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Discussion Starter · #1 ·
Hello Girls

Am new and looking for advice please!  I am just about to go back to see my GP to request further tests etc.  I was diagnosed with PCOS in 1997 and left to get on with it as we weren't planning a family at the time.  I need to know what kind of things I should be asking the GP.  Presumably I have to get the GP to refer me to the hospital?  Sorry if I sound naive - just don't really like doctors so only go when I really need to!

I mentioned wanting to start a family last time I was there and was told losing weight was best way forward plus was prescribed Dianette as she thought it might regulate my cycle!  I only took it for one month as I have read not so good stuff about it and it made me feel ill and couldn't quite get my head around taking contraception when the idea was to try for a baby....  I also mentioned metformin as I feel like I have blood sugar level issues but as my fasting glucose level came back ok she didn't seem interested either and said they only prescribe it for diabetes.  Sorry, I am waffling now.  it's just that I feel like I need to go armed with a big list of questions and requests in order to be taken seriously (but it's probably all in my head due to my dislike of GP's!)

In the meantime I am taking the vits, just started agnus castus today and have the South Beach diet book on order so am going to try to help myself (but as have only used contraception for one month in last 7 years don't hold out much hope for natural pg at the moment!)

Thanks for listening and would value your comments/suggestions on what to ask the GP.

Fluffs xx
 

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hi fluffs

i too have pcos and my story sounds similar to yours!
I was offered dianette too and was ttc so defeated the object !! I had to push for a referal to my hossie but i am now under the endocrineologist and am on metformin.
Did you have the glucose intolerence test at your hospital , this is different to fasting glucose which sometimes doesnt show up if you are glucose intolerent which alot of people with pcos are.
I also had my gp check my thyroid too and found it was low so take thyroxine for it now also.
Dont let yourself be fobbed off without a referal to the consultant and offer of metformin and glucose intolerence test .
If you want to know anymore i will keep an eye out on this post and try and help if i can
let me know how you get on

take care
suzie aka olive
 

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Discussion Starter · #3 ·
Hi Olive,

Thanks for your reply.  It's good to know that it is not just me that feels like they have a fight on their hands every time they walk in to their GP's office!  To be fair I should probably give her a bit more of a chance as I haven't been with her for that long.

The fasting glucose test was just a standard GP surgery blood test so I don't think it is the detailed one which the hospital would provide.  Since I have been trying to avoid too much sugar and only eat complex carbs I seem to have been a little better (although it has only been 2-3 weeks and I don't always feel rough so it may be too early to really tell if diet changes are helping).

I keep hoping that if I make a serious effort witht he diet and keep taking the herbs and vits it might just have an effect (and DH is scoffing vitamins like there is no tomorrow as well because I pointed out to him that if we get referred for further tests then it is likely he will be required to 'perform' too.  I think I scared him into taking the vits!  ^evil^)

Thanks for you help

Fluffs x
 

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Hi

Just thought Id chip in, my GP refused to prescribe metformin and kept insisting my glucose was normal.  When I got to see my Prof he said it was the wrong test anyway and the one to do was glucose to insulin ratio.  My glucose was low and my insulin high, the important factor being that the ratio was twice the level it should be.  I started metformin and feel fantastic for it. 

Good luck XXXX
 

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Discussion Starter · #5 ·
Thanks for that Lollypop.

I did mention to the doctor that I feel like I have low blood sugar at times but she fobbed it off by saying 'oh you probably need to eat something'  ::)  The thing is I do eat well and fairly regularly and as I wish to lose some weight I do not want to have to keep eating more to feel ok!  I think I will push this issue next time I see her.

Glad you feel fantastic now  :)

Fluffs xx
 

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Discussion Starter · #6 ·
It's me again!

Since I started this thread I have been sitting quietly and waiting for the Agnus Castus to do its stuff...  I am on day 66 now and no signs of AF.  I am so fed up of this now that I have finally gotten around to making an appointment with my GP so that I can push it on to the next step.  I have a few questions if I may as you girls are so knowledgeable on the subject!!

Can I get the insulin to glucose ratio done by the GP or do I need to see a specialist for it?  What does the test involve?

Can I insist on a referral or do I have to wait for the GP to do it when she feels ready?  DH is happy to go private for initial tests to speed things up (although not sure we can afford the whole hog) so would this be the best way forward?  Will the GP do this or do I need to contact clinics directly?  And one more (sorry!) what would an initial hospital consultation involve?  Could I walk away with a course of treatment (i.e. Metformin) or would I need to have loads of tests done first?

Sorry for all the questions it's just that it is all new to me and I don't know anyone who has been through the same thing (apart from you guys!).

Good luck to everyone wherever they are in their treatment and here's hoping for lots of advice!

Fluffs xxx
 

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Discussion Starter · #7 ·
Olive & Lollypop (or anyone!)

Just an update and a question for you please..  As a result of my GP visit I have got myself a private appointment at the end of this week (am scared now it's all happening!).  Can I expect to come away from the appointment with a prescription for metformin or similar or will they want to do loads of tests etc before suggesting any treatments?  I already have PCOS diagnosed so presume they will want to try to get my cycles back on track and some weight loss before anything else?

I don't know how this all works and have no patience left!  :(

Fluffs xxx
 

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Hi
I don't have PCOS so I'm absolutely no help to you on your main questions but I just wanted to say something about dianette!

I was on dianette many years ago while I took roaccutane for my skin (you weren't supposed to get pg at the time  - ironic!). As well as a contraceptive Dianette's also supposed to be quite good for skin probs, so it was prescribed as a sort of background aid to the skin drugs.  After my course of roaccutane finished I carried on taking the dianette for contraception  for about 6 more months (sooooo ironic) and put on about 2 stone in weight.  I didn't have a weight problem before.  Eventually I saw a different doctor who said 'don't you know dianette is notorious for weight GAIN'  and immediately told me to stop taking it!  I was prescribed another pill for further ironic contraception and to regulate my painful periods.  Oh and I did lose weight.

Just thought I'd share that little gem with you....don't know if it's different with PCOS but it seems a bit odd to me to be told to lose weight and then be prescribed dianette which may well put it straight back on again.

Claire xx
 
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