[Martha Moo]

New list girls ​

The Endo girlies​

SarahEv Awaiting appt with endo spec in oxford

Wiggy referral to ARGC for 2nd IVF

Fidget (Debs) 1st IVF October

Eva04

Ladymoonlight (Kate) Awaiting appt at CARU

Sweden Sam IVF october

Becca Fet??

Sahara 2nd IVF Sept

Minnieme awaiting HSG

Drew FET Aug with new clinic

Jaq awaiting Egg Donor and Surrogacy

Aussiegirl 4 month pre conception course sept

TJSK Awaiting IVF

Katieposy

Aiyana awaiting return of following zoladex

Niquita

Eeyore1972 (Emily) 2nd IVF appt 19/09 (Jessops) awaiting fsh levels

Channy22 Awaiting ICSI

CathE..... Awaiting Care referral for 1st IVF

Thinkpositive (stella)

Minxy (Natasha) ttc with Clomid (2nd month)

Welcome to..........​

Becky C

 

[Martha Moo]

New home girls

Welcome to part 6 of endo chit chat

Hope that ur all having a good weekend!!

lots of here hope that u all have some

will do personals later

Emilyxx

 

[Martha Moo]

Happy Birthday Sweden Sam

Hope that you have a lovely Birthday

Emilyxx​

 

[Sarahev]

wow! Hi girls......I go away for the weekend and theere is loads of news to catch up on!!!!

Firstly Becca.......hunny I am so sorry that your cycle did not work. You are an inspiration to me as it looks as if we will be starting the IVF rollercoaster after my endo has been "attaked" by my new consultant! Your positive attitude, especially after the bad news about your pug, really helps me to put my situation into perspective and to get my brain around things. I know this is no consolation to you but thankyou for all the help you give me.

Emily, thanks for the new home! Hope you are feeeling a lot better now. you really have been through it recently but you seem to be sounding a little better so I hope that this continues and you go from strength to strength!

Hello to everyone else! The weekend is nearly over but it has been great weather and I hope you have all managed to have a good time.

I am quite excited as I am going to Paris on Friday! We are going for 5 days and are hoping to see the final stage of the Tour de France (am a bit of a loony cyclist!!) Some time off work and good weather can't be bad! As the holday season kicks off I hope that we can all get a rest from problems and really try to get some time out from the cycles of treatment.

wishing us all 

Sarah xx

 

[Martha Moo]

Hiya girls!!

Hope that u have all had a fab weekend and have enjoyed the weather

Has anyone heard from Wiggy?? anyone know how her ivf is going??

Kate how r u honey havent heard from u for a while either hope all is ok

Becca hope u had a good bit of retail therapy yesterday!!
Am counting on u to bring me up to date on BB as havent seen it since eviction i did start to watch a bit on saturday night until i went to A&E but they werent watching it there!! Mind u the night i went for my dvt they had it on but had no sound which werent a lot of good!!

I am starting my acupuncture today my first one today my appt is at 330 and also having a bladder scan done by the other physio to check its functioning ok!!

Then afterwards i am being bullied into going to see the gp by dh, hes a bit concerned with how i have been the last week.

As u may recall i had a uti i had the anti bs and then the pains came back, bladder was playing up back pain ovary pain pain going down legs

Havent been up to very much just resting a lot of the time absolutely no energy which is why i havent been coming online and posting i occasionaly came and read postings buthad no energy to reply.

DH really cheered me up checking out care and is more into it whereas before he was kind of so laid back which i couldnt understand but now he wont shut up about it!!

Yesterday i wasnt able to do a whole lot i wanted to find my hair straighteners which are somewhere in a box under the bed!! but i had such a horrendous headache i couldnt move from sofa, couldnt eat, so had a bath and now my hair has gone really wavy as i just climbed into bed.

So later i am going to see the dr, i should have gone last week really but couldnt muster the energy and other than that didnt want to go back again so soon, but know i need to yesterday i spent about an hour removing dried discharge from belly button (tmi)

Well best sign off for now feeling hungry and Dh will be up soon!!

