Fertility Friends Support Forum banner

1 - 20 of 232 Posts

·
Registered
Joined
·
72 Posts
Discussion Starter · #1 ·
Hi,

I hope you can give me some advice. I had a lapy/dye test done in March and was to discover that I had blocked tubes. Mainly the left one. My dr told me that it was slight but enough to cause the infertility. I have recently been adviced IVF is our next option. We have decided that we want to do this so are saving. But what I can't understand is why he hasn't recommended surgery to remove the blockage. Is this usually the route they take first. I just wanted to know if I wanted this op would I be able to have it done privatly? What is the success rate of this and is there alot of danger with that sort of op. I hope that made sense ^chuckle^ I hope you can help.

Thanks Kelly
 

·
Registered
Joined
·
520 Posts
Kelly,
Hi. I have also had a lap and dye just two weeks ago. I had my follow up with my consultant today to discuss tubal surgery or ivf.
I could have surgery with him on the NHS or be referred for ivf.
After a lot of debating and info finding i went back to him today i said we'll try ivf first.
He agreed that in my case with scar tissue blocking tubes ivf has the higher success rate. If ivf doesn't work i can go back to him later for surgery.
I've asked a lot of people their advice, surgery or ivf and the majority say ivf, so i think your on the right track! I think your consultant feels this is best for you as well!

Good luck and hope all your dreams come true!

Love Emma

P.s I'm also not a nurse and also speak from experience so far!
 

·
Registered
Joined
·
72 Posts
Discussion Starter · #3 ·
Thank you very much for your advice! I feel alot better now and feel that IVF is the best thing for us going by what you have said.

Thanks again, and good luck too you both
Love Kelly x
 

·
Registered
Joined
·
604 Posts
Hi Kelly

Like you I found out I had one tube blocked in 2002, I was also told this was enough to case infertility, the other tube was OK, slightly constricted but open enough. I opted for surgery as the ovary/tube was dying off. Had the surgery but was beseiged by complications & I'm still on the painkillers to control the pain from those operations, 15 months later.
I've now found myself in a situation where the other side has gone the same way, maybe because of a result of what happend with the previousl surgeries & again I am looking at having that out, although my decisions changes on whether I have this done each day!!
If I had  my chance again, I probably would have left well alone, had IVF first and then had the surgery but hindsight is a great thing, ultimately only you can make the choice though and it has to be the one that feels right for you and your partner.
I'd talk through all of your options with your gynae and get as much info on each option as you can and go from there.

Love
Chick
 

·
Registered
Joined
·
39 Posts
Hi Kelly,

Just wanted you to see a success story to give you some hope! If you click on my name and read all my posts you can see the whole story which starts in April this year when I was told both my tubes were blocked and had fluid (hydrosalpinx) and I would HAVE to have them removed prior to IVF ... the good news is that I got a second and third opinion and was able to proceed to IVF with no further surgery, and I'm now seven weeks pregnant with twins!

I'm 34, so I wanted to get on with IVF in case it took many attempts and years of trying. What was carefully explained to me was that I could also have tubal surgery, but that it was a major operation (open incision rather than keyhole surgery) and had only a 30% chance of success. If you try IVF and find you respond badly to the whole process, at 26 you'll be very glad you still have the option of tubal surgery if thats the only avenue open to you. However, it really is worth trying IVF first because it could be a much faster and in the end, less invasive, way forward.

One thing I highly recommend, and you'll find out more if you look through my posts, is following a good diet plan and taking supplements before you have treatment. I'm convinced it made a huge difference in my case, particularly for me because I had this fluid problem, which some people have said can half your chances of success with ivf. That said, for anyone reading this who's been told about the toxic fluid and its effect on implantation ... my fluid showed up on one ultrasound, and then not on another, and then when I began tx the doctor also couldn't see any evidence of it. If he COULD have seen it, he would have aspirated it with a needle ...but this turned out not to be necessary as it wasn't there!!! Just so that you know, if I had followed the advice from the original opinion I would have had the tubes removed, which turned out to be completely unneccessary. The next consultant in fact explained that it is much better to leave that area alone if at all possible. If you remove the tubes you can also upset the delicate balance of the ovaries, which of course you completely rely on them functioning well to get the most out of IVF.

