* Author Topic: Low AMH / High FSH Cycle Buddies - Part 6  (Read 124985 times)

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Offline MA66

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Low AMH / High FSH Cycle Buddies - Part 6
« Reply #200 on: 16/02/18, 12:08 »
Hi all

OK, I have finally caught up so be prepared for a mammoth post!  And Iím sorry some of this is out of date now and probably not in the correct order, I hope it still make sense!

Some questions please after I have read your posts:
Why would the guy be on antibiotics?  I think Rosss you said that you were both on for a month. 
Where do you buy your ubiquinol from please? Itís so expensive from the natural health store Iíve been getting it from.
Whatís the difference between short antagonist protocol and short flare protocol please?

Annakay Ė thank you so much for all the info, you are soooo knowledgeable!  My oestrogen came back double what it should be so they put me on the BCP.  Itís a dilemma to know if I would cycle next time if the BCP has stopped the oestrogen but the cyst is still there, as I have to way up my age, pushing 42 and declining AMH, again very best chance.   I will also push create to prescribe the levo even though they say the level is fine.  I am so sorry that you are going through such differences in opinion re DE Ė I understand your thoughts and determination. What about adoption, would DH agree to that if not DE?  You of course donít have to answer that if youíd prefer not to.  Personally Iíd have to try DE beforehand though.  I was surprised (and disappointed) too that the consultant said it was OK to start and only ideal that the follicles are less than 5.5mm on day 2.  Even without any knowledge, it just seemed too weird.  I feel your pain.  Iím so sorry you are going through this.  I heard that with DE 25% of the embryoís genetics are yours as they pass through the umbilical cord.  This has helped me with my decision re this (DH always for, I was adamantly against) and the whole nurturing element of course.  DH said this 3 cycle banking at create is the last he can consider doing before moving onto DE Ė what pressure and of course I donít agree so weíll seeÖ

Babyhopeful Ė Iím sorry youíve had that response.  I had this too.  Even my own mother assumed surely we are stopping now as weíve had 3 goes!  Iím sorry to hear about your best friendís insensitivities.  Iím also sorry to hear your consultant at your new clinic was so negative and jumped on the DE easy way out.  Hopefully you can switch to a different consultant?  Iíve had the age lecture so many times too, itís infuriating, like I left trying to get pregnant late in life on purpose!!  The fact that your cycle after the BCP was your biggest haul is so good to hear, thank you.  This is a worry of mine now.  I hope you feel better soon and your hormones settle so those pesky headaches go.

Briss Ė Iím so sorry to hear about your ups and downs and your resulting BFN Ė what a rollercoaster for you.  Iím glad there are some positives that you can take from it, it still hurts though.  This is also my understanding that cold sores are linked to a low immune system (potentially good for low killer cells?) or stress or overtired, overemotional or when in the sun without sunscreen on my lips for me!  I hope your DD is getting over her chicken pox now.

Helenbeau Ė Iím so sorry to hear about the PGS testing abnormal and your relationship quandary also.  Iím keeping everything crossed for some good news for you very soon.  I thought the article was very enlightening that showed the result could be wrong and that it might be worth the transfer just to see.  I read 25% are still successful in these circumstances!  I understand it is a long shot though and a personal decision.  I agree with Briss and tily to take time and not make any big decisions whilst you are grieving for your embryo.  Will you have your 2 frozen embryos PGS tested?  Or have they been already?  Sorry if youíve already said or this is a naiive question.  Thanks, I have a history of lots of follicles and few eggs though and then IVF no. 3, only 4 follicles and 4 eggs Ė the most weíve ever had!  But still only 1 fertilised though.  Sorry I canít help with your questions but best of luck.  Iím sorry to hear that youíre going through this, itís just poo that your Drs are being so unhelpful.  I also have endo and so far have always had a very thick lining so I donít know if that has anything to do with the endo?

Hopeful2013 Ė Thank you, thank you, thank you for your wonderful, positive news.  Itís so great to hear and gives us all hope and from 1 egg too!!  Congrats.  Iím so glad to hear all is well.

katkat2014 Ė Iím sorry to hear about the alcohol annoyance.  I have exactly the same with my DH and feel just the same.  Also I have my 42nd looming and no money for holidays and DH whinging (understandably to a degree with my none IVF single track head on) about working so hard and no money for holidays like itís my fault we need IVF but then it is only my body with problems    I phoned around and found the cheapest Ovitrelle was ASDA at £31.38.  They were really nice too.  It was there the next day after ordering.  A prescription is required though.  Sorry to hear about your lining.  Sorry I donít know about vaccines either.

