* Author Topic: Low AMH / High FSH Cycle Buddies - Part 6  (Read 125314 times)

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Offline Blue dolphin

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Low AMH / High FSH Cycle Buddies - Part 6
« Reply #260 on: 23/02/18, 12:00 »
Didn't want to read and run.

Ma66 - have you seen a reproductive endrinocologist? They will be able to advise about TSH levels both before and after IVF treatment.
Tily - big hugs. x
Klik - good news re hysteroscopy.
Shady - hi!

all the best to everyone on this thread.
Blue x

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    Offline MA66

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #261 on: 23/02/18, 12:39 »
    Thank you for the explanation AnnaKay. If only there were a magic solution.  It seems so trial and error to me to see what works.  So far all three of my cycles and the fourth one planned seem to take the same route, no-one seems to be thinking of changing anything.  A standard short protocol with a stimulant and then cetrotide to prevent ovulation.  At ARGC they added clomid and so then viagra to help the lining but other than that the same.  Should I be asking for them to try something different?  Do you have to ask?  I'll ask create about selenium, thanks x

    Hi Blue dolphin, I haven't seen an endrinocologist at all as I thought it was quite straightforward from what Dr Gorgy said, just take some levo.  I doubt I would get my husband to agree for me to see anyone else as after a cycle at ARGC including all the immunes for 4 months beforehand (big mistake) he's counting every penny now and his patience has almost run out.  He's liking create and their minimal stance and they said my TSH is fine at 3!  Arghhh.  Luckily I have a good GP who will prescribe and allow me to test every 6 weeks so I think I might just self medicate.

    Online katkat2014

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #262 on: 23/02/18, 13:12 »
    MA66, I am so surprised that even ARGC didn't do that much differently. Although I would be keen to know when and in what form they added viagra? I will be attempting another natural transfer hopefully and need to thicken my lining as much as possible for it. You can just buy the selenium at Boots or Holland Barrett for both yourself and your partner, I think the dosage should be about 50-100 (although it is contained in my Vitafem at a dosage of 150). I take it for my lining, and my DF to improve the sperm.

    Tily, how are you feeling?

    Klil I also forgot to say, excellent news about your hysto!

    AFM, does anyone know why it isn't so good to take non-micronised dhea (other than absorption)? Can you still take the non-micronised version to help with low testosterone (and low Dheas), or are you better off not taking it at all if it doesn't get absorbed?  Also, I have (always had) high antisperm antibodies. Does this impact embryo implantation? Ie will the antibodies also try and get rid of an embryo, rather than just sperm?

    Offline Blue dolphin

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #263 on: 23/02/18, 14:34 »
    Katkat - I wondered that myself. The US company selling it was not great - kept sending the wrong dosage. So stopped ordering from them.
    I did not think micro-ionised makes much of a difference.

    Ma66 - great news re your GP and levo. It is a postcode lottery I guess.

    Offline Babyhopeful

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #264 on: 23/02/18, 20:32 »
    Katkat - I bought the non-micronised version, then panicked and bought the micronised version. After lots of Googling I couldnít find evidence for any difference. Iím taking the micronised version at breakfast and lunch and non-micronised in the evening. My hair is a bit greasier and Iím having a few more spots than normal.

    Hello to everyone else, I hope youíre all okay? x

    Afm - I had my amh results on Wed. They werenít as bad as expected, which is a relief. Iím confused as to why Iím such a poor responder. Could it be that I havenít found the right protocol, or that thereís an underlying issue? We have a treatment planning appointment next week, so itíll be interesting to see what they say.

    Offline klik

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #265 on: 24/02/18, 21:57 »
    Hey, everyone! So sorry, this will again be short-ish and incomplete... Also I've been really spacey so I can't remember where anyone is at the mo...

