received a letter from Mr. Martyn Jones MP regarding your e mail to him regarding IVF treatment.

 I am attaching  a copy of a letter received in February 2010 from Health Commission Wales which I do hope will be of some use to you – it does have a contact number of the Specialist Clinic.

 I do hope you are successful in obtaining further information.

Kind regards

Jill

 and this is the attachment she sent
--------------------------------------
Thursday, 11 February 2010

To:     Heads of Planning, Welsh Local Health Boards

Dear colleague,

Following the Minister’s recent announcement that as of 1 April, Welsh IVF patients can expect to receive two cycles of treatment on the NHS, I would appreciate it if you could circulate a copy of this letter to all GP Surgeries and Gynaecology Departments within your Local Health Board.

IVF Patients who have had one cycle of NHS treatment, and are entitled to a second cycle must be referred to a Specialist Fertility Clinic as soon as possible.  I hope the following information will assist referring clinicians in that process.

The referral pathway is as follows:

West Wales         The London Women’s Clinic, Swansea
Mid Wales         The Fertility Centre, Shrewsbury & Telford
South East Wales      IVF Wales, University Hospital of Wales, Cardiff
North Wales         The Hewitt Centre, Liverpool Women’s Hospital

I can confirm that patients who have had one cycle will be assessed against the same access criteria as they would have for their first. A copy of the access criteria is enclosed for your information.

There will be some leniency around the age criterion, and patients should not be treated as a new referral.  Patients presenting for their second cycle will not be required to wait the mandatory 12 months, and they should be treated within 26 weeks.

If patients are over 38 years and 6 months they will still be entitled to have treatment.  There will also be some flexibility associated with the criterion that specifies that the patient must have received treatment prior to their 40th birthday.  If patients are 40 between 1st April 2010 and 31st October 2010 they can still be accepted for treatment, however they must have had their treatment prior to 31st October 2010.

The any previous NHS cycles criterion will also be changed to reflect the change in policy.

The three or more cycles criterion remains unchanged, and if patients have already had three cycles of treatment which includes their previous NHS cycle they will not be entitled to the second NHS cycle.

For all other enquiries, please contact the Specialist Clinic alternatively you can contact Michelle Ralph, Assistant Commissioner, Health Commission Wales on 02920 807582 or michelle.ralph@wales.gsi.gov.uk.

Yours sincerely

Zoe Goodacre
Specialised Commissioning Manager

[kara76]

nice one hun, now we just need the hospital to pull their finger out

[Flash123]

My word ladies - you have so busy. Well done all of you.

One questions really - if people have paid for private preparatory treatment having originally being told second NHS cycle would be soon ( I was booked in to start 2nd cycle on April 12th!!), if a hold up is due hospital bureaucracy and administration , can the hospital be held liable for what has been spent?

I have been told that I can go ahead with a 2 hour prep operation next month. Even though tx prob won't follow in the next 6 months. (effects only temp) If tx doesn't take place in that time, I can have op again when there is more info on waiting lists for 2nd NHS cycle.

Therefore costing the NHS twice as much!!!!
Also regarding my April 12th 2nd NHS cycle, I phoned the Friday before. Was reminded I had a planning appt for the Mon even though I had cancelled it weeks ago. When I explained it was for the 2nd NHS go and the funding wasn't sorted I was asked if I wanted to come in anyway and still have my planning appt - planning for what b****y treatment!!!

Sorry for rant but very premenstrual.

[Sam76]

Hey all - I'm back from Scotland - lot of catching up here!!

Not at all impressed with the response I've had from my MP -Don Touhig. I had a postcard sent to me with the couple of 'blanks' filled in - one of which said 'IVF Treatment' - a postcard - no bl**dy envelope, surely not the best way to communicate with someone about something that might be a reasonably private matter!! If our parents hadn't already been aware they jolly well would have been seeing that on the doormat when they came up to look after the dogs and cats wjile we were away! gggrrrrrrrr 

So, if I've got this right the current hold-up is with the hospital admin/finance/management. Therefore I think any IVF Wales patients should write to / email the hospital (same kind of thing that we did with the MP's and AM's). I think that if all letters went to the same person it would create more notice and might make them more inclined to take note. Tomorrow, I will try to find out who the best person to write to would be (and get an email address to make it easier).

From the circular from Zoe Goodacre (thanks Wrighty ) it states that patients eligible for a second round of treatment should be treated within 26 weeks (6 months), therefore I think we need to be asking when we write, just how the hospital intends meeting this deadline if there is no additional capacity (and no immediate plans to address this) and to get clarification of exactly when the clock starts ticking for the 26 week wait - I am just picturing being told in 6 months time that my wait has only just begun because the 26 weeks start from when you have a certain type of appointment / fill in a specific form!!!

...will let you know when i get contact details to write to.

Sam xx