Has anyone gone ahead with IVF with low AMH? (Part 7)

[Minxylarue]

Mrs ABA - thank you so much!  I've been freaking out but I'm ok now.  I did call Create (who probably think I'm  ) but they just said come in as planned.  Didn't explain that it was meant to happen or anything so I was still stressing.   I've got an appointment at Lister in Feb.  Do you think your consultant would be receptive to trying out your suggestions if they can't come up with any themselves?

Mx

[Mrs ABA]

They were pretty adamant that their way is best and I suppose they are doctors not me and i have reacted well with that protocol before.


I hope you don't need to keep your appointment at the Lister and the very best of luck tomorrow.


A
x

[MandyPandy]

Saasha - I am in Crouch End.  You probably live next door


Farmgirl sweet - it is totally beyond your control and not your fault in any way.  Unless you are totally intoxicated, a few drinks of wine will not hinder and some (eg Prof Winston) say it can even help.  I am always paranoid about magpies, but that too doesn't seem to make much difference!  Look after yourself, you deserve some slack


AFM - went to the clinic and they were really not that helpful.  Suggested just doing the same thing again - long protocol in January.  I might have been unlucky or the same thing might happen again.  Went away feeling somewhat deflated.


Lola - there are no firm rules.  Intralipids don't work for me but IVIG does.  At Lister they do a test to see which one makes a difference to your NKs.


Sweet dreams all - at least it is Friday.


A
x

I'm in Friern Barnet (at the old Lunatic asylum ) - just down Colney Hatch Lane from Muswell Hill!  How funny that a few of us live so near each other.

Maybe we should arrange a North London ladies meet up?

xxx

[Momito]

Hola chicas
 
Sorry for going awol...always takes such a long time to catch up!
 
Farmgirl...my heart goes out to you.  Am so sorry that things havenīt worked out.  I will pray that you are still within the window for that line to appear...and it is a good idea to get the hcg level tested anyway, that way you know more about what has happened.  Sending you huge hugs...
 
Moo...congrats on being PUPO...do hope it isnīt too traumatic...
 
Lola and Saascha...glad that things are going as they should and hope you can both begin to relax and enjoy being preggars...
 
Mrs A...it is so darn hard.  The grief swipes you from the side when youīre not looking and least expect it.  It is just horrible.
 
Maisy...am so sorry that your consultant wasnīt listening to you.  It is just so frustrating.  I think getting a fresh opinion and approach may help, especially as you have never been super keen on your clinic.
 
Aimees...am sorry to hear about the delays in your treatment...it just makes you wanna scream!  But try to take the positives...you can sort out other things in advance and Feb is really not that far away.  But I do understand how frustrated you feel not to have been allowed to get to EC.  It has happened to me and feels all wrong when there are perfectly good eggs in there.
 
Minxy...hope that your cycle is going well...best of luck for EC!    It is very hard not to get freaked out isnīt it?  Hope it all goes well...
 
Well gals...have been feeling very moochy and being a pain, but after a good old cry about not much and yet everything feel a lot better (it took a few session to be honest).  Results came back from Serum and were negative, so we can roll on.  Had a phone consulation with Penny and she has noticed that my blood clots fast from my immunes results (the spanish tocologo never mentioned this when she went through the results...just to avoid cat poo!  Mmmmmm).  Anyway, she wants me on the pill for 20-25 days, on clexane to thin the blood, on, wait for it, vaginal viagra to improve the blood flow around the ovaries (good for follie development apparently) and thickening up the lining (am hoping for some decent effects from that one!).  I am to go on a course of 2 different types of chinese herbs, one for thinning the lining (Iīll be drained at this rate) and another for improving egg quality.  Once the period starts, am to go for first scan and bloods for decision to be taken on protocol, either mini or natural IVF, etc.  She didnīt even want to mention DE...felt that with a pregnancy or two behind me this was good news on egg quality...so we will see (itīs not a promise of course).  God how it helps to have someone a) show interest in you and b) have an open mind.  She said that the viagra and chinese herbs have given her really good results.  She even told me I am young (Iīm 41!).  So for those of you on the cusp...we are young ok?!  I learnt so much from her from that one conversation and feel happy that she has suggested some new approaches.  Weīll see how we get on.
 
Thanks girls for asking after me...just needed a bit of a break from thinking about all this.  Sending you all lots of love, hope and positivity.
 
Love Momito
xxxxxxxxxxx
 

[Minxylarue]

Momito - so happy to hear your conversation with Penny went well.  She suggested viagra to me too and I'm really interested in trying it if it doesn't work out at Create.  Any help our follies can get sounds like a good idea to me.  Do you now roughly when you'll be over there?  Would it be mid-Jan?

Mx

[Momito]

Hi Minxy
 
If my calculations are right, we'll be over sometime towards the end of the 2nd week of Jan, but it will depend a bit on when my next cycle arrives and how long I go on the pill for.  Penny says we can go off after the first bloods and scan, to come back 7 days later and then stay for 7 to 9 days.  I like her open approach and it feels very tailored.  She also has a good sense of humour!  I have heard of the vaginal viagra being used before for good blood flow...I say bring it on!  I hope your Create cycle goes well so you can get off this rollercoaster (although if we coincide in Athens it would be lovely to meet up!).  Create is interested in blood flow too aren't they?  What do they do to help it along?
 
