Fertility Friends Support Forum banner

1 - 9 of 9 Posts

·
Premium Member
Joined
·
29,892 Posts
Discussion Starter · #1 ·
Hiya

just wondering..........

does pcos go away, or is it something that stays with you

reason i ask is that i was dx with pcos in 1994, i had a scan last week, day 6 of cycle and they said that in the ovary i have (only have one) that there is no sign of pcos.

I was dx via laparoscopy, blood tests and uss and tvs, they said that there was no enlarged ovary, which is common with pcos, and no sign of any cysts

I still have other symptoms with pcos which are still here with me unfortunately

any help appreciated

Thanks in advance

Emilyxx
 

·
Premium Member
Joined
·
29,892 Posts
Discussion Starter · #2 ·
ps forgot to ask

anyone else suffer from lactose intolerance with pcos??

i have just been dx with it and am wondering if its linked to pcos??

once again any help appreciated

Emilyxx
 

·
Registered
Joined
·
2,901 Posts
Hi Eeyore

I had pcos and got a cyst removed of 10cm and ever since i have had no cycts  and doctor say i dont have pcos now so it must go away for some people im the same as you one scan i had another i hadnt hope this helps goodluck hun

love always lilly xx
 

·
Premium Member
Joined
·
212 Posts
Hi Emily!

PCOS is such a strange one isn't it!? Most 'experts' seem to suggest that there is no cure and you can't get rid of PCOS. In saying that, they don't seem to be able to agree on what actually classifies PCOS. For example, some people have all the symtoms but not the enlarged ovaries, and some people have the enlarged, cystic ovaries but not the symptoms. Very confusing.

When i went for my scan back at the beginning of the year, my ovaries were enlarged, although not actually cystic, and this was taken as a pretty definate sign that I had pcos. Hormome test confirmed this, as my LH level was sky high as was testosterone. However, at my last few scans, my ovaries appear perfectly normal and aren't cystic at all. The appearance of them alone suggests that i don't have PCOS, however, my imbalanced hormomes, lack of periods and aggressive symptoms suggest otherwise.

I think that the bottom line is that even 'specialists' haven't got to grips fully with PCOS yet, and are still trying to figure out exactly how it 'works'.

Sorry if I'm rambling, suppose I'm just trying to say that no one really knows enough to say for sure yet, but it is unlikely that PCOS ever entirely 'goes away' just that your symptoms change over a period of time. I also believe - juding from my scans - that its quite normal for you ovaries to regularly change in appearance.

Perhaps you could ask you Dr for a full hormone screen and see what this shows up?

Take care hun,
Love Kate x
 

·
Registered
Joined
·
86 Posts
Hi...just thought I'd add my two pennies worth.  My symptoms fluctuate considerably, and I think they have done for years.  I was aware of the symptoms long before I was dx 4 years ago.

I suspect my mother had it too, and if I compare myself with my mother our weight has fluctuated over the years.  Personally I can corelate this with times when my symptoms have eased.  I have no basis for saying this but I think I can lose weight when PCOS "goes away."  I know the drs will say that my weight causes the symtoms to go but I'm not too sure about this.

Indeed, I go through phases where my cycles are "normal" and there is an identifable pattern.  Then it all goes out the window and the only pattern to my cycles is that there isn't one!

Recently I've started to get breast pains - I've not had these before and I was really worried until someone told me (and I checked this out on the net) that this can also be a PCOS symptom.

I guess what I am trying to say is that PCOS stays, but it manifests itself in different ways over time.
 

·
Premium Member
Joined
·
2,836 Posts
Emily,

I never thought to connect my Dairy Intolerence to my pcos,
My Symptoms seem to change monthly it seems.

I had a lap in dec when it was supposed to be lasered away - i have done a lot of treatment since then, so havent really had a scan when they havent been controlling it with drugs - does that make sense.
I will be interested to see what happens at my new clinic.

Take Care
Debs xxx
 

·
Registered
Joined
·
604 Posts
Emily
I thought I would just throw my hat in the ring here!

I was diagnosed with pcos in my teens and I had problems with it up til about the age of 20, then the symptoms disappeared and returned last year, my IUI scans & bloods confirmed pcos.

Had my op in Jul as you know and saw Mr Vine on Friday, he says that pcos never really goes away, because they can treat the actual pcos, but the don't know what it is that makes your body make you have pcos, if you see what I mean! I think for me, my symptoms went away because I was exercising and eating better and having complementary therapies & I believe mine came back because of the stress of the amount of surgeries I had had to have in 2003.

Had the diathermy on the remaining ovary and my symptoms have improved, although the increased hair growth is still a problem for me but pain wise, it seem to be a bit better, last AF certainly wasn't half as painful as normal.

Chick
 

·
Registered
Joined
·
622 Posts
Jus t want to say that unfortunately it will never go, it is something that just lies dormant and appear at any time, it is horrible painful and to some debilitating, but you can get through it.
I had a transvag scan last yr which consultant said was showing signs of pcos, a lap and dye showed hug chocolate cysts, when i went to new hosp end july, the trans scan showed no signs of cysts for pcos or otherwise very confusing but i have been told they can disperse but will never be rid of it.
Will have to wait till wednesday for all my results to be together and find out what is going on, only taken 2 yrs to get here
 

·
Registered
Joined
·
2 Posts
Eeyore1972 said:
ps forgot to ask

anyone else suffer from lactose intolerance with pcos??

i have just been dx with it and am wondering if its linked to pcos??

once again any help appreciated

Emilyxx
Hi, I'm very new here, and I can't believe I have just read this! I have NEVER thought of my lactose intolerance being linked with my pcos, I am so glad I read this before going to the Dietition next week :)
 
1 - 9 of 9 Posts
Top