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Discussion Starter · #1 ·
Morning all!

I'm getting ahead of myself here, but we have our first appt at Esperance next week on the NHS. I think we're entitled to 3 IUI and 1 IVF. I don't know what they're going to recommend yet, but do you know if drugs are included if you're a NHS patient?

If not can your GP prescribe them? I've seen lots of other threads about where to buy cheap(er) drugs but wasn't sure if that was just when you go private? They seem to cost a fortune.

Thanks for your help

A very-excited-Fizzgig  xxx :)
 

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I would think that they would be included in a nhs funded cycle as we asked about funding the drugs for private Ivf and were told that they couldn't mix Private IVF with NHS funded drugs. So you shoud be ok but why not give the PCT a quick call they will be able to tell you, your gp should have a contact number for them.

Hayley x
 

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My drugs were included in my NHS freebie.  The nurses at the Esperance will just give you a pack of drugs to take home with you so you don't even have to worry about ordering them yourself.  They might not give you all the drugs at once, but they will make sure you have exactly what you need when you need it.

Good luck!

Jenny
 

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Hi, I had my treatment at eastbourne, my nhs cycle the drugs were all included although I had to pick them up from Worthing Hospital and pay normal prescription charges that was in 2003.

good luck

xx
 

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Hiya,
Even though I'm not allowed to take my drugs till Sept (boo!) they just give you an NHS prescription and you just pay normal charges (eg £7 a type)
Louise
 

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I have just picked my drugs up for NHS cycle and i had to pay normal prescription price, come to about £35 as 5 different drugs to take!!, much better than last time that was private and cost me £3500  :eek:

good luck

Julia
xxxx
 

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Discussion Starter · #7 ·
Thanks everyone for the advice....

I started my IUI on tuesday and they just gave me 3 puregon vials with no prescription or anything! Maybe they will when it gets to the good stuff ;)

How sad am I though? I was super-excited because they gave me all my needles and syringes in a free washbag-type thingy. And I got my own little sharps bin! Wahey!! We have the trauma of infertility treatment ahead of us, and I'm just delighted that I got free stuff ;D

good luck everyone

fizz xxx
 

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Hi fizzgig, 

              i just have a quick question for you, it looks like me and dp are going to be referd to esperance for nhs treatment icsi by the looks of it.
         
              can i just ask how long you had to wait between being refered and your first appointment?

              wishing you all the best for your treatment  ^hugme^
                     
                        Mandy
 

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Discussion Starter · #9 ·
Hi Mandy

Our referral came through pretty quickly. We had to be referred by our GP to the local fertility specialist GP, but once she'd filled out the necessary forms for the PCT, it only took about 6 weeks from then to actual appt. The esperance told us they don't really have a waiting list. Not sure if East Sussex is different in how it refers, but the actual hospital is pretty quick off the mark!

Hope you don't have to wait too long. I've only been there once but they all seem very nice, and as some of the other girls on this board told me, they're getting pretty good results at the mo so a good place to have your NHS freebie!

Let us know how you get on  :)

love fizz xxx
 

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Hi,

Hope you don't mind me gatecrashing your chat. I've not been on here properly for ages but still pop on from time to time to see what's happening. I used to post on Lister egg share chat.

I hope you don't mind me asking but which areas are your PCTs? It's just me and Dp have been told we can have no treatment on NHS as it's m.f and Worthing won't fund this. We didn't even get any blood tests done on NHS on our first go as they wouldn't fund these either. Neither of us has any children and Dp has very, very low sperm count and poor morphology etc. We decided to egg share partly for costs and partly to help out someone else going through this. Unfortunately our little beanie stopped growing and we are having to take over a year out to try to save some money for a totally private go.

Sorry for the babble and life story! Just be interested to know which areas are giving a free cycle and to see if there might be someway we could get one. I know money is so tight with the NHS I just find it so unfair we can't get anything.

Lots of luck ladies with your tx.

Thanks!

cao
 

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cao -  ^hugme^ ^hugme^ ^hugme^ so sorry for what you have been through, i had a mmc too last summer and found it so hard to deal with, i had to literally force myself to do a FET in January but really i was not emotionaaly ready. I am now waiting for AF so i can start a fresh cycle again. ^reiki^ ^reiki^

I am from the Wirral and we get 3 NHS goes, i only get 2 now cos i paid private for 1st go!!
That is so unfair you don't get any, doesn't sound right to me  ^bigbad^ ^bigbad^

good luck

Julia
xxxx
 

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Discussion Starter · #12 ·
Hi Cao  :)

Sorry you have been having such a rough ride....I will tell you all I know! We live near Worthing and are in the West Sussex PCT. I have a copy of their 2005 guidelines in front of me (that's the kind of nerd-girl I am  ;D). Can't find a more current one on the internet.

They will offer tx to couples with mild male factor: for IUI they say sperm count must be>10 million/ml and motility>30%. For IVF they say count must be greater than 15 million/ml and motility>40%.  ICSI is reserved for IVF cases where the man produces a poor sample on the day. The subfertility must not be due to a previous sterilisation.

