Fertility Friends Support Forum banner

1 - 17 of 17 Posts

·
Registered
Joined
·
5 Posts
Discussion Starter · #1 ·
Hi

I'm new to the board but have read messages and found them useful & encouraging but I'm getting really down and desperate at the mo.  I've been diagnosed with polycysic ovaries but have not received much help from docs as I'm not trying for a family yet.  On my last visit to the consultant he said he had no need to see me again unless symptoms get worse (I only have symptoms not cysts).

I am desperate to lose weight but it really isn't coming off very easily and that's really dragging me down, I also had hormone injections to try to level off my hormone levels but have had to have yet more hormones to kickstart my mentstrual cycle as it didn't start back up on its own - what options are available, where do I go from here?  My doctor refused to try metformin and the dieticians at the local hospital are useless and just give out the basic information (eat low fat) which I do anyway - I'm now really at my wits end and it's affecting my self esteem big time  :(

Any info would be useful & appreciated...
 

·
Premium Member
Joined
·
16,348 Posts
Hi Claribell,

If you do a search on here for  -      PCOS diet    you will find lots of threads with some good advice.

What I would like to say is that Polycystic ovaries are not necassarily the same as Polycystic ovarian syndrome. Perhaps you need your doctor to confirm ;)

I hope things start looking up for you :)

Sending Hugs,
Tony,
x
 

·
Registered
Joined
·
14 Posts
I understand you feel down, im on a low carbo diet at the moment and nothing seems tasty anymore....... im still looking to see if i have endo or polycystic ovaries or both?! But have sort of decided maybe getting a mortgage and security is more important than having a baby now my son is ten years old..... perhaps i should travel the world with my DP when my son has grown... instead of starting again.... I have just got a degree and maybe i should actually put it to some use????
 

·
Registered
Joined
·
5 Posts
Discussion Starter · #4 ·
Thanks for the responses, I think yet another trip back to the Docs is needed - I'm practically a permanent fixture there these days, think he's getting sick of the sight of me!!  ;)
 

·
Premium Member
Joined
·
212 Posts
Hiya Claribell!

I too suffer from PCO&PCOS (can be slightly different). I've always suspected something was wrong, but have only been officially diagnosed in the last year. When it was first confirmed I felt totally at a loss, and very, very worried and confused. However, I've read lots of books - and info on here! - and have found that being well-informed really helps. There are lots of books that relate to PCOS, the one by Collette Harris is good. Toni Welcher has written a good one called 'Taking Charge of Your Fertility'. I got mine from the website Amazon....

Anyhow, please be assured that once you understand the whole PCOS/PCO thing a bit more, things may well become easier for you. My advice would be to read up about it as much as you can. I have found that my GP, although caring, is very very badly informed about PCOS - I know more than he does!!! Just keep in mind that GPs aren't always up to date with things like this - doing your own research is really useful.

However, in saying all of this, don't believe everthing you read, try and stay positive and don't give up hope! I believe that there are plenty of things we can do to alleviate our PCOS symptoms and control the syndrome naturally.

I am supplementing with every Vitamin under the sun, and am trying herbs and accupuncture....

Above all, please try not to get too stressed (like I do!) and feel free to ask any questions,

Best of luck
Kate x
 

·
Registered
Joined
·
141 Posts
Hi Claribell!

Remember you are not alone!  I have PCOS - all the symptoms.  The works!  I am sticking to low carb, high protein and tying to cut down on fat.  I am on Metformin but my cycles are still long and ovulation looks doubtful.

I have my down days and then better days.  At the end of the day we can't change our bodies and I am thankful that more people are finally starting to talk about PCOS.  Doctors are general practitioners so they can't be experts in everything.  The best thing to do is to get referred to a specialist at your hospital and to ask everything at an appointment.  Prepare a list beforehand.  They will probably want you to keep a record of your menstrual cycle and it might be a good idea to get your doctor to run a blood test to establish what your hormones are doing so the specialist can have a more informed picture.

Try the internet, read the links on this site, get hold of a bok from Amazon and then once informed, please embrace life itself and try not to worry to much about PCOS.  It's a bummer but it is not a killer and if you take steps now, you can prevent some of the symptoms from causing more problems later on in life!

