* Author Topic: Low AMH/High FSH Cycle Buddies - Part 8  (Read 14175 times)

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Offline klik

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Low AMH/High FSH Cycle Buddies - Part 8
« Reply #140 on: 15/09/20, 14:43 »
Hi, queenie! I believe, and I really hope, you don't have to go private for the whole thing... I frankly don't know anything about St Mary's but I generally really trust UCLH. I was going to mention Patrick O'Brien worked there but I thought you lived too far away to be in their catchment area... If I were going NHS, I'd personally want to be with his team.

I've only ever heard of one person transferring with the same consultant from private to NHS, but that was with a paediatrician. Still, your question was about having the complexity investigated privately and then moving to the NHS with that information--that sounds to me like it should be doable, but the NHS is unfathomable sometimes.

Keeping my fingers crossed for you... xx

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    Offline Sunshine122

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    Low AMH/High FSH Cycle Buddies - Part 8
    « Reply #141 on: 16/09/20, 06:29 »
    Klik, lovely to hear from you, I have often thought of you when popping on here and hoped you are doing well with your little one.
    Wishing you so much luck for a sibling for your little one. Did you just get the progesterone prescribed from your old clinic? I need to do the same as my luteal phase is even shorter now, I am hoping they will just prescribe without wanting me to go in for a consult/scan/bloods, but Dr Hall who knew us best is no longer with the clinic. I canít face being poked/prodded/examined at the moment.
    Hope your little boy is ok now xx

    Online Briss

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    « Reply #142 on: 16/09/20, 09:26 »
    Just a quick one to queenie, I was at St Mary's nhs,  I really recommend their birth centre although I had to be transfered to labour ward eventually but its just a floor above the birth centre.  I also had my private midwife with me so she could negotiate with med stuff on my behalf as i was obviously in no position to. But frankly my husband did a better job at fighting my corner (my preference was natural birth with minimal meds or intervention and its not easy to achieve in labour ward) I looked into St Mary's private wing but you basically need to put aside something like 20K in case of additional measures and also book a consultant early on. I was in 3rd trimester when I was brave enough to consider thinking about actually birth but it was too late for private.

    Online mouse80

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    Low AMH/High FSH Cycle Buddies - Part 8
    « Reply #143 on: 18/09/20, 19:27 »
    Hi all,

    Briss and Dorchester how are you getting on with cycles?

    MSJ hope youíre doing ok with weighing up the best options going forward.

    Queenie hope all ok and that you have managed to find the right care. Hoping all is ok.

    Lovely to hear others popping on who have had their little ones.

    ATM Iím just waiting to start the next cycle after the cancelled one. I spoke to Dr Khalil today who said they discussed it in the meeting. The consensus was that I could either have hystercosy (sorry not sure if thatís the right spelling) now as my lining has been thin for the last 2 cycles. Or I could go ahead with the same protocol and then if itís thin again so a freeze all and do it around the time of egg collection. The team thought their could possibly be some scaring form emergency c section. I had other bowel complications from the surgery where the surgeon either touched or nicked my bowel and caused it to stop working. So there could be some scaring.

    He said I could do 225 menopur again and initially said donít bother with letrazole but then when I asked why change the protocol he said actually keep it in.

    Iím not 100% sure why letrozole or not letrozole to be honest. My last cycle the lead follicle grew massive (22m) after 4 days of stims where as the one before it was 8 days.

    Any thoughts on whether letrozole is the right thing to do or doesnít make too much difference?

    Also this is my 6th cycle (5th back to back). I donít wait a month in between and start straight on my next af. Dr K said there is no clinical reason to wait only psychological if you need a break. But Iím wondering about my poor ovaries as Iíve now been on meds (either stims or cyclogets) for over 5 months. Anyone have any thoughts?

    The last cancelled cycle hit me hard and it feels difficult to hold on to any hope but part of that might be the doom of cyclogest (which they insisted I should take even though lining to thin and nearly no chance of a good egg in the follicles).

    Thanks for letting me vent multiple failed cycles is a bit of a lonely place. 

    Mx

    Offline klik

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    Low AMH/High FSH Cycle Buddies - Part 8
    « Reply #144 on: 18/09/20, 21:47 »
    Sunshine: hi! All good with DS--I hope all is good with your DD too! Yes, Dr Ozturk is still at CRGH so he essentially made an exception for me and prescribed the Crinone for trying naturally, without any examination. It was a palaver getting it delivered, because the nurses were adamant that this is not a thing that is done... so it might be not so easy to get, unfortunately...