The woman must be 23-39 at time of treatment and neither partner must have a previous child. You are not eligible if you have had one previous NHS IVF, or 3 previous private IVF/ICSI cycles.

We were referred by our local GP (useless) but she did do all my hormones (LH,FSH,oestrodiol,testosterone, Day21 progesterone and thyroid function) and arranged DH SA  - all free, done at Worthing Hospital, it sounds very harsh that you couldn't get that done. She then referred us to a lovely GP called Dr Nelson who is what they call the "Local Enhanced Service" for worthing, ie a GP with a special interest in Fertility. She is the gateway to the proper referral, which in worthing, is to the Esperance in Eastbourne.

Phew, sorry that was a bit of a lecture! Hard to shut me up once I've started.... :p

I guess it depends how severe your MF is? You sound like you've got a lot more experience than me, but SA do seem to vary wildly and it would be a real shame if you're excluded because of that. If you sound like you might be eligible from the above, I wonder if it would be worth seeing your GP again and asking for a referral to Dr Sarah Nelson in the first instance?

Happy to answer any more questions, and best of luck   ^hugme^ ^hugme^ ^hugme^

fizz xxx
 

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Fizz and Julia,

Thank you so much for your quick replies. It's making me realise how much I miss being on FF, everyone is so lovely and supportive. Thank you.

Julia- It is such a postcode lottery isn't it. I can't believe you have to forgo an nhs go too if you've had a private one, what's the sense in that?! So sorry to hear about your mmc. Is so hard to get over isn't it, you want something so badly, it happens and then it gets taken away from you. I know in a way it's probably best to wait awhile, like you said you felt the fet was just too soon. I hope your next cycle is a successful one, lots of luck.

Fizz-Wow, I am very impressed! Thank you so much for all of the information. I tried looking for the PCT guidelines on the internet when we first looked into treatement but I couldn't seem to find anything useful. I did email somone linked to PCT (cant remember who now) but she basically said she couldn't do anything so whoever it was I emailed it obviuosly wasn't anyone who delt with that sort of thing! DP's sperm count is less than 15 million (he's into the single figure millions I'm sure) so doesn't look like we can get any help. Seems a bit daft that you can actually be too severe! Like you say though it definatley would be worth us seeing GP again and asking again especially as he told us that there was basically no funding for any mf infertility which obviously is incorrect. Going to give it some more time though as however much I desperately want a baby I still don't think I'm ready to give it another go just yet. Thank you so much again for all that information. Sending you lots and lots of luck for your tx.

cao
 

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^hello^
fizz Thanks for your reply I'm just way to impaitiant ;D just waiting for the urologist to reffer us at the moment hopefully once he gets on with it we won't have to long a wait.

cao I'm in East Sussex and DP has severe MF so we need TESE and ICSI which we have been told that we are entitled to 1 free go. before we knew how severe DP MF was i was told by my GP that we would be entitled up to 3 iui's and 1 ivf on the NHS as long as neither of us had children and my BMI was under 30. I don't know how much difference there is between East and west Sussex but if i were you i would definetly look into it further to make sure you get what you are entitled to ^goodluck^

Mandy
 

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Mandy- Thank you for the reply. It is very interesting, I just took what the dr said and although was pretty annoyed about it assumed he must be right! I have emailed someone at the PCT to ask for the guidlines about entitlement to funding as I've googled it but can't find it anywhere! I wanted a copy to have a good look at and also to take along with me when we go for an appointment (when I feel abit more ready to have another go.) Good luck with being reffered hope things get moving for you very soon.

Fizz- Would you happen to know where I could get a copy of the guidleines from? I've been googling but not really come up with anything. Thank you. How's the IUI going?

cao
 

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Discussion Starter · #16 ·
Hi Cao - my GP gave me the guidelines amongst the initial bumf when we first went to see her - not sure if she was meant to! I have also searched without success on the internet for them. I can easily send you a copy, PM me if you like?

Very interesting what Mandy says - I think you would have a very valid reason to challenge if there is such difference between east and west sussex, particularly when the treatment is done at the same hospital. Remember that the PCT is out to save money, and if it can brush you under the carpet, it will.

IUI going fine thanks, had scan today and told to trigger tonight and then baste on wednesday. Wish me luck!!  :)

take care

fizz xxx
 

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Hi

Just popped in quickly & about question re drugs. Not sure whether it's been mentioned before but when we had our NHS go at Bart's, we bought an NHS prescription card (prescription prepayment certificate) which lasts for about 3 months (you get a choice of 3 or 12) & it costs £27.85. It covered all my drugs whereas you'd be paying £7 per drugs, ie for d/r, stims etc.

Here is the link:

http://www.dh.gov.uk/en/Healthcare/Medicinespharmacyandindustry/Prescriptions/NHScosts/DH_4049383

Sorry if it's already been mentioned & I've missed it!

Good luck with everyone's tx. ^hugme^

Ronnie
xx
 
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