So anyway, I think that the diet and supplements (which we both followed for 3 months prior to tx) really gave us a head start with good strong eggs and sperm. I got 17 eggs at EC, and 16 out of 17 fertilised (9/10 ICSI, 6/7 IVF). We ended up with a blastocyst (5 day old embryo) each from IVF & ICSI, and obviously both implanted. We also were able to freeze four embryos. The other thing that helped enormously through tx, which not every clinic advises, was to drink huge amounts of fluids. We were recommended to have 1 litre of milk and 2 of water when we started down-regging, then up to 3 of water and 1 of milk once stimming began. The ovaries are under huge strain at this time and the fluids really help them cope and produce lots of follicles.The better they function the more mature and better quality the egss will be, so every little helps.

Sorry to ramble but I know how daunting this seems at the beginning. Please ask questions if any of it doesn't make sense or you want to find out more.

Best of luck to you, and I hope your dream comes true as quickly as mine did!!!

xxx Kate
 

·
Registered
Joined
·
72 Posts
Discussion Starter · #6 ·
Hi Ladies,

Just wanted to say thanks to Chick and Kate, your advice is very welcome.  Congratulations Kate on your pg with twins. I have read your posts and I have a feeling that I may have some sort of fluid in my ovaries like yourself.  It was only mentioned briefly but I am sure something was said... will bring it up on next app.  Def going to look into the MG diet and vit's.  Chick, Thank you for sharing your story I think I am going to try IVF first, but will ask gyny all sorts of questions first. Also wishing you good luck and I hope your dreams come true x

You are all wonderful people

Love Kelly x
 

·
Registered
Joined
·
1,098 Posts
hi its birhbaby im 25 i had blocked tubes have had 2 cycles at ivf first witch didnt work then went for the op on my bloked tubes wish i bloody didnt they fixed1 first had complacations with the cut on my pubic line infected then scar came back open ruff time reallythen wen everything calmed down fell preg but itwas an ecptopic 8 weeker in my tubes but was still my baby so they took my tube as quick as they fixed it if i could turn back time would never gon for surgery they have to clip my other tube ready for 3rd cycle cos doc said that iwill have another and the girls are right the pain still gets to me and had my tube unbloked 2 yr ago  but good luck to you all may yr dreams come true can sumone tell me how there going to clip my tube please ? my other tube is rapped around the side of my bowl so they cant take it just clipp it  ttc 6yr married 7yr
 

·
Registered
Joined
·
12 Posts
Hi

I have just had and HSG and a lap. In the HSG One tube was blocked the other was 3 quarters blocked no spill at ovary end. When I had the lap they couldnt get the dye through at all in either tube. The consultant said that he was stumped cos everything looked as healthy as can be in there otherwise. He said I might concieve naturally I might not but he will refer me for ivf anyway and treat it as if they are blocked. I had chlamydia years ago so I presume this is the cause.

Would I be classed as unexplained fertility? Or is this something else altogether?

Thanks

Dewy xx
 

·
Registered
Joined
·
1 Posts
It's not really unexplained it's just damaged tubes I think.I had chlamydia but it went undiagnosed and became severe pelvic inflammatory disease.I have only my left tube which is blocked and what puzzles me is that they would rather us try IVF without trying to unblock them first.Do you know why this is?
 

·
Registered
Joined
·
36 Posts
I found out i had blocked tubes due to PID and i was given an op to unblock them, I think it depends on the damage as more ops cause more scar tissue and more blockage. It didnt work for me but everyone is different so it might be worth asking your gp.

                                    Good luck
                                              Sam xxxx

 

·
Registered
Joined
·
20 Posts
Hi -

Re: why go for IVF and not just unblock tubes first...