Emilyxx

 

[Fidget]

Ladies your posts made me realise how 'long' I have been off the boards, sorry girls will try to be more proactive rather than juts reading and running......... my only excuse is i have a splint on my right wrist because after 2 years they have finally diagnosed that I have tendinitis (sp) so I have to wear this retched thing for 6 weeks........ 3 weeks in and its driving me nuts...........

Becca hun  so sorry to hear your news sweetie  . Am glad that over the weekend you have started to feel a little more positive although knowing you, its probably just a brave front  .  It will happen for us one day I am positive even after the horrible week I have had (more about that later).......... as for your darling pug, such sad news, but if its anything like the Human Ankylosin spondulitos (sp) which runs in my family, if you keep him mobile but don't overdo it, he should keep you happy for a while yet  . as far as i am aware exercise to stop the joints fusing is the best treatment..................

Emily sweetie, my not posting has nothing to do with you not being around hun but more to do with not being able to type very well, Bless ya............. I hope you are feeling a little better sweetie and keeping on top o your pain and those silly doctors  .

Drew Hun, Glad to see your still keeping positive and getting back into buying lovely shoes and sexy pants  after all what is a girl all about if not shopping  .

Well my news............. I was supposed to be going for Hy Cosy this coming fri, but true as fish swim the b*itch  didn't arrive till 2 days late so have to move it to the next week meaning i have to take a day off work (Fri was a normal day off for me) so costing me more now i lose a days pay or take it as holiday  . DP goes for his  test on Thursday so that should be interesting  . I haven't had any one around me PG for ages and I get two in the same week. the first one didn't bother me too  much, as its a co workers wife, but the second has floored me completely.......... its a very very good friend who is not in a stable relationship at all, is on the pill and cant look after herself let alone a baby  I am torn between feelings of jealousy and feeling sorry for her  . in the end i will get over my jealousy and help her through all this mess, but my god the words form my DP's mouth when i told him says it all 'why couldn't that be us' 

Sorry for the long post girls.......... i don't know i don't write for ages then write an essay

I hope everyone else is doing ok??

Sam Happy Birthday hunni 

Lots of love and hugs always

Debs
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

 

[Martha Moo]

Hiya

Just a quick posting to Debs

Tendonitis ooooh ouch i did have that a while ago and wasnt nice

them splints are a right pain in the backside arent they!!

Sorry to hear that ur HyCosy has been put back the wretched !!

Hope dp's test goes ok my dh has his next month

I have a bit of a full week this week, today acupuncture/bladder scan and physio

tomorrow is a free day

Wednesday i am going to see a pain specialist which should be fun because a friend of mine went last week and he told her new research out shows that Endo doesnt cause pain so should be interesting!!

Thursday i am off to sheffield to have a specialised bone scan

Still awaiting my to show up always the way when u want them they stay away and when dont they arrive with a vengence!!

Anyway i am off for a while so catch u all later

Emilyxx

 

[SwedenSam]

Hiya ladies

Turned 31 yesterday....puh....had a wonderfull birthday . My DH gave me with a beautiful ring and wonderfull red roses!

Becca: sorry to hear about your negative result It is not easy recovering after the  , but you are stronger than U now. 

Emily: Thanks for the birthday greetings! Hope U are feeling better! Chin up!

Debs: Thanks for the birthday greetings! Thinking of U on coming app and tests!

Aussiegirl: Good look to your detox-diet! Hang in there! So far I have about 95 % stuck to my diet, had cheated on special occassion, like birthdays.

A lot of reading to catch up on, you ladies have been busy this past week! Hiya to all U. So glad to have all the support when needed!

So...whats up in my life? Havent had a week with yucky brown discharge before AF (sorry for the details), but it appeared yesterday morning (on my birthday) so AF is due soon! Hoping for a 30-31 day cycle this month but who knows. Due to start on clomid this month.....should I,... should I not start with Clomid....a part of me says ah what the hell, then a part of me is frightened of the endo growing to enormous cyst. My life has been ok at the moment. What shall I do? Help me! Need some advise!
Have had a go on Clomid 2 years ago, negativ cycles. It can work.... So long back...doesnt it regulate the AF? Going to buy LH-sticks so the  is on duty soon. Have to have loads of .
If 3 negative Clomid cycle, IVF oct/nov 2005!