Love to all
 
Momito
xxxx

[Maisyz]

Have decided to go for the immues (let's face it no real choice after all), deeply disturbed by the whole side effect thing of some of the drugs so will have to hope I don't have any issues that need treatment or my head will probably explode. Hate Christmas, I want to be making paper chains and stupid marzipan crib scenes with my little girl and it's just not fair. Had a near meltdown in shop today when greeted with gift baskets for newborns complete with Ilove my mummy and I love my daddy babygrows. Ches should have been popping out in Jan and I shoulkd have been having those gift baskets right now. So not fair. Maisy moan over now, will have wine and watch strictly, bound to help . love to all Maisx

[aimees]

maisy sorry for you  it's a difficult time of the year. I have so many baby presents to buy this year and I wish I was buying for my own.

Momito I'm so delighted to hear aobut your conversation with Penny, it sounds so constructive. I'm only planning on the one cycle with Barts and then will prob move to Serum as I have such a good feeling about them.

Mandypandy, Mrs Aba, Sashacone -  I know a few of you have mentioned a north london gathering. I'm actually trying to plan a north London support group on behalf of InfertilityNetwork UK where I volunteer, as part of my counselling training. Would anyone be interested in this? I've found a venue right near Archway tube that could be interesting. Otherwise I'm looking for other venues if anyone knows anywhere. A private area in a pub or something would probably be fine, or a room in a community hall.

Minxy - best of luck for EC for tomorrow

Marie - are you based in London? do you mind if I ask the name of the chiropractor? Sounds interesting. I'm all out of line!

Lola have you made a decision yet? What does Agate say?

xx

[lola33]

Hello ladies,

Momito- so very pleased for you  Sounds like you are in very good hands. Everybody on FF speak very highly of Serum. Hope she can work her magic on you

Bondy- the scan is on the 19th.....I'm not gonna lie, I'm very scared

Mrs A- sorry that follow up didn't give you any answers, but they rarely do I think. Tbh I really don't think the doctors can say for sure why it didn't work, they can provide you with some qualified guessing, but it's all it is is in the end of the day. I honestly think that you just had bad cycle, that's all and chances are good that you will respond better next time. Our bodies just don't want to play ball sometimes, on my 2 cycles I responded very differently  although exactly same protocol, drugs and dose. Maybe ARGC doing the right thing by
waiting for the month when you FSH is below 10 do get the best response from your ovaries, it makes logical sense.

Maisy- Hope you immune tests will gives you some answers.

Aimees- I think I will go for a re-test on Monday.....just feel that I really don't want to risk anything. Agate
said ghat I should probably do a re-test cause my CD56 were very high in July. Tbh I am very interested what level they are on now....but not that interested in paying Ģ350, really fed up with coughing up more cash.....feels like it's never ending story when it comes to immunes and does not stop when you get a BFP. But I'm should not complain of course, it is very possible that immune tx helped me getting that BFP, so will shut up, be grateful  and cough up more cash  How are you doing? Hope you are feeling a bit better now, January will fly by very quickly I promise 

Afm- Not much to report except that steroids DO make you fat When out for dinner and "drinks" last night and could barely fit into my skirt, oh well I have no plans on applying for any beauty contests any time soon, so who cares A bit annoying with DP, cause he is being veeeery cautious and saying that we should not get too excited, cause it's still early days and anything can happen. He is right of course, so now his negativity has rubbed of on me and I'm not feeling very positive before my scan in 10 days even had a little tear today at the thought what if it would be bad news......will have to work hard to keep the negative thought away from my head next week

Time to watch X factor now hope Little Mix will win 

Love to all

Xx

[MandyPandy]

maisy sorry for you  it's a difficult time of the year. I have so many baby presents to buy this year and I wish I was buying for my own.

Momito I'm so delighted to hear aobut your conversation with Penny, it sounds so constructive. I'm only planning on the one cycle with Barts and then will prob move to Serum as I have such a good feeling about them.

Mandypandy, Mrs Aba, Sashacone -  I know a few of you have mentioned a north london gathering. I'm actually trying to plan a north London support group on behalf of InfertilityNetwork UK where I volunteer, as part of my counselling training. Would anyone be interested in this? I've found a venue right near Archway tube that could be interesting. Otherwise I'm looking for other venues if anyone knows anywhere. A private area in a pub or something would probably be fine, or a room in a community hall.

Minxy - best of luck for EC for tomorrow

Marie - are you based in London? do you mind if I ask the name of the chiropractor? Sounds interesting. I'm all out of line!

Lola have you made a decision yet? What does Agate say?

xx

I would definitely be up for it.  Archway is fine by me - it's one of the places I do a lot of my walking through so I know it quite well.  It's good for transport links as well. 

Maiszy- big hugs I've completely avoided any unpleasant baby goods type surprises by doing all my shopping online. re: immunes, it may seem daunting but honestly, I feel so much better having gone down that road. In terms of side effects, I've had none of any significance.  In February, before I'd done any immunes stuff, I was told I'd need donor eggs, blahblahblah and only got 3 mature eggs.  This cycle, after immunes tx, I got 10 eggs - 9 mature and all 9 fertilised.  I am currently waiting for my first ever day 5 transfer as there are 7 that look like they may go to blast (today is day 3).  This is with my low AMH.  I can't say for sure what caused the massive improvement but I do know that a lot of the immunes testing threw up all sorts of issues that have now been treated and, if nothing else, it's meant I'm hugely relaxed on this cycle knowing I have addressed a lot of issues and got a lot of answers, which I've never been before.

Lola - I hear you on the steroids!  I'm battling my hardest to stop the weight gain but it is definitely hard work.  In terms of positivity - give your DH a clip around the ear from me!    I know it must be tough to stay positive but negativity doesn't help anyone.   Have you got any relaxation CD's you can do?