klik Ė thank you for your suggestions and all the info.  I havenít tried long protocol before, itís never been suggested to me before not even with our two NHS cycles at CRGH.  I havenít had more than 9 AFC since July 17.  Iím sorry to read about your DP best friend Ė such people just donít have a clue!  My sister in law, who got pregnant on their first month of trying, told me that our infertility was a first world problem and to put it into context!!  I donít think they mean to be so upsetting, they just do not think.  I didnít know to stop ubiquinol after ovulation when ttc naturally!  Iíll be sure to do this now.  Itís poo that not all consultants give such information on the supplements they know we are taking Ė Iím glad yours at CRGH did so you can pass the info on.  Mine at CRGH never told me!  Thanks for sharing your knowledge.  I really hope the BCP doesnít suppress my ovaries.  What does over suppression look like please?  Low AFC?  They said my oestrogen was over twice the level it needed to be to cycle.  Itís interesting about the migraine thing Ė I wonder why they insisted I came off the pill then years ago because of this?  Also in the leaflet for microgynon it says donít take if you have aura migraines!  Eek!  The consultant didnít correct me - which is weird and it was the create consultant who said as my follicles were so large for day 2 she thought my oestrogen would be too high Ė this is all so confusing!  Itís a good point about age weighing up against cysts, thanks.  Iím just hoping the BCP makes it go away so I donít have to make that decision!  Enjoy France klick and good luck for Monday, at last whoop, whoop.

LauraC81 Ė welcome!  Iím sorry to hear your doc makes you feel like youíre bothering him, what a big headed sh*t.  You have every right to ask as many questions and question him, and his suggested protocol, as much as you like.

LXP Ė huge congrats on being PUPO.  Maybe they havenít prescribed aspirin because you are on clexane?  If not, with a history of miscarry I would take aspirin or even better clexane.  Then Iíve just read klikís post so I donít know now sorry!

Mac78 Ė sorry to hear about your best friendís mum and your job interview and your delay.  Things have to get better.  Sorry I donít know what to say, whatís for the best with regards your CV but I always think honesty is the best policy and itís also less stressful.  As long as you explain how you have experience and coping mechanisms in place so that you do not expect this to happen again if god please forbid the worst happens again.  Good luck for your interview on Monday.  It's all good experience.  You could get the job and then decide if it's the right time for you. You're such a good friend to cancel your appointment and now you're going through this.  I agree, karma will repay you x

Pickle123 Ė are you at create St. Paulís?  The last consultant I saw mentioned me having Tamoxifen with alternate days of 150 Bemfola when I mentioned my aura migraines but I donít know anything about Tamoxifen so I couldnít comment so she said stick to plan A Ė Bemfola every day!  Also, I mentioned previously Iíd had norethisterone to get rid of cysts (which I prefer as at least then we can try naturally whilst on that) but she insisted on BCP!  Iím thinking maybe sheís concerned about my age as it did take 4 months on norethisterone for the cysts to go last time.  Iím sorry to hear that your DD is sick, I hope all is well now.  Sorry to hear about your ill start to 2018, hopefully youíre all better now.  You are the second person on here Iíve heard of create recommending a scratch for but when I asked they said no to me, that Iíve had it on every attempt so far with no success but as Iíve never had implantation with IVF surely thereís more reason to still have this?  FC for a natural positive for you.

queenie123 Ė Iím sorry to read about your cancelled cycle Ė so good that you have such experience and know your body so well that you can make such a call.  I hope your travels work out for you with the ivf.  Thanks for sharing your experience.  Iíve never taken the BCP for this before and at this stage I want to go with what my clinic are suggesting and hoping for the best, weíll see what happens!  Good luck for your next cycle.

Shadywheat Ė thanks for your thoughts.  I get few follicles responding and always very uneven growth.  Iíve never tried a long protocol as itís never been suggested even on our 2 NHS cycles.  I donít think I can do oestrogen priming as I have endo.  7 eggs from mild is amazing.  There is hope then!  3 blasts on ice is amazing too!  I would definitely have 2 blasts transferred but itís such a personal decision.

Sunshine122 Ė sorry to hear no go just yet.  Our bodies are amazing, telling us when theyíre not ready too!  I hope you get to enjoy your downtime.  I was given progesterone (norethisterone) to try and get rid of my cysts before so I think this would be fine certainly re cysts anyway.  I defer to others though on here with better knowledge than me.   OMG!  What a difference.  I donít recall her name but she was from Bulgaria.  I was less than impressed.  She seemed quite junior.  She just kept throwing all these options at me like I should know whatís best when I havenít heard of such drugs.  Tamoxifen was mentioned as an option if my memory serves me correctly.  Then contradictory info like follicles have the best chance when less than 5.5mm on day 2 but that I was still to go ahead (if my 28mm cyst wasnít oestrogen producing, which it was) as I might still get some eggs even though four of my follicles were huge, one 10mm!  Sorry I canít help with your questions re BCP Ė this is new to me.

tily Ė hi.  Yay FSH of 12!  FC for your 2 follicles.  Sorry youíre going through this rollercoaster cycle.  Iíve no experience with letrozole so I canít help, sorry but Iím so glad youíre getting the support on here from the other ladies.  OMG that would be wonderful to have no more stims!  Thanks for sharing.  Iíve just noticed youíve oestrogen primed and you have endo Ė I thought this was a no-no with endo?   Thanks for your advice.  Unfortunately, my decision was taken out of my control anyway as the cyst was oestrogen producing.  I have everything crossed for you tily.  Trusting your instinct all the way, I think.

Thank you for all your help and good wishes.  I hope I havenít missed anyone, hi if I have!  Iím sorry that I didnít get to join you on your meet up, it would have been lovely to meet you all but I had a long standing dinner with friends.  Next time I hope!