Take care! Warm hugs and cuddles to all of U 
Lots of Love
Samantha (SwedenSam)

 

[minnie-me]

hello girls,

sorry to hear your news becca, but glad you are feeling positive.

i had my HSG on friday. right tube clear, left tube blocked. no more appts until september.
not sure what to do now as obviously they wont do the IUI anymore because she said providing both tubes were clear they would do it.
whats the next step??
im going to go on holiday early Aug and eat, drink and relax for 2 weeks.
im not going to stop ttc and i will check my dates but hey, if i get totally sloshed for a couple of nights, im not beating myself up anymore.
you get a bit sick of it all at times dont you.
so i'll wait for september and see what happens.

any ideas will be gratefully received.

hello to all you endo girlies. i hope you are all ok and enjoying this beautiful weather.
love minnie.

 

[Reb]

Hi girls

Sarah, that was soooo nice what you said, thank you, it means a lot.  You keep that positive thought about your cons zapping your evil endo.  You are going to have such a lovely time in Paris and will no doubt be in good shape for ivf!!  I just cant wait for you to start tx.

Em, yep, i've been spending!  I'm suer you will find the ac relaxing, i really enjoyed it!!  Are you haveing a bone scan for your leg pains?  I get these before and during af.  They completely went whilst on Zoladex so I'm convinced its due to endo, though many docs dont seem to think so.  You did nt miss much on BB.  Mak was crying in the DR after Vanessa left, I think its hit her that she may be unpopular with the public.  Anthony had a 'date' with BB and got drunk in the DR.  I hear that Science has had a row about food with Craig and Orlaigh yesterday...not much else happening....sorry girls for going on about BB....must get back to discussing bowels, lol.

Debs, oooo...you look after yourself.  Hope you are getting out of washing up etc.  You must be so frustrated  about af delaying your Hy Cosy, you seem to be handling it so calmly.  I hope dp sa goes ok.  Thanks sooo much for what you said about my pug and the advice.  I have been taking him for 5 mins a day.  His leg is stall a bit wobbly but he is managing just fine and seems better in himself now he is on pain killers.

Sam, happy belated birthday!!!!  It sounds like you had a good one!!!  I dont know anything about Clomid so I cant help you with that hun.  Take care.

Minnie, sorry to hear about you not going being able to go for IUI, you must be really disappointed.  Enjoy your hols hun, drink and be merry, I think sometimes we all need to 'forget' about being good etc.

I'm back at work with my friends (only 2 know about tx) and it's not too bad.  Still feel sensitive (I think mainly about my dog but I'm not sure!!!) and feel I could cry at any mo.  I dont think it's just the IF issue that's making me feel like this I think its just that I want something GOOD to happen as I'm tired of always worrying about something!!!  I have nt done any ironing or cleaning, just a bit of washing.  You also find out who care about you who does nt when going through tx.  I'm hoping to get back into the swing of things soon (which I'm confident I will).  I truly believe that only dp and you girls understand how I feel. 

Feel better now for getting that off my chest.

Love and luck

Becca
x

 

[Frankie B]

Just a quick hello  Sweden Sam, Becca well done for putting on a brave face  debs don't be hard on yourself for feeling  I do everytime I find out someone is pg, I always think it's not fair  Eeyore I've taken your advice and had a few more days, the doc signed me off till the 26 July for a reason right?  Just feel so guilty about taking time off work I always feel like I should be doing something.  I'm not supprised your doc told you to have that long off if you had a laprotamy I had the other lap but had three key holes do you think I'd be going back early if I go this week sometime, I don't want to do anything to harm myself but don't want to be sitting here if I'm ok to go back.    from anyone who has had the same as me dh thinks i'm silly and should stay off till 26/7 could you let me know how long you all had off please.

anyway I will stop worrying now, see when I have time on my hands I do nothing but worry about silly things, maybe I would be better off going back!!!

xx

 

[☼♥ Minxy ♥☼ ©]

Hi FrankieB

I've had 4 ops for endo (laser, diathermy & excision) - all had 3 incisions - and I was signed off for a minimum of 2 weeks (a couple of them I had longer off work).

