* Author Topic: Useful Information, Organisations and Charities  (Read 2389 times)

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Please find below details of various organisations and websites that provide support, advice and information for those affected by miscarriage, stillbirth and neonatal loss. There are loads of sources of information out there, this is just a small selection. If you think any organisation/website may be helpful to other forum users please let me know, we will add to it as we can.

Sands
Charity dedicated to Stillbirth and Neonatal death. They provide support helplines, information, local groups and events, as well as practical advice and support. They also provide a range of leaflets aimed at all the different groups of people affected when a baby dies.
https://www.uk-sands.org/

Miscarriage Association (UK) and Miscarriage Support (Scotland)
Support, including a telephone support line, and research aimed at those babies lost before 24 weeks. They provide a range of information about the various causes of loss, and bdetails about recurrent loss testing and current research projects. They also provide information about the different miscarriage management options.
http://www.miscarriageassociation.org.uk/
http://www.miscarriagesupport.org.uk/
Tommys
Research and information about baby loss and pre-term birth. They also have useful tools and advice for pregnant women, parents of premature babies, and those who have experienced loss.
https://www.tommys.org/

ARC - Antenatal Results and Choices
Support helpline and information about pre-natal testing, and the outcome of those tests. They also provide support and advice for those people making the most difficult choices, and those affected by loss related to their antenatal screening results.
http://www.arc-uk.org/

SOFT
Support and advice for parents and families affected by a diagnosis of, or loss related to, Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome).
http://www.soft.org.uk/

Unique
Information and advice for parents of babies diagnosed with rare chromosome disorders. They also provide links to other families with affected children, and first-hand experiences of different conditions. They also provide detailed Disorder Guides, and Single Gene Disorder Guides, online free of charge.
http://www.rarechromo.co.uk/html/home.asp

Preeclampsia Foundation
US based organisation providing information and email support for women affected by Preeclampsia and associated disorders. They also have links to research information.
http://www.preeclampsia.org/

The Lullaby Trust
Support and advice for parents and families affected by Sudden Infant Death. They also have links to research and provide a support helpline.
http://www.lullabytrust.org.uk/

Registering a Stillbirth - UK
Information about registering a Stillbirth in the UK. Also links to other relevant information regarding parental leave rights etc.
https://www.gov.uk/register-stillbirth

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