    Briss: hugs

    queenie: I really hope everything was ok at your scan...

    mouse: letrozole should have an effect that is like boosting your stims, which I've come to believe can be a good or a bad thing, depending on how your body reacts to high stims. But a massive follicle after 4 days of stims... maybe you want to downregulate a little beforehand with some oestrogen? I don't know, really... I did want to give you my two cents on two other things you mentioned, though: first, back-to-back cycles with stims. I was also told that the stats show no difference in success rates per cycle if you do back-to-back cycles vs. if you skip a cycle, and I was determined to use every single cycle so as not to miss the good egg when it came. I think in retrospect I'd have given my body and my mind more of a break, gone on more holidays (well, it was pre-COVID), exercised more, tried naturally more often (I don't know if that's an option for you). I could just about do it, cycle after cycle after cycle, but it was a punishing schedule, and really unkind to myself. Ideally you listen to your needs and follow whatever those are--if you really don't want to skip a cycle, then go for it, but if a break sounds welcome, then take it... As for persistent thin linings, it could potentially be because of adhesions, possibly caused by your emergency C-section. There's only 3 people I think are worth seeing for adhesions in London (if that's where you are!)--Geoffrey Trew, Adrian Lower, and Ertan Saridogan. I've met all of them and had hysteroscopies with the first two. I guess the main difference is that with Geoffrey Trew, you'd most likely have an x-ray (hysterosalpingogram) to try to identify adhesions, which apparently HyCoSys and 3D-SISs are *not* very good at doing, before determining whether a hysteroscopy was necessary whereas the other two would most likely do a hysteroscopy after, at most, a simple scan (which you've had loads of by now). It's worth calling around, though, because the costs can be quite different depending on what sort of investigations they require initially. Are your periods lighter than they used to be? That is one potential sign of adhesions... But best of luck with whatever you decide--we are all different and what maybe worked for me (I had a good pregnancy immediately after my adhesions were resolved) may have nothing whatsoever to do with you... Fingers crossed...

    Online mouse80

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    Low AMH/High FSH Cycle Buddies - Part 8
    « Reply #145 on: 18/09/20, 23:22 »
    Kilk thanks for replying and yes my periods have been noticeably lighter since I had my DD. I always thought it was age but in the back of my mind I have alway had a niggle about scaring. Especially as I was so poorly post c section with bowel and bladder problems caused by the surgery. But it could also be my eggs are just rubbish.

    I have had a hysterosalpingogram on the nhs to check my tubes were ok. So think lister were suggesting doing a Hystercosy. Will check out those name suggestions thank you.

    Thanks for you thoughts too on back to back cycles. I think until now it felt ok but itís really starting to take its toll. After this next cycle Iím taking a month off I think. I need to feel me again just for a month and enjoy not having to juggle work, childcare and commuting to the clinic.


    Offline klik

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    « Reply #146 on: 19/09/20, 15:37 »
    mouse: an HSG on the NHS to check the tubes may well have missed intrauterine adhesions... an HSG with someone very experienced looking specifically for this most likely would not, however... And according to Mr Trew, HyCoSys are just not so great at picking up adhesions, as the fluid can obscure the scars. Others think one should go straight for a hysteroscopy, as there's nothing like having a camera inside the uterus to determine what's going on in there.

    Offline klik

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    « Reply #147 on: 19/09/20, 15:45 »
    Oh, and good luck on this next cycle! Hopefully you won't have to think about whether or not to take a break after it...

    Online dorchestor2016

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    « Reply #148 on: 21/09/20, 17:40 »
    Hi All
     
    Klik: Good luck with trying for no 2

    Queenie really excited about your news
    You are a inspiration

    Mouse: heard Dr K is very good!
    Waiting some months out is a good thing

    Briss: How r u?

    I had a egg collection today 15mm
    E2 640
    LH 14 before tigger
    Opk rose early so they decided to do emergency collection...

    Cetrotide double dose reduced my LH two days ago
    Feel bit deflated now :-(
    Premature LH surge is messing up cycles and clinic unable to control it ..

    Online Briss

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    Low AMH/High FSH Cycle Buddies - Part 8
    « Reply #149 on: 22/09/20, 09:50 »
    Ladies sorry for another selfish post, just cant seem to stay on top of anything these days. Had my scan/bloods on day 1 (btw after the trigger my LP held the usual 14 days so even though I do not seem to have natural LH surge anymore I can still produce progesterone and have the appearance of normal LP if I trigger with meds). Anyway, my day 1 scan shows 2 cysts; 12 and 20mm but unlike last cycle where my oestrogen was already over 1000 on day 1, this cycle my oestrogen is super low below 44. I am thinking itís probably worth a try to ignore the cysts and just hope the smaller follicles can respond to stimms? What do you think?

    Dorchester, I so hope this egg is the one! But still I think your estrogen is low, Iíd raise this with your clinic.

    Klik, I am so thrilled to hear you are doing well and considering a sibling for your little one. We missed you here.

    Queenie, I hope your 8 wk scan went well, the entire first trimester is just so stressful but one scan at a time and you will get through it. I am keeping everything crossed for your little one. Btw itís totally normal not to feel much, I started using Doppler at home from about week 9 just to reassure myself that I can find her heatbeat. But some ladies found it even more stressful as occasionally itís not easy to find the HB in early weeks.

    I doubt you get any close monitoring on the NHS, at st Maryís I had all the usual appointments which is every 2 weeks either midwife or a consultant and you have to have a case in order to be referred for something. But overall I only had 2-3 nhs scans and ended up paying thousands for private scans instead (could have gone private for the whole thing at this rate actually). I think you could just go and have a scan with Professor Kypros Nicolaides at the Fetal Medicine Centre. Thatís probably the best thing Iíve done. You would have to wait as there is a waiting list and also make a case like you had Mc before. He does specialise in complex cases so I was told off a bit as my pregnancy was totally normal but I cannot tell you how much confidence it gave me going forward.