* Author Topic: Thyroid Chat - Part 9  (Read 39839 times)

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Offline 126970

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Thyroid Chat - Part 9
« Reply #90 on: 31/01/17, 22:57 »
Hi Bambino,
I won't have anymore Humira and Intralipid as I have already had 2 rounds of both. And at my clinic they start the treatment even though my TNF flared.
Good luck to you and please keep me posted. xxx

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    Offline bambinoshar

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    Thyroid Chat - Part 9
    « Reply #91 on: 1/02/17, 20:45 »
    Hi campervan are you having steroids as part of your protocol these may help with tnfs if your clinic
    can prescribe them for you, I remember chatting to another girl on the forum her tnfs never went below 34 and she is pregnant with twins so it can happen good luck for your next attempt xx

    Offline Roxychick1976

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    Thyroid Chat - Part 9
    « Reply #92 on: 11/02/17, 10:50 »
    Hi ladies I hope you don't mind me joining you thread!

    Could anyone tell me a unstable thyroid effects egg quality? I have a fluctuating TSH two weeks ago it was 8.8 and following a blood test two weeks later it's 0.92???? I did have flu & Bronchitis with first blood test and was on antibiotics & steroids. I have had fluctuating results for years! Thought I was finally getting there until the 8.8 result!!! I'm on Thyroxine which keeps changing dose. I was planning to cycle in April and if still unstable to freeze my eggs! Any help greatly appreciated. My emotions are all over the place & I feel crap!! Thanks for your help x

    Offline 126970

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    Thyroid Chat - Part 9
    « Reply #93 on: 11/02/17, 17:47 »
    @ Roxychick Hello Roxy, Welcome  ;)
    I am not exactly sure if fluctuating TSH has influence on egg quality but it has effect on fertility that is for sure.
    I know what you mean with emotions all over the place. I had TSH between 0.0001 and 88 within 2 months in 2015. :-[
    I felt like going mad  ^idiot^
    Preferably  TSH is around 1 when cycling but they can treat during cycle too.
    How much levothyroxine are you taking at the moment? Are you fresh on thyroid medication and they experiment with right dosage yet?
    Hope you will feel better soon. Best wishes xxx
    @Bamino
    Hello Bambino, have you got back results for your TNF? When are you do to start your cycle? Did you choose not to take IVIG as it is a blood product?
    Finally I got IVIG and also a steroid called Dexamethosone. My NK cells are higher as well.
    Keep me posted on your journey. :-*

    I am sending the positive vibes to all the ladies hanging out here. ^reiki^

    Offline Chloe889

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    Thyroid Chat - Part 9
    « Reply #94 on: 13/02/17, 18:51 »
    Hi everyone
    I hope you don't mind me dipping in. I've just had a failed FET. I think I was too confident after my first successful IVF in 2015 produced my lovely baby boy. I have just requested my TSH results from tests a few weeks ago. It was 3.5, I'm not sure why it would have changed from 0.78 in October? We were mainly concentrating on getting my calcium right which had dropped from my stable 2.4 to 2.13 in October and had continued to fall through treatment despite the medication increase. I lost my parathyroid glands in totoal thyroidectomy surgery 9 years ago..
    X

    Offline Amazone

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    Thyroid Chat - Part 9
    « Reply #95 on: 14/02/17, 08:34 »
    Hi Chloe
    If you have been without thyroid for the last 9 years, I suppose you are on thyroid medication since then? Do you have an endocrinologist monitor your cycles? If not you, should, as having the right amount of thyroid hormones in your body is essential for getting and staying pregnant.
    Your TSH was ok in October, you took Progynova in December (that's what I gather from your signature) - did you increase the thyroid medication when taking Progynova? If not, it's logical your TSH went up - estrogen makes it more difficult for your body to absorb thyroid hormones.
    As to the failed transfer, it just could be down to bad luck. But something to consider would be, did you have an autoimmune disease like Hashimoto's or Graves before your thyroidectomy? If you have autoimmune issues, they sometimes flare up after pregnancy and birth. So I would check your immunes too

    Offline Chloe889

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    Thyroid Chat - Part 9
    « Reply #96 on: 14/02/17, 08:48 »
    Hi Amazone