Keep your chin up.  Love,

Elaine R xx
 

·
Registered
Joined
·
86 Posts
Hi guys

I've been diagnosed with PCOS too.  I've noticed that my symptoms get worse when I am run down, tired and stressed out.  So the tips some posters have given about relaxation techniques must work!  I'm also following the low gi diet, as recommended by my consultant, together with metformin.  She has also told me to increase my activity levels, and to make sure I walk for 20 minutes a day and do 30 minutes of cardio work 3 times a week.  She tells me that this will help me lose weight, and with that, my symptoms will decrease too.  Sounds easy huh?  Well, I'm so tired at the moment I can't face the exercise, but I'm trying!  A friend of mine has PCOS and did all of these things, apart from the metformin, as she took agnus castus and now she is very pregnant.  Oh, and Posh Spice has PCOS too.....
 

·
Registered
Joined
·
5 Posts
Discussion Starter · #8 ·
I know what you mean about the low energy levels, sometimes you just can't face being active after a full day at work, and unfortunately my job doesn't help with stress levels!!

I mentioned to my Doctor a year or so after I was diagnosed about taking Metformin and he said that they don't treat PCOS with that, although that was a couple of years ago and things have moved on since then.... 

DOES Posh Spice have PCOS?  She certainly doesn't have a weight problem (well, not excess weight  ;), spots or excess hair, and she managed to conceive twice quite quickly...
 

·
Registered
Joined
·
54 Posts
Hi Claribell,
I just wanted to echo what everyone is saying here.  Knowledge is very empowering and once you find out a bit more yourself, you will feel better.  It sounds like you are doing the right thing.  I have PCOS with irregular and quite long cycles (max 48 days).  I have really stepped up the exercise and gradually the weight is coming off or at lease I can stay on a level.  I find I can't lose the weight without exercising.

Also, this whole thing can make you quite depressed and exercise is often talked about as being good for you when you are down.  I've been running and it definitely makes me feel better.  I also noticed that my cycles got shorter when I was exercsing a lot.  My con told me I should have at least three sessions per week of cardio-vascular exercise.

If you are not trying to conceive at the moment, have you thought about going on the pill?  Obviously, talk it through with your doc as I don't know whether it is the best thing but I didn't have the symptoms until I came off the pill, which is when I also piled on the weight around my middle.

Good luck with it all.

R
x
 

·
Registered
Joined
·
5 Posts
Discussion Starter · #10 ·
I found that my problems started when I went on the pill - that's when my weight piled on (all 5 stone of it), so following the advice of my GP I came off it and have since had hormone injections to 'stop everything working' so that once they wore off my cycle would come back naturally - which it hasn't, so I've had to have more hormones to kickstart that back up, which hasn't really worked.

Over the last few years since being diagnosed I have read the books and searched for info on the net but when I've mentioned various things to my GP/consultant they seem to dismiss them...  I definitely need to increase how much exercise I do (which isn't a lot admittedly - but I have 2 jobs and find there aren't enough hours in the day/days in the week!!)
 

·
Registered
Joined
·
86 Posts
Posh Spice said she had PCOS on Parkinson....so it must be true!

She does have quite bad skin in some pictures....
 

·
Premium Member
Joined
·
14,698 Posts
hi everyone

i too have pcos ! posh might only have pco which is actually different than pcos ,  but who knows?
I too like you guys have alot of up and down days but thankfully i have a good gp when it comes to my pcos
I am on quite a high dose of metformin and have found that it really helps with my weight and periods. and several women on ff are also on it and  it seems to help them.
If you gp wont prescribe then go back and asked to be refered to the endocrineologist at your hospital , because with pcos thats where you should be being refered to, sometimes gp's wont listen so a bit of badgering is what it takes!
I do hope some of you can get sorted out soon, i also had my thyroid checked last yr and that seemed to be on the low side too so am now on thyroxine for that, not sure if proven link with pcos but worth finding out if you can get tested.
It took me 2.5 yrs and 6.5 stones of extra weight before i even got a blood test for pcos so please push for all the help you can get ,
I help run a east anglian pcos support group and find it really helps to talk to others in same situation especially when ttc

Hope this has helped
take care
suzie aka olive x

 

·
Registered
Joined
·
5 Posts
Discussion Starter · #13 ·
YEEEESSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS!!!!!!

