* Author Topic: Worried out of my mind - possible autism  (Read 8170 times)

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Offline mccrea74

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Worried out of my mind - possible autism
« Reply #10 on: 2/08/15, 19:13 »
Well we got the bad news on Friday at a private appointment with a Autism specialist...he has high functioning autism. It is cruel beyond words to us. 10 years of fighting and battling to get him here and now the childs life is going to be blighted with this. I just hate this cruel world

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    Offline goldbunny

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    Worried out of my mind - possible autism
    « Reply #11 on: 2/08/15, 20:07 »
    it's not cruel.
    nobody did something to you on purpose 'to be mean'.

    i am absolutely convinced one hundred percent that your high functioning autistic child will grow up and blow your mind with their abilities and character, and probably be the most interesting person you ever meet.

    i'm sorry you can't see that right now. But you will.

    Offline mccrea74

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    Worried out of my mind - possible autism
    « Reply #12 on: 2/08/15, 20:25 »
    Goldbunny this is twice you have tried lecturing me on what I should judge is cruel or not. It is cruel to us ok.

    Offline Monkeymoo

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    « Reply #13 on: 2/08/15, 21:16 »
    I'm afraid I'm going to repeat what goldbunny has said. Autism is not 'cruel beyond words' initially it us a big shock and there is a grieving process. But with the right support which is available in many places you will be able to help your child succeedi n anything they choose. Cruel beyond words is losing a child to cancer , miscarriage etc
    I hope I'm not coming across as harsh but I actually find your statement upsetting. But I have had over 2 years of living with diagnosis and we knew before it was official. Please get in touch with local support groups.Look on the national autism website. You are not alone

    Offline VAN6

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    « Reply #14 on: 2/08/15, 21:40 »
    Mccrea74-I totally understand where you are coming from. Yes there are certainly more cruel blows you could have been dealt but this still feels cruel to you. My sister is currently in the process of having her 6 year old boy diagnosed with autism amongst other things and if she could click her fingers and take away the autism she would. No it's not the the end of the world but it's bloody hard work and you wouldn't choose for your child to have it and you will often wish he didn't. I hate to use the word but I do believe we all hope our children will be "normal" for their sakes mainly but also for ours. I know nothing changes your love for them but their life would be easier without autism so don't feel bad for using that phrase and for feeling how you do. My sister feels upset about it often and I know I would too xx

    Offline staceysm

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    Worried out of my mind - possible autism
    « Reply #15 on: 3/08/15, 00:54 »
    Hi,

    I haven't been through what you have, but I think people should give you a break.  Everything is so raw at the moment and your emotions will be all over the place.

    We thought our eldest had autism and I was devastated.  We live in a society where everyone wants everything to be perfect and for children that are not considered 'Normal' life can be very difficult for them at times.  The thought of my child being bullied or picked on would worry me so much.

    All I will say, is that it does seem a bit to soon for such a strong diagnosis to be made so early.  My son had many autism traits, but he is now 5 yrs old and is developing normally.  My HV wouldn't even refer him to a specialist until he was over 2 yrs of age, so there must be a reason for this.

    Take things one day at a time and get as much information and help as you can.

    X

    Offline Roxbury1

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    Worried out of my mind - possible autism
    « Reply #16 on: 3/08/15, 06:30 »
    I wouldn't normally post on something I know literally nothing about, but some of the replies really took me aback. I've always thought this forum was a supportive, non-judgemental, safe place to discuss concerns and while there's definitely a place for helpful and constructive feedback I think it's awful to see people telling a lady who's clearly in distress that what she's feeling is basically wrong.

    I have no direct experience of autism in children but this diagnosis will obviously impact both your life and your son's life so it's understandable to be sad and scared - that said the 'high functioning' part sounds encouraging and I hope with the right support and the fullness of time to get your head around this curveball that there'll still be a very promising future for your family.
    X

    Cherish13

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    « Reply #17 on: 3/08/15, 07:13 »
    Sending you a big hug mccrea  ^hugme^ I hope you get all the help & support you need xxx

    Offline Artypants

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    Worried out of my mind - possible autism
    « Reply #18 on: 3/08/15, 07:20 »
    I agree, i feel for you Mccrea, my world would crumble if i had such a diagnosis. I think in time you will deal with and accept what you are having to deal with but you will probably go through a grieving type process and then come out the other side, lets all cut her some slack and be supportive please x

    Offline Dallydoll

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    Worried out of my mind - possible autism
    « Reply #19 on: 3/08/15, 08:02 »
    I too thought this was a supportive site and was shocked at what I was reading a few weeks ago.  For you, at this minute it must feel like the end of the world. No one could possible know how you are feeling, even if they have been through the exact same thing, they can have a understanding, but each person experiences things differently. I really hope you get the support you need for you and your son, and that this early diagnosis will be brilliant for you. You are going through a grieving process in a way. Please don't feel bad about the way you feel, we do live in a cruel world. But you have done the absolute best for your boy  ^hugme^