Hi friends,
I hope you are all doing well. I was told about FF recently through another member on RESOLVE. I am not living in the UK (I live in San Diego in California) but I was hoping to find more support for my POF journey. I was diagnosed at the age of 22 and I am now 27. I found out I had POF after my period ceased for 6+ months. I was experiencing frequent urination, vaginal dryness and hot flashes. My memere (mom's mom) had been told she had "early menopause" at the age of 23 and she passed away very young at the age of 46 from breast cancer. As soon as my symptoms started, I knew that something was wrong. I was incredibly devastated when I found out and I only had 2 follicles when I was diagnosed. I was also told that my ovaries were very small and it was likely I did not have many eggs left. My FSH was 136, estradiol was in the low 20s and my LH was 93.3 (I just reviewed my medical records from when I was diagnosed, and that was depressing). Did anyone else have levels this bad? I had tons of blood work done while living in Boston and all tests came back negative and I was left with a POF diagnosis that was idiopathic. It has been a long journey with lots of ups and downs.
I have found myself thinking about my POF more recently because I am dating someone who I am falling in love with and told him this past weekend about my POF. This brought back a lot of the pain, negative thoughts and feelings of being unlovable, particularly by men. Since disclosing this, I have found myself worrying about whether this will influence his feelings towards me. I am not currently trying to conceive as I am not married and I am working on my PhD. However, I really want to be a mother and it has been hard to accept that I will not have the genetic link to my future children. Also, it has made dating really hard to navigate because I never know when to share this information with people.
I would love to hear from any other women who have similar issues and may be able to relate. One of the things that I have found to be the hardest was I was diagnosed so young and at a time when I was not trying to conceive and my friends weren't either, which made me feel like they couldn't really understand this loss. I hope to one day use donor eggs but that also overwhelms me thinking about it.
I hope you are all doing well. I was told about FF recently through another member on RESOLVE. I am not living in the UK (I live in San Diego in California) but I was hoping to find more support for my POF journey. I was diagnosed at the age of 22 and I am now 27. I found out I had POF after my period ceased for 6+ months. I was experiencing frequent urination, vaginal dryness and hot flashes. My memere (mom's mom) had been told she had "early menopause" at the age of 23 and she passed away very young at the age of 46 from breast cancer. As soon as my symptoms started, I knew that something was wrong. I was incredibly devastated when I found out and I only had 2 follicles when I was diagnosed. I was also told that my ovaries were very small and it was likely I did not have many eggs left. My FSH was 136, estradiol was in the low 20s and my LH was 93.3 (I just reviewed my medical records from when I was diagnosed, and that was depressing). Did anyone else have levels this bad? I had tons of blood work done while living in Boston and all tests came back negative and I was left with a POF diagnosis that was idiopathic. It has been a long journey with lots of ups and downs.
I have found myself thinking about my POF more recently because I am dating someone who I am falling in love with and told him this past weekend about my POF. This brought back a lot of the pain, negative thoughts and feelings of being unlovable, particularly by men. Since disclosing this, I have found myself worrying about whether this will influence his feelings towards me. I am not currently trying to conceive as I am not married and I am working on my PhD. However, I really want to be a mother and it has been hard to accept that I will not have the genetic link to my future children. Also, it has made dating really hard to navigate because I never know when to share this information with people.
I would love to hear from any other women who have similar issues and may be able to relate. One of the things that I have found to be the hardest was I was diagnosed so young and at a time when I was not trying to conceive and my friends weren't either, which made me feel like they couldn't really understand this loss. I hope to one day use donor eggs but that also overwhelms me thinking about it.