* Author Topic: Low AMH/High FSH Cycle Buddies - Part 7  (Read 30551 times)

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Offline odashwood

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Low AMH/High FSH Cycle Buddies - Part 7
« Reply #270 on: 16/07/19, 10:30 »
Welcome Melanin! It is a great group and you can be sure that you will find here somebody who you can talk to. I found here good support and wish you the same. As for your low AMH, I can say that I have the same problem and my AMH is 0.3 so I went abroad to undergone ICSI treatment. I got acquainted with several couples who are in the same clinic with me and one of the women have AMH 0.8. She wanted to try the program with own eggs but nobody gives any chances. In spite that the clinics accept women with AMH not lower than 1, the clinic allowed her to try on her own material thus there always can be exceptions to the rules. I had no chances with OE so I proceeded with DE and failed as well and now its high time to surrogacy. Keeping fingers crossed for both of us! Good luck dear. Baby dust!

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    Online katkat2014

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #271 on: 16/07/19, 11:58 »
    MSJ, thank you very much for the info! I also have my adenomyosis in the posterior wall. I am still not 100% convinced what it is as another gynae just said it is a fibroid. Whatever it is, it does distort the uterus slightly bit not severely on one side. I am really so sorry about your struggles with all this endo / adeno stuff and then the miscarriage. Did they mention at all if it had to do with the adeno/endo, or if they think it was something unrelated (uneuploidy)?

    Welcome Melanin, and sorry to hear your diagnosis. May I ask if the sperm side of things is ok and you ovulate normally? Even with a low AMH and high FSH there have been a few on here that got pregnant naturally (MSJ, kli, shady) recently. It is probably correct that natural IVF may give you the best chance as you may not produce many eggs anyway. However if you have never tried normal IVF then this is really just very difficult to know. Perhaps a round of natural modified or mild IVF may be worth a try. I am unable to recommend a UK clinic as I am cycling abroad due to costs.

    Chini I am so sorry you're struggling with illness just when you wanted to be at your fittest. I hope you;re feeling better today! Why does your Lister consultant think a freeze all won't work and wants you to prepare for a fresh transfer? I honestly think you can never plan anything and expect it going according to plan so maybe you really just need to go with the flow. It is reassuring to hear what your sonographer said about your adeno as well. Thank you also so very much for this extremely detailed information about adenomyosis, you're a star! Mine is in the posterior wall and it looks like my lining is squashed so I assume it's affected. My doctor said that it is technically impossible to place the embryo in a specific place as it goes in with some fluid and then floats around and chooses its place to implant.

    Do you happen to know that if you have high inflammation like adeno/endo, would an endometrial scratch be counter productive (as it cause inflammation to the lining), or could it be helpful for implantation? What's Lister's / Gorgy's take on a scratch?

    I hope your soy allergy comes back as normal. What do you take intralipids for?

    AFM, has anyone ever done a neupogen wash to improve lining (or for anything else?

    Offline Dozydaisy

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #272 on: 16/07/19, 18:40 »
    Ladies..

    It has been an age.. but I got back on this rollercoaster of a ride.. .. how are you all doing? I hope there is some fab new in this thread.. I need to catch up quick!

    Iíve had rubbish news this morning.. my AMH is 1.4 😩

    Not looking good for a fresh cycle with my new partner .. Donor  egg is not an option. And my Frosties are with a previous partner.. so theyíre a no go..

    I have a consultation on the 30th.. feeling like this may the end of the road for a sibling.. 😔

    Any advice.. Iím so long out of this that I canít remb everything nor if any one will touch me with a barge pole .. Iím 39 this month.. and desperately trying to shift the weight Iíve put on over the last 2 years 😬

    Offline odashwood

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #273 on: 17/07/19, 13:43 »
    Hi Dozy,

    AMH 1.4 means that you still have at least one chance to have a bay of your own you just need to find a place where you can have the treatment. Are there any clinics or agencies that accept women with such reserve? Of course, age plays not the last role in that. One of the women I met in the clinic have her AMH even lower than 1 and they accept her and agreed to sign a contract on her own eggs. She is on the 23rd week of pregnancy now. She had a good health state that allowed her to get pregnant from the very first attempt. So don't worry beforehand and better find the best doctor ever who will be ready to help you. Best of luck, dear!

