Soozzee
My 1st DE ended in a chemical pregnancy, beta was 22 at 12dp3dt and then dropped to 7 later, Af came. So I checked out my APAs at St. Marys but I feel they only do "superficial" testing . I was not tested for NK cells. I was prescribed clexane and aspirin before transfer. This time I had very good quality 3 blastocysts transferred, but the pregnancy ended in another miscarriage! I was distraught until I read up about NKcells and auto immune problems because Ive had jointpains for years but never got it investigated. Well I saw Dr Beer after my second DE miscarriage with the support of Dr Velasco(he wrote me a referral because he was also puzzled). Dr Beer did every single test(expensive but worth it). They found I had very high CD19cells, they were at 21%!. Steroids alone would not be effective so I had IVIG 7 days before the transfer of yet again 3 blastocysts and just after a positive hpt. I had 2 more infuisions of ivig until my 15th week. In addition I also started aspirin and clexane 20mg at 7 days before the transfer until 28weeks.
St Marys found only borderline anticardiolipinantibodies, every other test they did was negative. I should have had all the extensive testing done after my 1st DE miscarriage but at the time I did not want to spend my money on test after test but it cost me dearly in the end. Im just glad the 3rd cycle worked.
Are you at Madrid? They were very good to me after my second m/c because I think they felt guilty cos no one there could give me answers.
I got a 5% discount with my 3rd DE (I queried my bill because the price went up) I emailed consultamadrid@ivi.es with my bill, they said it was correct but they would give me 5% discount as its my 3rd attempt with them. That sure stopped me moaning about money!
I think its worth testing extensively although its pricey but youll get there in the end if you do things properly.
Danni
Danni - thanks for the information. I've read a lot about IVIG but I think you're one o fthe first people I know who have been successful - which is great to know. I agree about the testing - it is expensive & the treatment is too, but given how much DE costs, it has to be worth it. We had our first cycle at Madrid - found them to be very good - but have transferred to Barcelona as they're having some building work done at Madrid at the moment. By the time I get through all the testing, Madrid will probably be up & running again!
Daisy - nice to hear from you! Crikey - I didn't know there was an upper age limit with George! I'm 44 in April, so best get back for my consultation before then!! I know what you mean about wanting to get started... Barcelona called me a couple of weeks ago asking if I was ready to start & I could have been doing decap within a week. I really wanted to say yes, but there's no point until we've at least seen George again. I'm just hoping that we can get the timing right - don't want to end up wasting yet another month. Am I too impatient
I hope it goes well with Dr Beer - I've read a lot of good stuff about him. Let me know!
We're off to see an NHS consultant today - not expecting too much, but hoping that this will help us in the long run. We may be able to get clexane through her - which will be a huge saving - and also get onto the early pregnancy monitoring more quickly as a result. Ever the optimist!!
hi Girls
Soozee-I know for a fact there are more people successful after DE with ivig but not everyone posts-most of the posts are from people trying to conceive with their own eggs. In retrospect, I was a poor responder but good quality eggs but no implantation, sometimes I feel I should have sorted these problems out before embarking on DE but at the time I was told my eggs were the problem-my fsh was never more than 10, my response got slower with each ivf attempt but I always had 2 or more goodquality embies.Nobody tells you to test for environmental issues, so I looked for answers and found the ivfconnections board which was a godsend. Im more than happy with my daughter and couldnt love her more than any biological child of mine. Shes our princess at home. I wont go back to using my own eggs as Im now almost 38years and you cant turn the clock back.
My tnf was 26,9%(normal 3- and I might need ivig again in order to conceive. Ivig has a very low risk of transmission as its washed several times over and over before its ready but there is a risk with any bloodproducts. Unfortunately I was prepared to take the risk because I so wanted to be a mom and I was willing to do anything possible in desperation.
It might sound selfish but thats the way I feel.
Take care
Danni
Sorry I've been AWOL for a while, but life has been a bit busy, not just with the IVF but other life changing projects!
Anyway after a months delay while a donor of the correct blood group was found, we had the go ahead in early Feb to start the drug regime. Flew over to CERAM in late Feb and had the ET on the 28th. Flew to Australia early March (life changing Project!!!) and had BhCG 2 days ago. I'm pregnant!!!!!
CERAM and Ruth have been fantastic, can't believe how "easy" everything has been, had our hands held all the way and all our questions answered. Anyone thinking of CERAM....go for it if it is what you want. To cap it all we even managed to get funding from our local health authority for the actual treatment, must buy a lottery ticket whilst our luck is good.
Anyway, still a lot of hurdles to get over, but at least we are on the right road.
Good luck to anyone on the same road.
Congrats on your fantastic news! We are currently waiting for IVF with DE but due to high wait are looking at other options. Would you recommend Spain and how did you start to go about it?
Looking forward to your reply and good luck with the pregnancy!
Congratulations!! We are going out to the CERAM in the next couple of months. Ruth has found us a donor!! Hurray! I would be really grateful for any information you have, where to stay etc,
Hello everyone.
Sorry to jump in on this thread, but I've got a quick question.
Im awaiting a donor at IVI Barcelona, and I keep seeing mention in other people's posts of Decap. Is this decapeptyl ? What is that ? My drugs regime seems to be different (ie the contraceptive pill first, and then synarel, and then Estradiol patches, and then cyclogest pessaries).
Does anyone on this thread know about this and why we are on different drugs?
Bluebellxxx
Different clinics will use slightly different drugs. I am in the process of aiming that all recipients have contraceptive Pill at CERAM, Decaptyl being a one off injection does the same job as the Synarel, just have to sniff with the latter. Some of my patients use patches though most use tablets, Progynova. Cyclogest seems to be standard everywhere!!!!
All a means to an end!!!
Deej,
We started by getting in touch with Ruth the forum moderator, she is also the Nurse at CERAM so can give you lots of info on CERAM. They also have a website www.ceram.es, the front page is in Spanish but there is a translation link. Basically that it is it, did a lot of reading on this discussion forum and just fell into it. It was not as daunting or hard as we were expecting, got all questions answered and have been guided through it all by Ruth. Should be having a scan next week as we are home for a while before moving down under permanently. Hope this helps.
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