    First of all, Mac, what an amazing life... I think it's very fair to say that you will NEVER be defined by one thing only, whether it's TTC or anything else. You've already lived through so much--and you've got so much more ahead of you! Congratulations on pulling yourself up by your bootstraps--it's incredibly hard to do. I'm not sure what your future will be, parenting-wise, but it seems quite clear to me that you would be an amazing mother--loving and strong... I hope you end up having at least one baby... On a practical note, the most recent reason I thought you were conflicted was that it was a headache, IIRC, that stopped you from taking your HRT... I believe HRT tends to help with headaches... rock-bottom oestrogen tends to cause them, and HRT tends therefore to relieve them... But your experience may be different, of course--our bodies are so different--unique in fact... Either way, I hope you're ok, I hope you get that job, and I also hope one way or another you get that baby!

    Babyhopeful: thanks! So glad your AMH results were not so low! I cannot remember now your last protocol and results, but for "poor responders," getting to know our bodies and finding the right protocol (and fine-tuning it) is sometimes a long and gruelling battle... I hope in your case it turns out to be quite easy, and that your next protocol hits the spot!

    katkat: thanks! I think  anti-sperm antibodies are really just about sperm's specific form, but to be honest I've never really looked into it... I think the immunes tests are meant to catch any issues you might have with attacking embryos, and you've done those already... I'm sending you good thoughts--I can't remember whether you're using or sitting out this cycle, but either way I hope it's your cycle--if sitting it out, then I hope you get a natural miracle, anti-sperm antibodies notwithstanding!

    MA66: Thanks! Oh, sadly a lot of it does seem to be trial and error, yes... But some of us keep going anyway in the hopes that someday we can look back and say it was all worth it... Oh, BTW, many of us "supplement" with selenium (to build lining, in my case) by eating Brazil nuts--yum!

    Blue: thanks! How are you?! What are you up to?!

    AnnaKay: Thanks! Now please tell your superego to take a hike. You have every right to want to carry a child--no need to feel guilt about that! It is a unique experience--one that our body is built for, and that helps define us as women and connect us to our progeny. Unfortunately--tragically--not all women are able to do so. Some don't care that much, which is totally fine... But you care, a lot, and that is totally ok. Your guilt is misplaced!

    Briss: thanks! Looking forward to the transfers! I hope you get to a transfer too, soon...

    Laura: thanks! Still waiting?!

    tily: I've been thinking about your musings on trauma and whether that causes DOR... Of course it's possible--at least to some extent--that it causes DOR, physically... But the psychological aspects are very interesting to think about, too. In my case, trauma certainly caused me to start trying late--I did not want children before I was 33-34 (for very good reasons, I think) and, at that point, the guy I was with dumped me--so I had to go through this whole process of finding a man to have kids with. Not so easy in your mid-late 30s, and it took me 5 years! Had I tried to conceive in my early 30s, I might never have known I was DOR at all. Also, it's possible that our trauma has transformed us (the women in this forum) into fighters, into people who refuse to give in, who say "this is NOT fair and I'm NOT going to take it." That is certainly the case with me. For better or worse, probably many DOR women choose other paths earlier--DE or adoption, say--rather than face repeated heartbreak... Hm... Oh, as for Sher, I have very little respect for him. I spoke to Dr Check (Cooper--a specialist in DOR) about LH--I think the real issue with it is that it brings progesterone up, which is what actually causes premature luteinisation--and he said it's actually better to have too much progesterone than too little. Frankly, I suspect that like everything else it's hugely personal... Each woman is different, and for some of us, sky-high LH is probably totally immaterial and for others it's probably disastrous...

    Helen: Thanks! Absolutely, take levothyroxine and bring your TSH under 2. I know a woman who had a couple of miscarriages until she got her TSH under control (so, under 2) and then her pregnancy finally took. It's a single data point so you can't prove that it's cause-and-effect, but I certainly wouldn't risk it, personally. I don't know so much about the antibodies, but I seem to remember the prescription for that is to take thyroxine anyway. Oh, you might have to switch clinics--ugh! When do you decide?!

    Sunshine: thanks!

    queenie: hugs! Holding out hope for your next cycle!