Yesterday I finally managed to persuade my GP to prescribe Metformin.  Started taking it this morning (on 2 x 500mg daily) and am waiting for the side effects!!  I'm really hoping that this will help the weight drop off - have a LOT to lose!  I'm also going to try to start a low-carb diet as a lot of you seem to recommend that too.

Keeping my fingers crossed ;-)

Claribell xx
 

·
Premium Member
Joined
·
7,184 Posts
Hi Claribell

Well done on getting the metformin!  ;D  Please keep us posted on how it is all going.  I am very interested to see if it works and how quickly you notice the effects.  This is going to be my next step with my GP.  I mentioned it before and she said that they did not prescribe it for PCOS so I am gathering evidence to get more tests done.

Good luck

Fluffs xx
 

·
Registered
Joined
·
391 Posts
Morning folks thought I would jump in. 

A couple of years ago I discussed metformin with my Prof who said 'lets wait and see'.  During a break from IVF/ICSI this year I saw him as the PCOS was getting me down, had four months of breast pain and couldn't manage an AF, did I need some relief!  Prof was happy the evidence was more mature, did more tests in particular an insulin to glucose ratio.  Traditionally my blood sugars been low and the insulin the top end of normal.  The insulin to glucose ratio came back as way over the normal limits, hence should be a good responder to metformin. 

Unfortunately my GP still wouldn't prescribe it was it's not yet licensed for use in PCOS despite the research evidence.  The Prof had to do a letter to my GP accepting responsibility etc.  I'm on three x 500mg a day, yes am producing enough wind to fuel a combine harvester but it's a very small price to pay for how FANTASTIC I feel.  Honest I cannot believe how differently I feel, am so thrilled. 

Olive you mentioned you were on high dose, do you mind saying what? 

I would echo earlier advice that if the GPs being hesitant insist on a referral to the hospital to see either a special interest gynae/fertility chap or an endocrinologist.

Have a good day

Lolly XXX
 

·
Registered
Joined
·
284 Posts
Hi Everyone,
Nearly the weekend...hurrah as its been a long week!

You all seem so knowledgable that I hope I have come to the right place for some help.
Let me tell you a story... My DH and I have been ttc for nearly 2 years now and since ealier this year sought help and had numerous tests. Everything seemed OK for us both biut still no bun in the oven.

Anyway as we are no spring chickens we have moved on to look at private treatment at a CRM. We went for our initial consultation today and one of the things they did was a Transvag scan. This showed I have multiple cysts in my ovaries : about 8 in one and the other less clear. This came as a shock as the gynaecologist told me I did not have PCOS as FSH and LH levels are both normal (5 or 6), no acne(not even as a teenager), ovulation every month (according to LH test kits). However my cycles have always been long and irregular(30 to 39 days) plus I have always struggled with my weight (BMI of 30). When I read up I also see other subler symptoms (chronic fatigue which I had a few years ago, father has type II diabetes).

Anyway what I don't understand is if I ovulate does it matter. Can it be stopping us getting pregnant.

Also I get terrible backache mid-cycle and cravings for sugar. Could this nbe linked to it?

I am a bit confued having been categorically told that was not a problem.

Please help!!!

Sorry for the long post, its been a strange day!

Hi and good luck to all!
MeganXXX
 

·
Premium Member
Joined
·
14,698 Posts
hi

Lolly i am on 4 x 500g a day which is ok now but took some getting used to !
Megan several women with pcos do crave sugars and i am one of them so maybe it could be a link but not sure if a proven one, if you are ovulating then thats great and as you say i dont see why if you are ovulating then there would be anything else connected with your pcos stopping you ttc all i can suggest is having a word with your gp to see what they say
Claribell thats fab about getting the metformin and good luck with it and hope side effects havent been to bad for you

hope you are all well
suzie aka olive x
 
1 - 17 of 17 Posts
Top