    Thanks so much for your reply, that's very interesting re the oestrogen link. I am monitored by a bone specialist for the calcium but I had asked him to check my thyroid situation. I had Graves' disease and became heavily overactive. I was monitored after pregnancy as everything went a bit haywire after the birth but soon settled down. I was 150mcg thyroxine before getting pregnant and increased twice to 200mcg during pregnancy. Since Jack I have dropped to 175mcg. Is the affect of progynova different to the Gonal on the fresh cycle. I seem to remember staying pretty stable. I had my NK cells checked, is that what you mean by immunes ot is there something else I can check? Would steroids be sufficient treatment or something else? My NK were less than 0.05% above norm (results came in morn of transfer and after a 5 min chat with the doc, I didn't think there was any benefit to taking them) no of course I think differently!! X

    Offline Amazone

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    Thyroid Chat - Part 9
    « Reply #97 on: 14/02/17, 10:15 »
    Dear Chloe
    Progynova and Gonal are two different things, the first is estradiol (and was used in your case to build up the lining in your uterus), the second is FSH (which stimulated your ovaries to produce follicles). In combination with thyroid medication it's the first one that causes interactions. If you take Progynova, you need more thyroid hormones. The same when you re on the pill. And also, when pregnant, your estrogen is high, this is why you had to increase the dosage of thyroxine.
    It's not only this, some time has to pass between the two pills (I didn't know, and with my last cycle I thought it was ok to get up, take my thyroid pill, have breakfast one hour later and take the first Progynova - this was too close as I learned afterwards).
    Unfortunately, you won't be told these things by your clinic's doctors, neither your bone specialist, nor your GP. You need to consult an endocrinologist specialized in thyroid matters. He will examine your actual situation, and before you cycle again, you will tell him how many Progynova pills / day they want you to take, so he will calculate by how much you will have to increase your thyroid medication. And, you will tell him about any other meds the clinic wants you to take, so he will advise you on those too.
    Sorry to insist on this, but on many clinic boards I often read the question, is this a good clinic, will they also take care of my thyroid issues - and unfortunately the answer is, no, because they are not qualified.
    As to immunes, if you suspect there might be issues too, you will need to consult a specialist, to do tests (it's not only NK cells) and get a treatment plan. Unfortunately steroids are not the solution for everything, there are other therapies too. Again, if you leave it up to the clinic, you might get a standard empiric treatment, which in most cases is low dose steroids. This might work for some people, for others it doesn't.
    Of course, extensive immune testing and treatment is not cheap, so perhaps it would be better to do a transfer first, monitored by an endocrinologist, to cover the thyroid side of things. And if you're not successful, then have immunes tested and therapy if needed

    Offline Chloe889

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    Thyroid Chat - Part 9
    « Reply #98 on: 14/02/17, 18:57 »
    Thanks Amazone
    I feel so frustrated hay I didn't take control of this myself. I have had to do so with all other aspects of health since being let down from the botched thyroid surgery. I just didn't realise the drugs would affect my thyroid in this way. I will raise it in the review and arrange an endocrinologist appointment. The endocrinologist who I was under privately, also specialised in diabetes and I spent four rather unwell years before moving to the bone specialists for my calcium stuff. Thanks for all your help  :)

    Offline Pv7882

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    Thyroid Chat - Part 9
    « Reply #99 on: 14/02/17, 19:35 »
    Hello all, I happened to read this thread just now. Hope u dont mind me joining in? I have thyroid problems for the past 5 years and struggling to get the GP or the fertility consultant to give some attention to it (atleast when I m pregnant)
    Amazone - lots of useful information on the link between Progynova and thyroid. Thanks! Like Chloe, I was also wondering how my TSH suddenly increased from 2.8 to 6.5 in a month after the embryo transfer. Never knew the fertlity drugs ll hav an effect on thyroid and yes, none of the doctors said this.  :( Do u know how much time gap should be there between taking levothryoxine and progynova? (currently on 125 mcg thyroxine and progynova 4/day)

    Chloe - Dont blame yourself, without the doctor telling us, we will not know all these. At each of my review appointments, they say it may be the thyroid that causes the miscarriages, but they dont give any attention to it once I m pregnant. Its too frustrating!! Please do insist them to refer u to an endocrinologist, I m thinking to do this next time. But i really hope everything goes well this time itself  ^pray^