* Author Topic: Low AMH / High FSH Cycle Buddies - Part 6  (Read 127198 times)

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Offline ShadyWheat

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Low AMH / High FSH Cycle Buddies - Part 6
« Reply #50 on: 30/01/18, 17:24 »
Hi all, will try and do some quick catch ups as super busy, off to Cardiff in a minute

First off, Sunshine - congrats on your three frosties! I can't remember whether you ever got to blast before, but I think that's a great sign, regardless of their grading, and remember that plenty of lower graded blasts make babies... I think it's pretty arbitrary. And if Create thought they were good enough to freeze, that's also good news. I'm hopeful for the next two cycles in your package, it would be fantastic to bank enough to ensure a baby (or perhaps more than one!)! If you want to ask them about a letrozole protocol, this is what I did, it doesn't get you many more follicles though - I got around 5-6 each time. I don't think it would improve quality either, the only thing that I found that may have was taking 600mg ubiquinol every day (300mg in morning and in evening), and having loads of protein during stimms. Ubiquinol, like most supplements takes a while to have an effect though.
CD2-6: Letrozole 5mg (= 2x2.5mg tablets, morning)
CD2 or 3 onwards: 150u Menopur, evening - got pushed to 225u on the last cycle for the last few days of stimms
CD7ish onwards (or when largest follicle is 13mm): add 250mcg cetrotide

LXP- congrats on all your follies, that's such good news! It sounds like you'll have a nice hoard for collection in a few days time :)

Rosssssss, congrats on being PUPO! Hope the 2ww goes quickly for you, and that the visualisation techniques work out. I like the Calm app for meditating at night and helping me get to sleep.

KatKat and Babyhopeful, hope you are doing ok on the 2ww too, not long now!

Hopeful, so lovely to hear from you and that you are enjoying the NZ sunshine. I'm very jealous as it's been cold and gloomy here. I think the move is going to be a great thing for you both, as you said, just getting away from the rat race for a while is really refreshing and gives you time to consider what really matters in your life. I hope that you manage to find a specialist in NZ, or a teleconsultation to get some advice on your lining. Given Klik's experience and your similar stories with MC and ERPC, it would be good to have some reassurance, or further investigations done.

Klik, I'm so very sorry to hear that the diagnosis is one that you've been dreading, but as you said, at least you have some answers now. It is worrying that everyone missed such a serious issue before! I hope that you manage to get the surgery scheduled as soon as possible so that you can start to make plans for the next step. It's just more waiting and more frustration. At least you didn't waste any of your precious embryos... it doesn't even bear thinking about....  I had no idea the chances of Asherman's post ERPC were so high, I still think I would have gone ahead with it though as at the time I was in no mental state to contemplate any of the other alternatives.... just hoping and praying that everything is ok with my lining. I'll certainly be asking Dr N what he suggests when I see him later this week.

AnnaKay, hope you manage to get clarity on your protocol before you have to start. It's so shocking the service you get at some of the clinics, but the other girls are right, the more you do this, the more you realise you have to question them as they see so many people that they don't have time to get your individual clinical picture straight. I used to be intimidated when I first started, but not so much anymore.

Hi to everyone else, and hope all is going well. Thank god it's nearly Feb, Jan is just the grimmest month.

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    Offline Sunshine122

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #51 on: 30/01/18, 18:17 »
    Mac, iím not sure if she would be able to see if you have a dominant follicle that fertilised, it all sounds a bit of a mystery, but keeping everything crossed for you.

    Shady, thanks for sharing your protocol, Iíve been taking ubiquinol for years now though not as much as 600mg, will up my dose. Hope your appt goes well with Dr N.

    LXP, I always chat to my embryos after transfer willing them to stick and telling them about how loved they will be if they become my baby, so I think Iím a bit crazy too. Has anyone tried the IVF belief cd, theres 3 separate parts for down reg, stims and then 2ww. They are meant to be hypnotherapy but iíve never heard more than about the first 5 mins of them as they send me to sleep (though apparently thats fine and it still works in your sub-conscious).

