I didn't have any plans to start a diary for my treatment but after today I realise I need an outlet for my madness. Its only day 1 of stimms and I nearly went into full meltdown. After posting the full details of my stressful day on the NOA thread, I realised I had written an essay of mad ramblings
and figured I'd be best off venting all my treatment woes in a diary or I risk boring the ladies on the NOA thread to tears.
So if anyone out there happens to start reading this, I apologise in advance, I doubt it will be educational or even interesting but just an outlet for all my stress I'm afraid.
So to make it a properdiary I'd better start from the beginning I s'pose:
DH & I married in 2006 and have been ttc since Jan 2007. Towards the end of 2007 we realised that there was an issue so we went to the GP. The GP ordered a semen analysis and it came back with zero sperm. A second analysis came back the same. We were referred to our local hospital who diagnosed DH with Azoospermia. In March 2008 and we were referred to UCLH. We had to wait a year before we got to actually see a urologist because UCLH kept losing our referral (they lost it six times so we had to constantly ring them & chase them and get re-referred). You can imagine the frustration!!!
DH finally had an MTese in May 2009 but only immature sperm were found and we were told he had Maturation Arrest. Although they agreed to perform a second operation if we waited a year, we decided to go private (wish we’d done it sooner). Having read about Dr Schlegel on the NOA thread, we contacted him and he asked for DHs medical records. Once UCLH sent through our records we realised that DH had not had the Y chromosome or Kareotyping tests even though we had been told he had – not sure if the records had gone missing or they just didn’t do the tests! DH then had Y chromosome & Karyotyping done privately and they came back normal, so it’s a bit of a mystery as to why DH has Maturation Arrest.
After sending test results in to Dr Schlegal, he gave us a 45% chance of success so we were all set to book up to go to NY as soon as he was next available. Unfortunately, Dr Schlegal then noticed that an ultrasound report from UCLH reported DH had a small varicocele & he recommended having it repaired and waiting another 6 months before he performed MTese. DH went to see the lovely Mr Ramsey and had another ultrasound and the results showed that there was no varicocele – Bizarre!
So finally after two years of waiting and getting no where, we finally booked to have treatment at Cornell. I flew out to New York in March 2010 to have a saline infusion sonogram and a trial transfer with Dr Chung. The results came back ok so we were then booked to start treatment in May.
A few days before I was due to fly to NY a volcano errupted in Iceland and the ash cloud forced all airports in the UK to close down. I seriously thought it was all over for us and we'd have to rebook for the summer. Luckily, it moved so my flight wasn't affected - I like to think its a good omen that it shifted in time for my flight.
I started taking Necron contraceptive pill on 9th April and stopped on 4th May. I've never been on the pill before and I can report it had an interesting affect on my moods. It made me completely over emotional, DH is not used to me being like that but he tried to be patient.
I flew to New York a few days ago (on 5th May). At JFK the immigration man told me I was 'as cute as a button' and gave me a chocolate. I thought that was a really nice warm welcome! One of DHs friends works in NY and has offered us his company apartment free of charge, he is a total star. Its basic but nice enough, it has air con and a decent shower. Its a 30 minute walk from CRMI so I plan to take a taxi there in the mornings (to make sure I get there in time) and walk back. The internet only works when it feels like it but there is a Starbucks up the street so if I'm desperate to log on I can go over the road, have a hot chocolate and use their WIFI.
DH cannot get away from work until 13th may so won't arrive in NY until 14th May. I'm ok on my own, don't mind my own company (although i do irritate myself sometimes lol). However, I've noticed that I am getting over anxious about the treatment, hence the need for this diary. Hopefully if i get it all out of my system by writing it on here, i'll be calmer.........well thats the plan anyway!!!
I went into CRMI the day after I arrived to have some blood tests. The clinic in the UK didn't understand some of the tests that CRMI had asked for so I thought it easier just to have them out here. They all came back ok so that meant just sitting back and waiting for AF to arrive to start treatment.
AF arrived on 7th May but it was light and the CRMI instructions say to only ring to start treatment once AF is in full flow. I only get light periods anyway plus I had no idea what a period is supposed to be like after coming of the pill (as I've never been on the pill before) so I thought I'd ring the IVF nurses to ask whether i should be coming in. Got no answer from any of the numbers so left a voicemail asking if someone could call me back. No-one called back, which annoyed me so was quite anxious when i went to bed and didn't sleep well.
And so to today.........
Sat 8th May - Stimms day 1
Woke up this morning and tried calling CRMI again, still got voicemails so jumped in a taxi & headed down there. When I got there I spoke to a nurse who took my bloods & I also had an ultrasound. They said the linning was nice and thin and it looked likely that I'd be starting treatment today but to wait for a call to tell me. She said meanwhile that she would order my meds from the pharmacy so i could collect them after i got the call. Waited a few hours and finally got the call telling me to start injecting Follistim today and to come back in for bloods on Monday.
Headed straight for the pharmacy to pick up the drugs and they told me they hadn't recieve any orders for me. Arghhhhhh, rang every number on the contacts list, got voicemails for them all so rang the emergency number. The woman seemed most put out that I'd rung that number but to me, this was an emergency. She told me she'd speak to a nurse and get straight back to me.
Paced the floor for three hours waiting for the call back, no call came so i headed to the pharmacy in a panic...just about to reach a full meltdown. Thankfully, as I walked through the door they just put the phone down from receiving the order. Panic over but I've given myself a massive headache from stressing about it all.
So I start 225 of follistim tonight. However, also in the order was a bottle for 16 pills of tetracycline and Ganirelix. I know I don't need to take the ganirelix yet but no-one has mentioned the tetracycline pills and the pharmacist ddn't know when i'm supposed to take them. So I've posted my days madness on the NOA thread as the lovely ladies will know the answer to my question.
The Follistim, Ganirelix and tetracycline bill came to over $2000 which I expected. I'd told my credit card company that I was going to NY and to expect me to use the card. The transaction went through but I immediately got a call from the credit card companies fraud team. I confirmed it was me that had made the purchase but they said my card would be frozen until tomorrow. They also said to expect it to be frozen everytime I make a large transaction. As I'd already confirmed to them twice over that it is me in NY making these purchases i asked if this could be avoided; the answer....No! Usually I'd argue but all the fight in me had gone by this stage so I just accepted it.
Spoke to DH via skype. The internet in the apartment went down so went to Starbucks and just chatted to him by typing instant messages. He feels bad that i'm here by myself and he's worried about how stressed I've been today. Whilst I was in there, two old men sitting near me started having a strange arguement. They were both shouting loudly at each other, not sure what it was about. They were clearly barking and for the first time today I felt quite sane.
I've just stopped typing to do my first 1st injection, I've been looking forward to it all day and I have to say it was painless........must be the extra bit of padding I've gained on my tummy recently. I knew there must be a reason for it lol. Also whilst I've been typing, DizzyD one of the fab ladies from the NOA forum (who is also out in NY having treatment) has spotted by last post and text me to say the tetracycline comes later and not to worry about it. Bless you Dizzy, I can sleep tonight without worrying now.
Right after all that typing, I'm off to my bed