    Offline Melanin1

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #274 on: 17/07/19, 15:17 »
    Welcome Melanin! It is a great group and you can be sure that you will find here somebody who you can talk to. I found here good support and wish you the same. As for your low AMH, I can say that I have the same problem and my AMH is 0.3 so I went abroad to undergone ICSI treatment. I got acquainted with several couples who are in the same clinic with me and one of the women have AMH 0.8. She wanted to try the program with own eggs but nobody gives any chances. In spite that the clinics accept women with AMH not lower than 1, the clinic allowed her to try on her own material thus there always can be exceptions to the rules. I had no chances with OE so I proceeded with DE and failed as well and now its high time to surrogacy. Keeping fingers crossed for both of us! Good luck dear. Baby dust!

    Thank you odashwood - much baby dust for us both! I am seriously thinking about going abroad for this as I think that might help to at least minimise the stress of this....was looking at places in Greece but if you can share your experience on the place you went to in Spain that would be great.

    This low AMH stuff is a real f-ing bugger! I was saying to my partner that mother nature is a real merciless b! To have something like this - that's completely out of your control feels awful and is compounded by you also being told that your best eggs are likely gone.

    Just also had a really upsetting phone call from the hospital - the operation to remove the fibroid has been scheduled for next Weds for over a month now. They have just realised (ridiculous!) that there is no anesthetist on rota for the morning of my operation so called to cancel and reschedule for Mon instead! I have already had to go through so much - from my partner booking flights (as they're based abroad) to come with me to the operation, to re-jigging crucial parts of a project at work so that I can get key stuff done before I go - have a big presentation on Tues to deliver. Broke down in public as so upset as it just feels like another kick in the teeth and slap in the face. Feel like I am doing everything I can to facilitate getting this baby project off the ground and just getting clobbered left and right.


    Offline Melanin1

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #275 on: 17/07/19, 15:24 »
    Just a quick one from me...

    Katkat - for adenomyosis, diet lifestyle changes as Chini has mentioned will help. Also,  sugar is  not good for immunes so reducing this will be beneficial, (but I can be quite the chocolate addict). I did also have a follow up following my surgery for endo and she said probiotics is also important and to de stress as much as possible.
    In terms of IVF,  Create have suggested long down reg to control uterine environment.
    I think where the adeno is situated also is a factor. They said mine was situated in the posterior(? I think) so shouldnít impact too much at the moment but theyíll need to keep an eye on it.
    Also, immunes will play a part. Dr G is expensive though. I didnít realise I had adeno when I saw him but he advised IVIG, predisonale and LIT therapy for me as my uterine NK cells were really high. Iím still trying to do a bit more research on this myself and trying to get a second opinion

    Chini - thank you for your kind words. Iíve been bit of a miserable person lately what with the miscarriage and issues at work, but itíll get better I guess since I will be leaving that place. Regarding progessence itís from young living. If you google it it should come up. Also for endo specialist doctors, I went on the forum on social media called Nancy nooks endometriosis education forum. The admin and Nancy herself have suffered from endo and they have a list of endo specialists that they have vetted/recommended by patients. My consultant/surgeon was Dr Shaheen Khazali at Ashford and St Peters Hospital. However he isnít a fertility specialist but theyíre all gynaecologist so will have some general understanding about fertility. Iím not sure where youíre based and if you have access to private medical insurance but there is a list on there for doctors in different parts of the country and for those who have access to medical insurance. With dr Vidali, I think itís a Skype call. If you need more info, feel free to PM me. Good luck for your current cycle and try and stay positive. Thereís always conflicting info about whether fresh is better or better to do FET. Fresh hasnít work for me so far.

    Alydreaming-  thank you for sharing the link for the supplements. I did stumble across dr bravermanís site before but hadnít had a chance to look at all the supplements recommended. At my follow up appt, I was told it can take a while to retrain my body/muscles as itís been in constant pain for a long time it has to unlearn it. She talked me through the anti inflammatory diet, said probiotics is also important and to de stress as much as possible and be selfish leave work on time etc to look after myself to allow my body to heal. She also said I could do things like yoga and mindfulness - something thatíll help to lengthen breathing to help me to completely relax. Hope your cycle is going well.

    Briss - so sorry for the lack of fertilisation, I had this on my last cycle, it is totally gutting

    Welcome Melanin x

    Hello to everyone else...