    Create have been a bit rubbish, been trying for the last few days to get my meds ready for my next cycle which could start any day (have decided to try back to back if no cyst), but they havent been responding to emails or returning calls. Finally spoke to Dr this afternoon who said they donít use letrozole in the clinic as its not one of their protocols and was really quizzing me on why I want to try it. So shes going to speak to her colleagues about it. Bit strange as I thought they did it routinely there.

    When are all the PUPO ladies testing? Iíve lost track a little with dates but hoping for good news xx
     

    Offline Briss

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #52 on: 30/01/18, 22:16 »
    Mac, unfortunately it depends on how good the sonographer is. I find most can't distinguish corpus luteum on a scan . What i do in situation s where I have doubts weather I ovulated is progesterone blood test about a week after ovulation in your case day 23-24?. Checking your basal temperature is an excellent option. As well but you need to start in follicular phase to catch the temp rise

    Offline AdelineX

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #53 on: 30/01/18, 22:35 »
    Mac, I agree with Briss, a progesterone blood test can tell if you ovulated this month or not. It's not too late, usually drs recommend this tets 1 week after the suppossed ovulation day (usually day 14) so you could still go and have it these days.

    Offline klik

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #54 on: 30/01/18, 23:38 »
    Sunshine: An 8-cell plus two blasts! Amazing!!!! Well done!!! I really don't know if Create often use letrozole--perhaps another RE there does, and your RE just doesn't know about it? Is there a reason why you prefer letrozole over Clomid? If Clomid give you bad side-effects, it's best to avoid, but if it doesn't it tends to be marginally better at recruiting more follicles... Maybe they tend to work with Clomid instead of letrozole? No idea, really...

    ross: congratulations on being PUPO!!! The 2ww is difficult. It's hard to know where to pitch your hope... in my experience I'm either 100% hopeful or 100% hopeless. Anyway, hang in there, and good luck!!!!

    Helen: in my limited experience, sore boobs has meant high progesterone, but if your AF has started that should mean your progesterone has dropped... I hope you get some relief soon!

    Briss: did you take your bloods before or after EC? I feel like E2 shouldn't drop before ovulation has actually occurred, but in point of fact I don't know that to be true. My last E2 numbers are always from trigger day, so I really really don't know... Have you ever measured E2 on collection day before?

    Blue: Dr Ozturk prescribes 1g Vitamin C+ 2x400mcg Vitamin E for lining, but stopping on transfer day. As for other remedies, I've found Floradix 2x/day to be seemingly effective... Also, I've heard Brazil nuts (selenium) rather than walnuts, and pomegranate juice, and red meat and lentils.... Some women also swear by acupuncture, but it's really not my thing!

    LXP: those are some great results! I hope things continue to move well!!!

    katkat: low oestrogen or high progesterone could cause you to be very hot, I guess... Your oestrogen ideally should not be that low in your 2ww... As for progesterone, I can't explain it... Are you taking it orally, whereas normally you have pessaries?! Maybe that makes a difference? Not sure--I just hope that, despite your doubts, it's a great sign...

    Anna: FWIW, from what I've seen, the worst microdose flare does is limit you to just one egg... It's not like you get nothing, or like you have to wait a month before your ovaries recover... So, it's not too terrible and it's true, some DOR women respond well to it. You just don't know if you're one of them until you try it...

    Babyhopeful: really hoping you're not disappointed on the weekend!

    Mac: I'm sorry--it's really upsetting not to know where your body is. I hate it with a passion... Echoing Briss and Anna, if you want to take matters into your own hands, you can try to measure at least progesterone, tomorrow if you like--if it's low, then you're at the beginning of a cycle; if it's high, then either you have a cyst or you're at the end of the cycle; if it's in between, you're ovulating now (I don't expect that to be the case, though). Hopefully it will be low and then you will be free to use these amazing antral follicles!!! (Personally I'd measure oestrogen as well, because it's good to get a baseline, but it's expensive and not totally necessary so you can skip that...)