    AFM: spoke to Dr Ozturk on... Wednesday. His secretary hadn't sent him my long email where I'd explained about the Asherman's diagnosis, so I had to explain it all on the phone. He seemed interested/surprised that an HSG could in fact pick up adhesions that the 3D HyCoSy could not. He asked me to confirm that Mr Trew had indeed given me the go-ahead to transfer next cycle, and when I confirmed, he agreed to proceed. He tried to get me to do a medicated FET (7-10% better chance of success, but that cannot be the case, he says, if the lining is the same quality and thickness) but I turned that down--I'm really hopeful that without the adhesions my lining can get back to at least 8 by itself, which is all a medicated FET had gotten me in the past anyway. I'm still a bit crampy and still bleeding, but I'm hoping it's just the bits of scar coming out. I forgot to ask Mr Trew how long I should expect to bleed for... Started norethisterone today--I expect transfer to be in about a month. I cannot wait, frankly, and I'm a little scared of how hopeful I feel now that this adhesion malarkey is presumably behind me...

    Offline Mac78

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #266 on: 24/02/18, 22:10 »
    Hi all,

    Thank you very much for being so understandable  to my previous post and thank all for you being  very supportive. ^hugme^


    Queenie; Thank you for the suggestion and this is  definitely something that I am considering, just  need to need to check the financial side of it.

    Sunshine- I havenít heard about this boob but I will check it out. Thank you.

    Anna-  You comment wasnít the reason why I opened up, it was just of those days that I feel like I needed to talk and I felt comfortable to talk here because this fertility journey is so hard on all of us and you, ladies,  are a massive help to me.  Iím so sorry to hear that youíre not able to start cycling but I am glad you were firm on your ground in regards to what you believe is the right thing for you right now.

    Klik- I am relieved to hear that everything  went well. Hopefully you can start a new cycle soon.

    Tily- How are you feeling? Thank you for sharing the article and that explains why my OPK tends to show positive when I am not ovulating.

    MA66 and Helenbeau- I do not have the knowledge  to give any advice in regards to TSH, but I can share the experience of a good friend of mine that had 4 failed IVF in Brazil. When she tried for the 5th time with a different doctor the first thing he wanted to look at was  her TSH and he put her on a 6 months treatment with an  endocrinologist to lower it. At first, she didnít want to wait for that long as she thought doctor was talking non sense because  the others doctors said that her TSH was normal, but at the end she decided to give it ago. So she went on 6 months of treatment, then continuing while stimulating, and she had the best result ever with 5 eggs, one of them turned into her beautiful boy.

    Babyhopeful. Good news about you results. I hope  you will be bale to find the right protocol on your next consultation. Fingers crossed for a new cycle to you.

    Katkat- I stopped taking DHEA BioMatrix drops  because I read you need to take  a break otherwise it  could worsening my hormones imbalance, but I do not have high anti sperm antibodies, so I am not sure how to advise you. In my case was just to deal with elevated cortisol because of stress.  Check this this article about antibody & embryohttps://haveababy.com/fertility-information/ivf-authority/antisperm-antibodies-their-effect-on-fertility-role-in-ivf-outcome

    Hi everyone else; Blue Dolphin, Shady, Laura81 and I'm sorry if I've forgotten anyone as it hard to keep track of everything. I hope everyone is doing well.

    Have a nice weekend.

    Online ShadyWheat

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #267 on: 25/02/18, 20:49 »
    Hi all

    Klik, I am glad that you are recovering well and that the adhesions were the filmy sort - it must be such a weight off your mind. I'm keeping everything crossed for a productive transfer in March for you after all your patience in waiting! Hopefully we will be transfer buddies next month! xxx

    Mac, thank you for sharing your story, it's truly inspiring to see how you have singlehandedly pushed your life forward, and you have already faced such hardships, it really doesn't seem fair for you to also now have to face DOR and the struggles that it poses. I'm glad you feel open enough on this thread to share with us, it really is such a supportive forum. As others have said, you have shown such empathy and strength on your journey, I have every confidence that you would make such a wonderful mother.

