* Author Topic: Professor Quenby  (Read 70065 times)

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Offline Jenso

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Professor Quenby
« Reply #10 on: 28/01/16, 15:54 »
Oh I see.... I saw her colleague Prof Brosens but he was very thorough, knowledgeable and  I really liked him. It is quite nice just to hear someone say that it isn't normal to go through this many cycles with no implantation. I thought that the research that they are doing is very interesting so now I am just waiting for the results which I hope will come within the next week. Let me know if you need any other information :-).

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    Offline Job1

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    « Reply #11 on: 28/01/16, 16:40 »
    Hi Jenso,

    Thanks for replying. That sounds good, and Im pleased to hear you feel like that from the consultation. Your profile says 5 bfn's? is that right?
    Similar to me, I have tried 2 own eggs then 4 donor and still nothing!!!
    Its so hard. I have felt like giving up just recently as everyone on ff that I know of has got pregnant and I am the one left!!! and its become so expensive, was thinking of Dr Gorgy but its too exp, but then I was told about Prof Q so I am going to go for the biopsy and see the results.
    Your experience sounds very positive.

    Did you get any signs like a pregnancy line, each cycle I have had nothing!

    Did you buy ovulation kits and then ring up for an appointment? Did you take lots of information from your previous cycles along, like meds, timings etc?
    Look forward to your reply
    X





    Offline Jenso

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    Professor Quenby
    « Reply #12 on: 28/01/16, 21:26 »
    Hi there,

    Yes 5 BFNs with not even a hint of a positive :-( We are preparing to move over to DE now and hope that that is going to make a difference. I have had the Chicago tests before and had high Nk killer cells but since then I have had hystos to clear some infections that might have caused that so we will see what the biopsy will show. I have thought about Dr Gorgy as well but it is so expensive and it feels like most immune would cause more of a problem with miscarriage than implantation issues, but I don't know...

    I emailed Prof Quenby's secretary to let her know I had ovulated and got an appointment the next week. I went through the cycles and he asked if I had been told about reason for IF, number of embryos transferred and then just what drugs I had been on. It would be nice to keep in touch and see if the next step for us will be the one :-)

    Offline Job1

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    Professor Quenby
    « Reply #13 on: 28/01/16, 21:57 »
    Hi Jenso
    I was reading on ff some ladies with high NK issues didn't want to use humira or ivigs so were prescribed
    X3 intrallipids, some more intrallipids (rather than the usual X2 standard amount) and also chloroquine tablets and these seem to help bring levels down! Think those tablets are somethg to do with maleria - so immune!

    Where will you be doing your next donor egg cycle?
    I will buy an ovulation kit this week and test this month (can't remember how to use them need reminding on
    instructions!)  then phone for app.
    We are cycling in Spain so will hopefully get some answers with biopsy!!!

    Yes be good to keep in touch with treatments, any ideas etc.

    Are you taking high vitamins etc?
    X

    Offline Jenso

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    Professor Quenby
    « Reply #14 on: 29/01/16, 13:34 »
    Hi there,

    I am doing my next cycle in Greece at Serum where I have done last few OE cycles as well. I got the results back today and it showed a low level nk cells in the lining (uNK count was 1.12% of your stromal cells. The upper limit of normal is 5%.). I am having a phone appointment with Prof Bronsens next Tuesday but I guess he is going to suggest no immune treatment at all. I have had steroids and intralipids on the last few cycles so perhaps I have been over-supressed? We will see :-)

    Offline Tincancat

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    Professor Quenby
    « Reply #15 on: 29/01/16, 15:27 »
    Hi Jenso
    That's quite possibly what's been happening for you.  I would predict he'll say go for scratch tho because often the scratch helps create best environment for implantation then prednisolone for those who need it helps calm the NK cells down after ET.
    It's so hard to know which factor is having the most influence with IF.  Endometrial NK cells, egg quality,  sperm, thyroid antibodies etc or plain bad luck.  Each element has to be looked at to see what might be the cause.  It's so frustrating if you find a reason that's at the bottom of the list which if you had know before you might have been further forward in your journey.
    Good luck
    TCCx

    Online katkat2014

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    « Reply #16 on: 29/01/16, 16:03 »
    Hi all, I am literally just at Coventry station coming from the biopsy. I first chatted 30 mins with Dr Broses about the history (I took all my documents but they weren't needed), then 10 mins to do the ultrasound and biopsy. The biopsy takes literally 10 seconds. Results back in about 4 weeks. I am in the same boat as you, 5 bfn and not a single line on a test :( but I am 39 and we also have MFI... i was randomly given steroids before so will be interesting to find out of they were worth it.
    I also saw Dr Gorgy and everything is so expensive I nearly fainted. So have put it out of my mind. BUT I am so confused about it. What if he is right and I should do all his tests too? My Dr friend says it is rubbish and just money making... ah I don't know! Buying peace of mind I guess... and Gorgy buying a new Porsche. .. ;)

    Offline Job1

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    « Reply #17 on: 29/01/16, 16:16 »
    Hi everyone,
    Jenso well that's good isn't it!
    I did read someone else having low NK cells in womb but bloods saying NK levels still high! so all odd.
    Did you read my bit about the tablets? they seemed to help some other people. Maybe mention it to Prof B when you speak with him.

    Maybe you didn't need as much immune treatment!? Its annoying as now clinics seem to go straight into using intrallipids some without even doing any testing!!!
    Hi Katkat, are you still thinking to do Dct G? he really is expensive. It is so hard to know what one should do hey! However reading on this forum helps and trying to work out what we can do ourselves.
    X

    Online katkat2014

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    « Reply #18 on: 30/01/16, 14:51 »
    Hey job, I've already been to Dr G but I am unsure if I should do any further tests. I do think prices are ridiculous and  think I rather wait for the quenby results first. Also I am going to do the ERA test in Feb. If you want a cheaper testing option, check out locus medicus in Athens  I have a consultation with them as well as I only found them after Dr G but again will probably cancel as I think I may be overdoing it a bit :) let me know should you go to either then or Dr G,  would be keen to know what you think.

    Offline Job1

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    « Reply #19 on: 31/01/16, 13:16 »
    Hi Jenso,

    Good luck with your phone call on Tuesday. keep in touch with what Prof B says.

    You and Kitkat are on another site I was just reading about Prof Q.

    Im finding it all very confusing. When I read about Prof Q saying for one not to take prednisolone until ET and also Clexane until after, this is the complete opposite to what I have always been told to do. I was told to take Prednisolone about 2 weeks before EC and not to slowly increase it either, I just looked at my notes and to start Clexane at a similar time.
    Maybe as you say Jenso we have been given too much and at the wrong times!? but each time I don't get any hints of pregnancies!

    Has anyone any thoughts on this to help?

    KitKat maybe you should wait for your results from Prof Q before you spend out any further money otherwise you may become more confused.
    What is an ERA test?

    I am going to buy some Ovulation kits this week and try.
    I do feel confused and concerned about the next step!

    Thanks X