    Shady: yes, I do feel very lucky that CRGH by total coincidence would only do mild stims with banking, and refused fresh transfers outright. I wasted 4 cycles at Cornell, trying to do fresh transfers, but then my CRGH cycles gave me these precious embryos that are just waiting for a good home... I know what you mean, not being able to bear the alternatives for m/c... My cousin and a friend both had horrible experiences naturally passing miscarriages at roughly the same stage... I really didn't want to do that, either... And anyway, Asherman's has pretty identifiable symptoms: thinner lining and/or less flow during AF and/or extra pain during AF. So if you had it, you'd have reason to suspect it. And, most likely, you won't. It's enough suffering, already. Really. I hope the rest of your journey to having a baby is unbelievably easy!

    AFM: Dr Trew's team's chaos continues... Hammersmith hospital couldn't help me, in the end, so I called 92 Harley Street and they said they were trying to book it for Feb 19th. That would be next cycle. One more wasted cycle. I asked if it could be sooner and they said, "that's the date we're trying to book." I mean, if it's the NHS then I'd feel bad trying to get customised service, but I'm paying up the wazoo here! You'd think they'd at least explain why they have to be so inflexible! Grrrr... And to make it worse, my best friend, who lives in LA, is going to be in France for just 4 days, leaving on the 19th--I'll have to cut short my trip to see her so I can be back in time. Ugh!

    Offline katkat2014

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #55 on: 31/01/18, 08:38 »
    Klik, it must be so frustrating, when you just want to get on with a cycle and then these constant delays! I hope they miraculously can move the date to an earlier one for you. My night sweats have suddenly completely stopped at 8dp3dt. And i haven't been doing anything differently all of a sudden. Very odd!

    Ross bloating is quite common after stimulation and then the hcg trigger shot but should go away with time. Just drink lots of water and eats lots of protein

    Briss yes it's the Czech progesterone. I've only used it because it expires soon and I didn't want to touch the better cyclogest for this not so hopeful cycle.  Why or in what way did utrogestan impact the next cycle for you?  I have changed to cyclogest last night. What dosage so you usually take on your natural cycles?

    Afm I've had night sweats from about 5dp3dt to 8dp3dt increasing daily and including a mild headache. Now it's totally gone. Of course despite Briss suggestion I haven't tested yet and regret it as am wondering now that it's stopped if it meant anything after all (?). When I do the blood test (yes!) possibly tomorrow or Friday then even if there had been something going on then it won't show anything at this late stage arrrghh! My otd isn't till Sunday actually

    Offline HappyC

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #56 on: 31/01/18, 09:38 »
    katkat2014 - hi  :)
    I have the same OTD - 04.02, today I'm 10dp3dt - this is included the date of ET 22.01- is it correct???  I have the same question ... should I check before the OTD or not :) should I make a blood test or hpt?

    Offline katkat2014

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #57 on: 31/01/18, 09:52 »
    Hi ross, I decided to do a blood test in the end as it is clearer - if you can afford it go for a blood test and you can do it a couple of days earlier. Actually I just remembered that  Dr Hana said otd is 14dp3dt, but that is for hpt only. For blood tests she said I can test 12dp3dt (Friday). For me, I never saw a second line on a hpt so I am terrified of them. I only wanted to do a hpt this time to save money on the blood test and because I think I will know the outcome anyway... But I changed my mind this week, so blood test it is :) I am thinking of doing it tomorrow only, because the clinic I do it with it takes them so long to get my results back and I am worried that if I test on Friday they won't tell me till Monday! if your embryo transfer was on day 3 and it was on 22nd January, then today you are 9dp3dt meaning 9 days post a 3 day transfer.

    Offline Briss

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #58 on: 31/01/18, 10:29 »
    Katkat, I usually take 200x3 of Czech or German progesterone or 400x2 of cyclogest. Please don't worry about testing if you do bloods anything above 0-1 is likely to mean chemical but I hope it's all irrelevant because you will get a good strong beta :)

    Offline katkat2014

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    Low AMH / High FSH Cycle Buddies - Part 6
    « Reply #59 on: 31/01/18, 10:51 »
    Thanks briss. I am starting to get my usual pre-AF back ache ... Just hope taking the progesterone for so long hasn't screwed up my next cycle/follicle growth!

    Tilly - are we meeting Saturday in a week's time? I've forgotten to bookmark the doodle poll site