    AnnaKay, so very sorry to hear that you had to cancel again. It's just devastating, I think I found my cancelled cycle the hardest to bear because I didn't even feel like I'd been given a proper shot. Where are you thinking of switching clinics to?

    Babyhopeful, great news that your AMH wasn't as low as you had feared! Hopefully at your apt this week they will be able to suggest a different protocol for you that you might respond better to. Keeping everything crossed.

    KatKat, do you supplement with extra selenium above your multivitamin or just leave it at that dose? Wondering whether to supplement with extra, but I went to Boots and Superdrug last week and the only selenium they had also had vits A, C and E added, and I think you shouldn't take vit A in pregnancy....? Maybe I will just load up on brazil nuts instead! Regarding your question about anti-sperm antibodies, they won't have any effect on the embryo as the antibodies recognise proteins on the sperm. The embryo grows from the combined DNA from the sperm and egg, and doesn't express any sperm proteins so won't be recognised by the antibodies.

    Laura, hope downreg is going ok, have you started stimms yet?

    Tily, how are you doing? I keep thinking about you as I vividly remember how terrible I felt over the summer when I had no fertilisation. I think it was really the lowest point for me and so so hard to get over. I know exactly what you mean about thinking what's happening to you is a bad dream and that at some point you will wake up and things will be ok... really felt like that when I lost the baby. Your story about your boss and co-workers being so amazing brought tears to my eyes too. I think it's wonderful that you are considering fostering, it's a truly amazing thing to do and I know that you would give so much love and stability to children who sorely need it.

    Blue, hi, nice to hear from you, what's going on with you at the moment?

    Hi to everyone else - Helen, MA66, Sunshine, Queenie, Pickle, LXP, Dorchester xxx

    Nothing much going on with me, just waiting for AF, suspect it will be a bit early this month which of course is precisely the wrong timing. I'm supposed to be on an expensive training course in Loughborough most of next week, and I suspect I may have to drive back halfway through for scanning if they want to scan me post day 7. I'm half expecting my lining to not thicken up this month enough though so preparing to just keep waiting.

    Offline susie76

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #268 on: 27/02/18, 14:05 »
    Hi ladies,
    apologies I'm always catching up briefly on my phone and so never seem to keep up enough to write all the personals - I just try and chip in with the odd answer when I can (although my knowledge base WAY less than some of you gurus! ).  I'm always thinking of you all and wishing for good news on all your upcoming cycles.

    On the TSH question for MA66 - normally anything less than 4 is 'normal', but to conceive most advice is to have it under 2.  It also tends to go up while you are undergoing treatment.  When I moved to argc they were the first to ever test this for me, and recommended I start thyroxine.  This cycle, they steadily upped my dose from 50 to 125 through stimms and after getting a positive test.  More recently I got my GP to check it, and he's happy that I stay on 125 for now as my latest TSH was 0.86 and T4 13.6.

    A couple of weeks ago I saw an article on dailymail.com - not sure of the scientific relevance given the source (!) but it was talking about how it was more likely to get pregnant with the second batch if your partner ejaculated twice within an hour.  Got me thinking, as we had a bit of an incident this time in that somebody opened the door on my husband just as he was finishing his sample  ;D and most of it got knocked out of the cup.  They asked him to come back an hour later and try again, and told us that they used the second sample for ICSI as it was much better.   He normally tries to 'abstain' for 3 days or so to get the best sample but that was rendered irrelevant.  Who knows if that was a factor...

    I've just had my 20 week scan this morning and all going well so feeling very lucky/relieved.

    xxx to you all


    Offline Blue dolphin

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #269 on: 27/02/18, 18:44 »
    Susie - congrats about your BFP.

    Mac- thank you for sharing your experience.

    Shady - I heard the same about Vit A. [also was told to stay away from primrose oil, pineapple and papaya - don't know if anyone has heard of that].

    AFM - nothing happening here just now. I had a bereavement about 9 months ago so fell off the wagon re Vits and food. Now trying to get my head back into the IVF etc. This thread has been really good. Following all the highs and lows and being reminded of all the good things we can do. Wishing you all the best. x