I am not an expert at all, but have just found out I have an obstruction in my left fallopian tube (fluid-filled) as the result of an HCG.  The Registrar explained that they usually only do tubal surgery on people who have had their tubes clipped for sterilisation or something straight forward as surgery can cause other problems - shorter tubes, scar tissue, etc.  The tubes are lined with hair like projections which are very sensitive and might be disturbed too.

I was told my blockage was something which sounded like "hydrasalpinx"...?  It was not apparent during my August scan at my fertility clinic, but it can apparently be the result of a recent infection or a condition which disappears and reappears occassionally!

Hoping this helps!
xPatrice :)
 

·
Registered
Joined
·
36 Posts
i wonder would the moderator set up a sub-board for tubal ladies?
I don't think tubal ladies belong in "unexplained".
I have two profoundly damaged tubes. Left so bad it is stuck to my bowel wall and the ovary stuck there too.
When I had my naturally conceived ectopic, it was so bad inside me, they had to cut my poor little bean out of me and left the tube.  They couldn't get to the tube to remove it.
My right side has a hydrosalpinx.
I have no definitive reason why.  One consult thought it was endo the other said PID.
All tests came black clear, so the GUM consult said it was more than likely old PID, at least 18 years old.
My fimbria (hair like fingers inside the tubes) are completely destroyed too.
In fact, saw my surgery notes.  It is depressing reading and i sobbed buckets after reading it.

I asked about tubal mircosurgery and it was ruled out.  Said there was no point with me (how depressing is that)?
THey then told me my chances are NIL for a viable natural pregnancy and to give up the fantasy.
IVF or maybe ICSI is now my route.

xx



Me 36, DH 40
Female tubal, male morphology and motility issues too
One ectopic, naturally conceived and lost in Feb 2003
TTC forever.
Just received another setback, our NHS cycle has vanished into thin air due to paperwork probs.
 

·
Registered
Joined
·
20 Posts
Dear greygoose,

A big hug for you ..and thank you for telling me your story as it gave me further insight into blocked tubes, etc.  I might have an idea of what to expect when I see the consultant in a few weeks..

Looking on the bright side - the consultants may have saved you further years of frustration and waiting by finding out what they have.  You can now hopefully move forward with IVF/similar?

After @ nearly 6 years of ttc again (lucky enough to have 6 year old daughter), I wonder whether the hydrosalpinx is a large part of the reason for our lack of success.

Good luck to the rest of you who posted on the tubal issue too!

x Patrice
 

·
Registered
Joined
·
36 Posts
patrice,
the prob with hydrosalpinx is this - divided opinion.
i have read the research that shows the fluid that is a hydro can leak back into the womb and poison embies trying to stick there.
it can cause implantation probs in IVF/ICSI.
when i put all this to my Prof he said he was aware of the research but also has ladies who cycled with hydro and had got a positive result.
for me, i have a right hydro and a left tube badly damaged but no hydro.
the irony (and frustrating part) for me is that my Prof wanted to take out my tubes (hydro and other badly damaged one) because of the implant risks then changed his mind cos of the risks to my health.
as i said in my earlier thread, i am a mess inside.  he said the risks were so high i would probably end up with a colostomy bag and losing the ovary. 
i wanted him to take out the right-sided hydro but he said no.

this is a great new thread, am glad its here.
 

·
Registered
Joined
·
104 Posts
Hi Girls

I hope you don't mind me joining in.

I also have blocked tubes + PID.  I had a laparoscopy two years ago and they told me that one of my tubes was blocked, I had adhesions and also that one ovary was stuck to my bowel.  The doctor said he was able to put some type of fluid in which releases everything.

Anyway, I had a laparatomy last summer to unblock my tubes.  After the operation I was told that one tube was definitely not blocked and the other went into some sort of spasm whilst they were checking (but this was probably due to all the work that had went on during the op).  So they were quite positive that both blockages were cleared.

