* Author Topic: Thyroid Chat - Part 9  (Read 39734 times)

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Offline Chloe889

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Thyroid Chat - Part 9
« Reply #120 on: 18/05/17, 22:40 »
Just dipping back into this as I stopped getting notifications and read your wonderful news Rory's mummy, congratulations, I hope all is going well for you. I am so sorry to read about Rory, having experienced one early miscarriage, I just can't imagine what It was like to lose your poor baby at 22 weeks  :'( so pleased that you have this positive news now.

My TSH is 0.4 now, it rose during my failed FET to 3.5 (it seems unbalanced by oestrogen tablets) so I will be doing a natural cycle this time. I'm worried about further failure, it was so emotional but at the same time I realised how blessed we are to have Jack from our first IVF.

I'm going to get another thyroid test the week after next before we start our cycle, although I guess that might be too late. The last one was only at the beginning of May so can't imagine much will change..

PV - it's been nice talking to you separately and I have everything crossed for you  ^pray^Xx

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    Offline serendipity2003

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    Thyroid Chat - Part 9
    « Reply #121 on: 1/06/17, 16:57 »
    Hello,
    I'm new here so apologies if I have posted incorrectly.  I'm interested in what people have been told specifically about anti-thyroglobulin antibodies (TGA's) and the impact on IVF.  My clinic doesn't take immune issues seriously, they will only give me 10 mg pred for transfers.  Through self-education and functional medicine interventions I have gotten my TPO's down from 191 into the normal range, but my stubborn TGA's just won't shift - last blood test result for TGA's a few weeks ago was 650.  When I research and read posts about thyroid and fertility people speak a lot about their TPO's but I see almost nothing about the other TGA antibodies.  So I am curious, to what extent have people been led to believe that these are a problem?  Or is it just the TPO's the immune fertility specialists are interested in?  Many thanks x

    Offline StrawberrySundae

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    Thyroid Chat - Part 9
    « Reply #122 on: 1/06/17, 17:09 »
    Serendipity I am interested to know about this. I was put on 25mcg levothyroxine due to having elevated antithyroid antibodies (I think somewhere in the region of 500?) - the medication I've now reduced to alternate days since my TSH came right down to 0.4, but I'm keeping an eye on it.

    Could you tell me how you reduced your antibodies please? My last 2 Ivf's have included prednisolone due to these and some slightly elevated NK cells (CD19 I think), but I'm not convinced my body was attacking my babies. I will go ahead with my clinic's recommendations though.

    All the best x

    Offline serendipity2003

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    Thyroid Chat - Part 9
    « Reply #123 on: 1/06/17, 18:19 »

    Could you tell me how you reduced your antibodies please?


    Of course!  I've done a lot of reading and experimenting and by far the most useful information I have comes from Izabella Wentz (an American pharmacist who also suffers with Hashi's).  I have her first book and it is a bit of an 'idea splurge', rather than being neatly structured, but there is where a lot of my experiments come from. She is big on treating the root causes of underactive thyroid, not just correcting the thyroid hormones.  So first I did a private blood panel for my thyroid because my GP only did TSH, T4 and TPO (private panel included TSH, T4, T3, TPOs and TGAs).   This gave me a baseline to compare to. I've done many private blood tests since to keep monitoring the changes.

    Regarding antibodies specifically, I first tried cutting out gluten which is supposed to help 90% of sufferers - well it didn't help my thyroid antibodies!  So then I tried cutting out gluten, soya, and dairy but still no great improvement.  It's dodgy science, but I decided to try a food sensitivity test (IgG).  This suggested I had problems with almonds and cashews.  Until then I had been eating a lot of homemade protein balls with these in and actually my TPO's had been rising during that time.  I wasn't exactly convinced, but figured I'd at least try cutting out those nuts, and to my surprise over the course of last year my TPO's gradually come down - they are now at 25 - so under the cutoff.  I also take 200mcg's of selenium as there are some studies to suggest it can reduce TPOs, and I think this has helped.  I have experimented with going back on these nuts/not taking selenium, and my antibodies have subsequently risen, so I am satisfied it is not just coincidence.

