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Discussion Starter · #1 ·
A few months ago I had pain on my left side and was experiencing very long (40-59 days) cycles. My doctor sent me for an ultrasound and found that I had a hemorrhagic cyst. The ultrasound also indicated that I had 3 myometrial cysts, the largest being 5mm. I also have a small fibroid. The person who reviewed the ultrasound said that adenomyosis should be considered due to the myometrial cysts. My doctor is not concerned and told me just keep trying. I am very concerned especially after what I have read about adenomyosis. I have no other symptoms of adenomyosis besides the cysts. What should I do?

Thank you
:)
 

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Hi,

No wonder you are worried. Almost everything written about adenomyosis is negative and mentiones hysterectomy at the same time. I was told I have this following an operation to treat endometriosis. The surgeon at the time told me a hyst would be advisable. However, I have met many supportive Drs since. I have been told that it has no effect on fertility, but there is very little info as most women are only diagnosed with this after their childbearing years when having a hyst. I'm not sure about the link with fibroids and myometrial cysts though. As far as I'm aware I don't have them. I have severe endo and adenomyosis is internal endo, inside the womb. My cycles are usually of normal lenght with not much pain. Have you seen a fertility specialist with some knowledge of fibroids / adenomyosis?

Good Luck  :)

Sushi xxx
 

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Discussion Starter · #3 ·
Hi Sushi,

Thank you for sharing your experience with me. The most stressful part is not knowing what I have to deal with. I am going to see a new doctor this week and I hope he will be more responsive.

DD
 

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Hi DD,

good luck with your appointment. Let me know how it goes. I would love to know what this dr has to say. Hope you don't mind.

Sushi
 

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I will let you know for sure. He is GP not a fertility specialist. My hope is that he will refer me to specialist right away. I have only charted and TTC'd for 2 months but there are obviously some issues here that need to be dealt with. I wish you luck with your attempts at having a baby. 2005 will be a good year. I have a feeling.

DD ::)
 

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Thanks DD  :) There certainly are issues there as I have extremly long cycles but I think you have the right attitude there, which is really important :) 2005 will be our year for sure. My Dr thinks my positive outlooked really helped me so far.

Sushi 

 

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I was diagnosed with severe adenomyosis about 5 years ago. Initially I was told that it would have no impact on fertility and to keep trying. After a few years of no luck we started tx and I concieved twins with IUI. Unfortunatly they didn't develop and I m/c 1 and at 9 wks I had an evacuation for the other. I developed an infection suspected to be caused by retained products due to enlarged womb. I then developed a pulmonary embolism and was immediately put on blood thining drugs and told to stop fertility tx. The following month I concieved naturally and it appeared that although my baby had implanted in a very unusual position due to distorted womb, everything looked fine. At 14 wks I was the size of 20wks and misdiagnosed with a molar pg and was offered a termination to start chemotherepy. This was not an option for me and I was told that I could go into labour at anytime. I prayed that my baby would stay with me till a viable age but at 17wks my waters broke and I was told that I had no choice but to have a termination. This happed last June. The dr's say there is no evidence to say why although I'm sure adenomyosis is the reason. I have not conceived naturally since and am due to start tx again in Feb. My periods cycle length and pains have improved dramatically since but I feel that I am in a constant battle to find anyone who knows about this horrid disease.
Sorry for rambling. If there is anyone who can share any similar experiences, I would be very grateful to find out more.
 

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Jelly

I too was diagnosed with endo (15 years ago) and adeno (6 years ago) during lap, I am lucky I have a DD of ten and am going to have 1st IVF in Feb/march.  My consultant said six years ago that I would need a hyst as yet I have managed to quell the worst of the symptoms and have not been able to get pg naturally due to sterilization before meeting my lovely new DH.

I hope that you manage to have a  ^reiki^cycle in jan/feb, from what I can tell adeno is something of a mystery to medical profession.  When my new consultant did a scan he thought that the condition of womb/ovaries was okay.  So we will hope and pray like yourselves.

Good luck and sticky vibes

Rebecca s   
 

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Hi  Jelly and Rebecca :)

Jelly, I'm so sorry about the loss of you babies. Being misdiagnosed with a molar pregnancy must have been horrendous.

I don't have a similar experience to share. But just wanted to say since I last posted in January, my cycles became very long, sometimes 55+days :(. Not sure what the cause was, but I now have regular acupuncture and my last 3 cycles have been normal. I had my last scan in September and my womb looked fine, what a relief. Seem endo on my ovaries is more of a worry atm and will have my cysts removed in March.

I think adeno isn't really understood, as it's usually diagnosed in older women having a hyst. But just wish doctors wouldn't go on about a hyst, especially when it's so inappropriate with women TTC  :mad: Rant over....

Has anyone heard of DD? DD if you're reading this please let us know how you are. :)

Lots of love,

Sushi xx

Good luck to both of you with your tx  ^reiki^ ^reiki^ ^reiki^ Will be having my next round of ICSI hopefully in April/May  :)
 
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