Thyroid Chat - Part 9

[Chloe889]

PV - I was just messaging you on the other forum re the above! Great to get the facts! With so many people with thyroid issues you would expect the doctors to be on the case. Nobody even discussed my thyroid this time around. In fact I didn't have any tests other that HIV and Hepatitis. It felt as if we were a bit of an oversight having had a successful fresh cycle. I had read the Zita west book cover to cover last time so felt quite informed but there is nothing in there really about frozen cycles. It's good that all has still worked for you PV and that your docs are on the case now xx

[FertilityFriends]

[Pv7882]

Oh thanks Chloe, just happened to notice this thread luckily. And yes, you would expect them to repeat all the tests before a FET. But they dont, and my consultant said there s no point in repeating the tests (immunes, blot clot screens etc) as they ll not change. very hard to believe, but I couldnt convince them. (previously all the tests done 2 years back after my 4th miscarriage). Only happened to check TSH levels as it was my standard one.

[Chloe889]

Were your immunes and blood clot screens clear previously then? Or were you treated for those this cycle? It is good that your TSH was checked this time and that your GP has been on the case.. Everything fell into line for me with Jack, mind you I made sure I had tests done early on by adding them to my blood form having suspicions after an earlier miscarriage. I had a GP's appointment early on, he increased me by 25mcg saying it was new protocol, I then questioned my consultant on some later results (bone specialist who also deals with my thyroid) and he said it was fine.I had an endocrinologist consultation only a couple of week later at my 11 week scan and he upped me again as said my consultant had obviously misread my results as the guidelines had changed and I was slightly under medicated. It's hard to have faith when things like this happen! I guess it's very possible that my outcome had nothing to do with medication but it's horrible having the questions swirling around! X

[Pv7882]

Chloe - TBH, I m bit confused about the immunes testing and NK cells. By immune testing, do they mean the thromboplast, anti phospho lipids etc? If so, those hav been tested before 2 years after my miscarriage (natural pregnancy), not before the IVF or this FET. All the results came out to be normal. My recurrent miscarriage clinic says it ll not change in 2 years, so they didnt want me to repeat it. Regretting now whether should I hav repeated these tests privately.
Bit lucky, TSH was checked this time, but still not sure whether the 25 mcg increase in thyroxine helps, planning to do a private test next week and if its still high, wanted to see a private endocrinologist

[Pv7882]

Hello all, Can someone suggest a good private endocrinologist in the west midlands? I hav a bit high TSH and currently 5w 4d, my GP has increased the thyroxine to 125 from 100 mcg as my TSH was 6.5 (after my BFP). I m bit worried whether this is sufficient or not, so wanted to see an endocrinologist after testing my tsh again next week.

[Juju44]

Hi PV7882, I just used Google to find a consultant endocrinologist.  I went to one in London, so can't help for the West Midlands.

[Pv7882]

Thanks Juju, my RM clinic has now referred me to an endocrinologist. I know its going to take ages as its through the NHS, but dont want to see a private one for now as I already started miscarrying  So no point in checking thyroid or anything now!!

[Chloe889]

Oh Pv I am so sorry to hear this  it is absolutely heartbreaking. Do you know if your thyroid was within normal range after the recent changes? Sending you big hugs 

[Pv7882]

Hi Chloe, how r u? My TSH has come down a lot after the increase in medication, it was 3.35 last week.
Now back to the starting point, as no specific reason for this miscarriage too 

[Rory's mummy]

Hi ladies,  hope you don't mind me asking a question before reading the whole thread (I haven't got enough time right now but I will do tomorrow).  I've had 2 failed cycles and one successful cycle (although I lost Rory at 22 weeks gestation) and was wondering how my TSH level would have affected  my success?  It's just that my first cycle, my TSH was over 3 and failed, then got put on thyroxine, TSH went down to 0.5 and I had my successful cycle but didn't really think about it being the difference in TSH level.  I then had an FET last October (TSH was 1.5 in June but unknown in September) which failed despite having a good quality (5bb) chromosomally normal hatching blastocyst transferred into what they said was a perfect womb lining.  I had my TSH tested in November in preparation for another fresh cycle and it was 2.9 so I'm wondering if my TSH was the reason for the cycle failing?  My clinic seem to think that the TSH has more to do with miscarriage then success rate but could my experience actually be proof to the contrary?  Has anyone else had similar experiences with TSH and success rates?

I'm 6 days into DR of my current fresh cycle and on 6 February my TSH was 0.99 so I feel a lot happier about that anyway but would be great to see if there are others with similar experiences to me to give me potentially more hope for this cycle.

Thanks for reading and for any replies xx