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Discussion Starter · #1 ·
Hi,

I have just been to Dr Hassan *******'s clinic on Harley Street today and found out that I have elevated NK Cells (191) and will start the heparin and the steriods. Do any one know what the steriods costs?
And have anyone had any luck with his treatment. I am swedish but live in London since quite a long time and I am doing my third IVF treatment in September. I became pregnant with chlomed but had a miscarriage at 12 weeks and since then can't get pregnant. My last hope is this with the steroids etc.

I am new to this site and I think it is great.

If anyone knows, please let me know

Anna
 

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Hi Anna - I am at the ARGC clinic in London and have also been diagnosed with high natural killer cell activity. I am being treated with steriods, aspirin, heparin and IVIG.
The steriods are quite cheap - I think about £10 for 3 weeks worth but the heparin is quite expensive - £200+ for 3 weeks worth.
You should only need to start taking them after egg collection up to your 12th week though (i think - not 100% sure on this though?!)
I got a positive result yesterday and am sure the drug regime i am on contributed to this success!
Good luck with your treatment!

nicxx
 

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Discussion Starter · #3 ·
Hi Nicxx,

Million tks for you advice. And good luck. And I am so happy that I have found this site.

Anna
 

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Hi Anna,

So sorry to hear about the miscarriage.

I saw Dr Beer at the ARGC and Dr ******* in Harley St. The dx was the same - high NK cells.

Dr ******* prescribed steroids (which only cost about £10) plus Clexane - a heparin (very expensive but the prices varies between different chemists - about £60 per week).

Dr Beer prescribes IVIG (over £1000 per dose) and baby asprin and folic acid.

Even with all these drugs my last cycle - a FET failed. My immune system still mounted a response and this was evident by the sore throat, glands etc on the first week of the 2ww. Dr Beer says that this caused implantation failure again but where we go from here (and if we go anywhere) I am not sure...

For a small informal poll of immune treatment success and failures see this link.

http://www.fertilityfriends.co.uk/*********/index.php?board=38;action=display;threadid=9273

Wishing you all the very best!

With love from,
 

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Discussion Starter · #5 ·
Hi Flopsy,

Tks for your reply, what is FET? I am quite new in this so appreciate your patience.

Anna
 

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Hi Anna,

FET = Frozen Embryo Transfer.

On my previous 2 cycles we were lucky enough to have enough embryos to freeze.

With warmest regards,
 

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I have recently learned I have killer cell activity. Initially I was pleased as I had read the article in the Sunday Times about a woman with NKC activity who was treated and got pregnant very quickly after numerous miscarriages. I am now not so sure the situation is quite so black and white as I have discovered (from this website) that many many women seem to have this blood disorder and many have not found their fertility treatment outcomes were much better after following a treatment programme. I don't know if I have the emotional stamina to go through any further treatment unless the odds seem significantly improved. I am now over 40 and feel my odds are very low anyway.

Is there anyone reading this who knows of women who have had the NK test and found their levels normal? Does anyone know statistically how common it is for people with unexplained sub-fertility to have this problem? I am just wondering if this is a common tendency that isn't necessarily that decisive.

Best of luck to you all and thanks for your postings.

xxxxxx ^angel^


 

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Discussion Starter · #8 ·
Hi Enid,

You are absolutly right. How do we know that this treatment does anything at all to us as there is not enough research on this matter and of course it looks like all of us have high NK cells which is strange. I don't think that this is the miracle cure but at least I can rest my mind that I have tried. I think as well that you have to be aware of that and not put to much hope on this.

I wish that you don't give up yet because as long as you try you have a chance.

I am also sick and tired to hear that people say that they have a feeling that you will get pregnant this time. Most of the people who say this have already 1 or more kids so how do they know what we go through.

Tks anyway for you reply

Anna
 

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Dear Anna,

Thanks for your posting. I have now heard that there have been women who have been told they don't have NK activity, which is a relief.

Yes it is such a hard process. I find that most of my friends have little insight into how painful it is and have little compassion. Like everyone else reading this, I've been trying for years and have seen so many specialists etc. tried so many treatments. It's taken over my life.

I feel I am nearing the end of my journey, largely because of my age and my rising hormone levels. And also emotionally I don't feel I have much more stamina.

I feel very isolated over it, so it's great to have this website to communicate with other people in the same position.

I send you and everyone else reading this love and compassion and hope you have some good fortune in your treatment.

Enidxxxxxxxxxx
 

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Enid

You said it all! This site has already changed my life, and I am not being too dramatic.

So many feelings and emotions I have suffered quietly without discussion in my life, as no-one knew or would listen without saying something rubbish like 'well it will be worth it in the end'...which just makes you feel slapped for being 'silly' or over-emotional. Of course, it will be worth it if it works - but for most of us it just hasn't worked yet and some of us have been at it for what feels like a 100 years of crawling through treacle.

Such hard work, physically and emotionally. And the clock ticks on relentlessly. Other people you know are on child one...then two...then three...without a hitch.

Everyone on this site knows how we feel and that common understanding has opened the flood gates of emotions for me. I hear my own upset through other people's words and somehow it makes me feel incredibly supported in a way I never did before.

Thanks to everyone for the candid way we all talk and respond in this forum. It means a huge amount.

Good luck to everyone too. Fingers crossed for us all.

Kate

xx
 
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