I was kept in hospital for over a week and then out for work for 12 weeks.  My follow up appointment was not for another 7 months.  I asked where they going to test to see if the tubes were still unblocked and he said no and then went on to say that if I hadn't got pregnant within six months of the operation I would definitely need IVF as my tubes are probably blocked again  (Considering you are not allowed to do anything for 3 months - I really don't understand why he bothered).

I am really sorry for going on a bit - its just I understand how you all feel - its just not fair sometimes.

Anyway, I had my first IVF in July/August but unfortunately got a BFN.  But I will be keeping everything crossed for the next attempt which is probably going to be (Feb next year).

Good luck to everyone.

Kathy
 

·
Registered
Joined
·
186 Posts
Hi Girls

I had a lap and dye in May 2000, and was told in an extreamly uncaring kinda way that both my tubes were blocked nothing got through on the dye and that i would never conceive naturally. When i aasked why or what could have caused it, the consaltant just said oooo chlymidia (sp?) i expect!!! well of course i was totally devastated :(.  I aslos asked if there was any kind of operation to unblock the tubes and was given a direct NO. As was told that i would go on the NHS waitlist for treatment.

2 years later DH and i moved to east anglia and asked if we could move our place on the waitlist only to be advised that there was no NHS waitlist in our area...we would have to go private!!!

So feb this year we decided to visit our local clinic who are extreamly helpful and nice, and during our consultation, the consultant looked through my notes and said i note that you have had an apendix removed, it was probably an infection from this which has caused the infection to your tubes. He said that there was an operation that we could have done, but didn't recomend it because we do not have private medical insurance, and the results are not so great as to make it worth it as against IVF.

We did our first Cycle in May/June this year and got a BFN but i am cycling again now and hope of course that it will be different this time.

^reiki^ ^reiki^

Take care girls

Abbi
 

·
Registered
Joined
·
7,657 Posts
Hi Girls

I would just like to say don't give up hope  ^reiki^

I had hydrosalpinx in both tubes, i had my first negative when i still had my tubes (one had a hydrosalpinx then), then i had my second negative after having one tube removed but had an hydrosalpinx in the remaining tube and then after having that tube removed got my BFP and now have Jessica.

I am not saying that having my tubes removed did it for us as it could of been a complete fluke but i did feel better in myself after having them both removed, i had been on anti-depressants and was an emotional and physical wreck as my endometriosis was playing up badly as well, after having my tubes removed i felt better about conceiving and knew in my own mind that i was giving myself the best possible chance.

I would also like to say that i was told i may end up with a colostomy as my insides are all stuck together but fortunately i didnt, they couldnt unstick my bowel from my ovaries and uterus but they did remove the tube ok.

So if you are considering having your hydrosalpinx removed i can honestly say it isn't that bad and that there is hope after it is done.

All the very best of luck girls.

Mel

x x
 

·
Registered
Joined
·
20 Posts
Hi everyone -

It's been so helpful reading about your experiences - thanks for sharing them.  I have a consultation at the ARGC re: my hysteropingagram (HSG?) on Monday afternoon, so I have more of an idea of what to expect.

Mel - it was good to hear you finally got your positive  ^reiki^!  It has given us hope..I hope "greygoose" has seen your note.
xxPatrice
 

·
Registered
Joined
·
1,058 Posts
Hi ladies

I have got a hydr in my right tube and have been told to have IVF. My consultant said to give IVF two goes and if still no Positive then to consider looking at removing the tube. But this would be a major undertaking.

I am seeing my endo specialist on the 14th Oct and i will ask him what he thinks about it.

I will let you ladies know what he says

Untill then I wish you all the luck in the world on this emotional journey that we take together
take care
Sahara
 

·
Registered
Joined
·
20 Posts
Good luck Sahara on the 14 October!

I look forward to hearing how you got on.

I guess this hydrasalpinx condition is more complicated than I initially thought.  I'll find out more on Monday.

take care -
x Patrice
 
1 - 20 of 232 Posts
Top