    The TGA's are resisting my attempts to reduce them.  I once got them down from 700 to 470 by eating paleo for 4 weeks, so I suspect grains in general might be an issue, but this is not a sustainable diet for me.  I'm skinny anyway and I started to loose weight really quickly- that would have made me ineligible for NHS treatment so I stopped it. 

    So that is where I am at with the antibodies at present.  Wentz talks about everyone's illness having a different root cause, so what works for one person might not always work in another. x

    Offline StrawberrySundae

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    Thyroid Chat - Part 9
    « Reply #124 on: 1/06/17, 23:02 »
    Thanks Serendipity, that's really interesting and informative  ^hugme^

    P.s. Did you find total elimination of gluten etc was needed, or did it help if you just partially reduced or avoided it? I find sugar, milk/cheese and flour so hard to cut out. Sounds like you did a good job xx

    Offline Juju44

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    Thyroid Chat - Part 9
    « Reply #125 on: 2/06/17, 13:00 »
    hi ladies, I have previous posted on here before due to thyroid, immune issues.

    I was with a London clinic that was hot on immune treatment, less so on thyroid, although I did have some thyroxine when I did my cycle, 25mg but felt they didn't really take that part seriously as I ran out of tablets, and didn't really understand the importance of it.  Was more than happy for me to spent Ł1K++ on immune treatment, and I also had steroids after transfer, progesterone injections etc.  The cycle failed, I changed clinics who where concerned about my TSH levels, and not about immune levels as such, and hence I paid to see a specialist who prescribed me thyroxine (as my doctor wouldn't), wrote me a letter for my doctor.  My TSH levels dropped from around 6 to 2 and I started a new cycle.  I didn't take any additional drugs/steroids, as the new clinic didn't believe in it and said they can cause more damage than good (no clinical evidence they work).  The cycle worked, I'm still on thyroxine, and my levels have dropped to around 1 now, taking 100mg as I'm under the hospital for this.

    I just wanted to share my experience with you, as I do feel clinics take advantage of us, and we grab every opportunity, as we want success.  Just be careful not to be drawn into paying ŁKs when a simple/cheap tablet could be all that you need to conceive.   

    Offline StrawberrySundae

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    Thyroid Chat - Part 9
    « Reply #126 on: 5/06/17, 17:00 »
    Thanks for posting Juju. And congrats!  ^hugme^

    My TSH has swung from 0.4 a couple of months ago, (then I reduced my levothyroxine by half) to 2.1 last week. I don't think either is too extreme but feel the need to keep an eye on it. I'm thinking of trying the Whole  30 diet to see what effect that has. I find it so hard to cut out the foods I like  :-[ Meanwhile whilst having ivf medications it's hard to know how much they affect the thyroid?

    Offline K jade

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    Thyroid Chat - Part 9
    « Reply #127 on: 12/06/17, 11:18 »
    hello can anyone help  ^feedback^

    my thyroid anti bodies came back and they are 'within normal range' according to lab report.
    I had thyroperidoxinase and thyrogloubin  (sorry no idea how to spell) ^idiot^
    both are at the low end of normal

    is this OK? or should I have literally tested zero for both?

    I hear of people saying they "tested positive for thyroid anti bodies" so that makes me think that I should have not got a reading back at all..
    sorry if this sounds like a dumb question..

    thank you
    xxx


    Offline Calluna

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    Thyroid Chat - Part 9
    « Reply #128 on: 12/06/17, 14:39 »
    Hi K Jade,

    Low end of normal is absolutely fine. It's normal for our immune system to produce some auto-antibodies. When it's working properly, it clears them from circulation before they build up to dangerous levels.

    Offline K jade

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    Thyroid Chat - Part 9
    « Reply #129 on: 12/06/17, 15:05 »
    thanks Calluna
    xx