Thank you for all of your support and I promise to read and respond much more frequently now!

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    Offline LXP

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #201 on: 16/02/18, 12:25 »
    Ma66 thank you xx I chose not to take aspirin and I'm not on clexane only progesterone pessies. Otd is Sunday and I'm really anxious. Struggling to stay positive but trying xx

    Hope all is good with you ladies xx

    Offline Briss

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #202 on: 16/02/18, 17:45 »
    " I heard that with DE 25% of the embryoís genetics are yours as they pass through the umbilical cord. " i dont understand it? How does it work? In my mind half chromosomes come from sperm and the other half from egg. You wouldn't be getting any other chromosomes from anywhere else, right? DNA or genetics is inside the chromosomes so how can you get 25% from elsewhere but the original two cells: sperm and egg? Sorry maybe my logic is at fault? You would be getting blood supply and nutrients but not genetics . Unless I'm missing something

    Offline Mac78

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #203 on: 16/02/18, 21:12 »
    Where did you read that Briss?

    I read this article once and I though it was helpful.  http://www.bionews.org.uk/page_581621.asp


    "So the answer to the question 'Can donor egg recipients "pass on DNA" to their children?' is no. But can women who conceive using donor eggs affect their children's genes? Absolutely, as can those who conceive naturally. There is already plenty of evidence to support the beneficial effects of a healthy lifestyle during pregnancy on the developing fetus."

    Offline Helenbeau

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #204 on: 16/02/18, 21:15 »
    Just a quick one...

    Whatís a flare-up protocol? Dr Hana at Reprofit said sheíd recommend I try that if and when I cycle again but she gave me no detail as to what it involves?

    And, does anyone have any spare V cream or want to share buying some?

    Offline ShadyWheat

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #205 on: 16/02/18, 21:41 »
    Just quickly as I'm away for the weekend but wanted to pop on and say good luck for tomorrow Tily! Hope you catch both those eggs and that they are good ones, have everything crossed as you really deserve a break. Xxx

    MA - yes, as Briss said a mother won't pass on any DNA to a DE baby. Researchers are interested in role of epigenetic changes - i.e the environment in utero can affect the way in which the genes are expressed but won't change the underlying DNA itself.

    Offline LauraC81

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #206 on: 17/02/18, 10:23 »
    Just a quick one in reply to Mac78 & MA66s questions.

    Mac78: I am in Edinburgh so go to the Albany Street Clinic/Edinburgh Fertility Clinic, they are ace but am guessing you maybe don't live in Edinburgh.

    MA66: I got my ubiquinol on sale from Nature's Best...they had an offer on so it was £28 if memory serves me for 60 100mg tablets and I then got a voucher for £3 off my next order with my first box so may buy another!

    Offline Babyhopeful

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #207 on: 17/02/18, 11:38 »
    Mac78 - I think itís such a difficult one about the job interview. Personally I wouldnít go into too much detail and just say you took time off for personal/family  reasons. Unless itís an ongoing health condition thatís going to affect your ability to do your job I donít think employers need to know. I got through a promotion board the end of last year for a job at one of our other offices. Work wanted me to travel to the job, but I explained I couldnít for personal reasons (it was because I was having IVF at the local hospital). Work never questioned me any further and are currently arranging for me to take up the new post at my current office.

    LauraC81 - I canít believe your GP said that at 33 youíve left it too late! Honestly can these health care providers hear whatís coming out of their mouths?! I would have been incredibly hurt too if he had said that to me.

    Itís great to hear that youíre on the road to starting your next cycle :)

    Tily - The frustrating thing with all of this is that I went to the GP when I was 35 after ttc naturally for a few months to say that I was spotting at least a week before my period. She ran a few tests and everything came back within the Ďnormalí range. She then told me to keep trying for another 6 months even when I knew something was wrong. In the end I had to beg her to refer me to a specialist and once referred I was stuck on waiting lists and there were admin delays. So when Iím told about my age Iím get even more angry as the NHS has actually wasted a lot of my time!!

    I definitely think the surrogate comment is down to a total lack of awareness. Iím meeting up with her and another friend tonight and I am very tempted to set the record straight as diplomatically as I can.

    I really hope egg collection goes well today. I donít blame you for just going for it. I will keep everything crossed for you x

    MA66 - thank you for your words of support. I hope the bcp does the trick for you.

    LXP - good luck for OTD! x

    Afm - I rang the clinic for my amh results and theyíre still not in, so I need to ring back again Mon. Ttc naturally this month has not gone to plan. I had a positive opk Thurs with lots of EWCM. DH and I BD, but yesterday and today I have started light bleeding! I know our cycles can go a bit wonky after IVF, but has anyone had this before? Iím hoping it goes away soon, but it seems to be getting worse not better!

    Offline Helenbeau

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #208 on: 17/02/18, 15:16 »
    Quick one...who has the V Cream contact? I thoUgh someone posted an email address but canít find it x

    Offline Helenbeau

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #209 on: 17/02/18, 16:42 »
    Aha, yes! Thatís where it went. Thankyou xxx