* Author Topic: Reproductive/fertility endocrinologist UK? And postal testing?  (Read 2248 times)

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Offline brooky

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I have contacted both Professor Conway and Dr Maksoud so fingers crossed I can see one of them.

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    Offline Bailey 77

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    Hi brooky best of luck with your consultation and sending lots of baby dust your way. Xxx

    Offline brooky

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    Hi guys, so I did the thyroid profile with Thriva and my TSH was higher than I expected. Thanks again for the recomendation, I found it really easy process. Before I decide on making an appointment with either of the endos (who have both said they can do a video appointment) I just wanted to find out a bit more about what you got from the appointment? How in depth did they go with you in terms of discussing possible treatment options. Did they take the time to go through your history carefully? I'm just asking as it is a lot of money for a short appointment so I want to make sure they will be thorough before going ahead and booking.

    Hope you are all well xx

    Offline StrawberrySundae

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    Personally I found Dr M more thorough and willing to help, but Prof C is the more famous specialist. Both wanted past history info which they read through, but Dr M wrote more in depth reports & summary of my history with test result info etc to my GP, which I found very helpful as I could use for other things/clinics subsequently. Well done on  doing the Thriva test, I did a finger blood test once and really struggled squeezing enough blood out of my fingers! 🤢 Glad you’re making progress 😊 xx

    Offline Bailey 77

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    I can tell you about prof c. He asked that you do a medical summary prior to the appointment and send it to him so he can read beforehand. I was delighted with the appointment I had with him as I had slightly above normal tsh and elevated insulin resistance. I am also struggling to lose weight. He listened to me and then gave his opinion of what might be going on and then prescribed metformin and thyroxine. It was the first time I felt a doctor listened about my metabolism issues. He then wrote a letter for me addressed to my gp. He has recommended that if I get pregnant again I stay on thyroxine and metformin for the first trimester. As he said it could help with my miscarriage history. He sent the prescription via post. I've taken the medication for a month now but have not lost any weight but I am due to have a repeat thyroid function test on Friday and that will let the doctors know if they need to increase the thyroxine. If you need and other help give us a shout. Xxx

    Offline Poppy41London

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    Hi there

    I have seen Professor Conway this year and liked him. Before going I had a full thyroid profile done and provided him with the results. I also wrote everything down that I wanted to tell him about my history and he listened intently as I went through it all, asked questions and took notes. I also gave him a copy of everything I had written down to put with my file and he took quite a bit of time with me and took me seriously.

    He also recommended thyroxine and metformin for me. I started on these just before lockdown. However I had a bad reaction to metformin - it made my eczema flare badly - and I had to stop taking it. I have been on the thyroxine since then though and just last week had a blood test to see how it has affected me (would have tested sooner except for lockdown).

    Unfortunately although I have felt a bit better physically, my TSH levels haven't dropped and I only lost a little weight in the first 3 weeks of taking the medication. Though I am only at just over 2 for TSH - but based on my symptoms Professor Conway was willing to prescribe me thyroxine anyway ahead of me trying a FET with our remaining embryos. However,  he said based on my TSH the GP would not agree to this so I would need to have private prescriptions.

    I started on the lowest possible dose which is 25mg. The first prescription was given to me at my appointment and then he posted me another. Since my most recent blood test result he has agreed to up my dosage to 50mg per day and has sent me another prescription for this, however he charged a fee of £30 for writing the prescription. I also had the follow up blood test at his london clinic and that was £121 which isn't cheap but my NHS GP won't do any testing 😡. Fortunately the actual medication is quite cheap though and also the blood results came back the same day so no waiting around.

    Anyway, I would recommend seeing him as he is well respected and seems to know his stuff. And if like me, your results are borderline normal, he won't just fob you off if your physical symptoms suggest there is an issue.

    Offline Bailey 77

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    My tsh was 3.85 and I was put on 50mg of thyroxine. The blood test is a thriva finger prick blood test but the test I'm having tomorrow will be a venous sample. I wonder if that alters the results.

    Offline Bailey 77

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    I was lucky the gp did a prescription and requested the blood tests for me after I gave them the letter from prof c.

    Offline Poppy41London

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    Hi Bailey

    I guess because your TSH is above the level recommended for pregnancy there was more of an argument that the NHS should have to do your prescriptions and bloods. I am glad your GP agreed.

    Also, I haven't had the finger prick tests but I would think they should be fairly similar in accuracy, although perhaps the length of time it takes for them to receive the blood may impact things? Professor Conway suggested I do a home test when it was impossible to travel to the clinic so he must think they are fine. However I am too squeamish which is why I waited.

    Offline Bailey 77

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    Hi poppy41london. Yeah my tsh levels were 3.85 and he said that they like it below 2.5 in pregnancy.