    Sent from my iPhone using Tapatalk

    Thank you! How are you getting on today? I am not great. The operation to remove my fibroid next week might need to be cancelled on the day scheduled as they've just realised they don't have an anesthetist. Really upsetting as done so much and based a whole on the planned date - from partner booking flights to be here to projects at work. I need to have this op as it is in the middle of my womb so can affect implantation and growth so obvs going to proceed but it's just frustrating. Doing everything I can to juggle the craziness of this fertility journey with life and work and curveballs like this just throws everything out of balance.

    Going to have to go through the rigmorale of asking for more time of work - already taken so much for appointments etc. Running around like a headless chicken to see who can take time off work too to come with me etc. Just added stress that I really don't need right now.

    Feel really frustrated, sad and just fed-up.   

    Offline odashwood

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #276 on: 18/07/19, 12:02 »
    Hi Melanin,

    I am having my treatment in Ukraine but not in Spain. I like the place and attitude. Also, I am happy with conditions as they provide their clients with accommodation, food, medications, and transportation))
    By the way, as for low AMH, I have read these days an article on the BTC website about Mitochondrial donation and it may be interesting for you:
    https://biotexcom.com/mitochondrial-donation-an-opportunity-for-middle-aged-couples-to-become-parents-of-a-healthy-child/
    https://biotexcom.com/mitochondrial-donation-the-opportunity-to-become-a-mother-at-the-age-of-40/
    Take a look.

    Offline Dozydaisy

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #277 on: 18/07/19, 12:20 »
    Thanks Odashwood.. Iím extremely lucky as I have a 2 year old.

    I was on this thread at the start of my journey in 2015.. I had low AMH and high FSH then, but was very lucky to have a baby! Not a day goes by where I donít count my blessings..

    Iím back to try for a sibling.. but as I feared my AMH has dropped.. I havenít seen my consultant yet. As m entitled to one free consultation.. so getting all our tests sorted proper to this.. waiting for my AF to have other bloods done.. tho I donít hold much hope of it being positive news..

    I have tho been reading up on options that are available to me as I havenít given up on myself yet!

    Serum seems to be a good shout .. but Iím looking for insight and inspiration from you ladies.. I was lucky to do it all in the UK last time, but Iím wondering if my options and chances would be higher if I went abroad.. any ideas?

    It worked with short protocol, and high stims .. so Iím not sure if mild or natural is better or not.. getting myself tied in knots.. let me know what you all think I should explore xx

    Offline odashwood

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #278 on: 18/07/19, 13:29 »
    Thanks Odashwood.. Iím extremely lucky as I have a 2 year old.

    I was on this thread at the start of my journey in 2015.. I had low AMH and high FSH then, but was very lucky to have a baby! Not a day goes by where I donít count my blessings..

    Iím back to try for a sibling.. but as I feared my AMH has dropped.. I havenít seen my consultant yet. As m entitled to one free consultation.. so getting all our tests sorted proper to this.. waiting for my AF to have other bloods done.. tho I donít hold much hope of it being positive news..

    I have tho been reading up on options that are available to me as I havenít given up on myself yet!

    Serum seems to be a good shout .. but Iím looking for insight and inspiration from you ladies.. I was lucky to do it all in the UK last time, but Iím wondering if my options and chances would be higher if I went abroad.. any ideas?

    It worked with short protocol, and high stims .. so Iím not sure if mild or natural is better or not.. getting myself tied in knots.. let me know what you all think I should explore xx

    Hi dear.
    I'm not sure if I have any rights to give any advice but in any case, I have my own opinion. I don't know if your chances will increase after you go abroad for IVF but I can say that I am happy with my decision. Despite I have no success yet, I like doctors professionalism, that is why I am still here. So think it over.

    Offline Melanin1

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    Low AMH/High FSH Cycle Buddies - Part 7
    « Reply #279 on: 18/07/19, 15:54 »
    Hi Melanin,

    I am having my treatment in Ukraine but not in Spain. I like the place and attitude. Also, I am happy with conditions as they provide their clients with accommodation, food, medications, and transportation))
    By the way, as for low AMH, I have read these days an article on the BTC website about Mitochondrial donation and it may be interesting for you:
    https://biotexcom.com/mitochondrial-donation-an-opportunity-for-middle-aged-couples-to-become-parents-of-a-healthy-child/
    https://biotexcom.com/mitochondrial-donation-the-opportunity-to-become-a-mother-at-the-age-of-40/
    Take a look.

    Ah ok - pls share details of the clinic? As I said looking at places abroad. Thanks also for the link.