Try not to rush back to work - your health is more important. It may only look like small incisions from the outside but it is all the poking, prodding & lasering that's gone on inside that needs time to heal properly.
If your GP has signed you off for until next Monday then personally, from experience, I would wait to return to work until then.

Take it easy, rest up & allow your body to heal & recover in its own time....without trying to scare you, if you try to do too much you may increase your chances of adhesions.

Good luck & take care
Natasha

 

[thinkpositive]

Hi gilrs,  I need your help!!

These days I had moderate pain mostly during the days of ovulation

I went to my doctor today and he found alot of fluid in the pouch of Douglas..I am going today for blood exams to see my WBC and decide afterwards if I will take meds..
Did anyone had same experience

I am feeling sooo sad...

He also told me to do an exam CA125..its a marker for endo..I didnt know that..
Have u any idea

Stella

 

[Martha Moo]

Hiya all

Stella hunny, I am sorry to read that u r having probs sweetie with the POD

I had a CA125 blood test back in May, my gynae requested it, and my gp informed me that its a standard blood test mainly given to those who have history of cysts or have cysts but u r right it can also be a marker for endo also.

Hope this helps a little bit (probably not!!)

Natasha nice to see u dropping by hope that the clomid brings u ur dream this month

Frankie, i would take the extra week honey, if ur gp didnt want u to have the time off and think u need it then he wouldnt have signed for it!!

I had a mini laparotomy my scar isnt as big as a full laparotomy but i have other keyhole incisions as well, i am due back monday, dh is rather keen for me to be back monday but i am not feeling ready yet, my gp is happy to sign me off til september if need be, i still feel exhausted if i do just a bit of light housework!

Becca....... i am having the bone density scan because, Zoladex is supposed to be given for a total of 6 months in a life time due to the loss of bone density (unless taken with hrt!) i havent taken hrt because it makes me bleed so didnt bother and also i am lactose intolerant so high risk of osteoparosis, Prof Ledger from Jessops suggested that i have one done because if i need further tx for endo if bone mass is reduced its not an option.

I do get stiffness in my joints especially knee and ankles and my bones in my legs do ache as well

So see how it goes.

Well i went for acupuncture, it went ok the physio is lovely!

Have my next one a week friday am having 4 sessions and see how it goes

Anyway thats all from me

Take care girls

Emilyxx

 

[Aunty_drew]

Hi there ladies

Just want to give a little feedback to Stella's question about CA-125.  I fretted about this test because I don't think I have done it before.  But last week I checked with my doc - and realise I've done one two years ago.

Em was spot on about CA125 used to keep track with cysts.  For SOME women it can be used to detect endo activity.  But as my doc explained, CA125 is not a benchmark for endo - ie some women, like myself, has low levels of CA125 - but still have quite severe endo.  So not all women who has high CA125 has endo too.

However one thing to be cautioned of is you cannot start a fresh cycle if CA125 is high.  You need to take meds to bring the levels down before a cycle can be commenced. 

Hope this helps Stella!

Oh by the way hun, how did your doc find out about the fluids at pouch of douglas?  I have been getting dull lower back pains near my spine - esp. during ovulation time - but it is not as intense as the mind numbing pain before they took my ovary away.  My doc explained to me they are likely to be adhesions at the bowel (where the ovary used to be).  Ho hum. 

Am going to new clinic on thursday, going to old clinic tomorrow to pick up my phone book (IVF records) so I can lug it to the new clinic for advice.

Love to you all - Sam hope you had a lovely birthday!  Glad to see everyone else to be relatively upbeat - esp Bec!

I have booked Hycosy end of August - just want to double check traffic is clear on the remaining side.  Hope it doesn't hurt.  Doc said it won't - which means it is going to hurt.

Lv, Drew

 

[thinkpositive]

Hi girls,

thank u for your replies!!

Drew, I went to the clinic yesterday and I had an ultrasound, and he saw the fluid there.I will put the picture in the gallery today,to have alook..
I also read about that marker on the internet and indeed its not so reliable for endo..Anyway, this afternoon I will have the results and I will let u know how I am doing..

Love to all
Stella

 

[Frankie B]

Hi everyone,

Stella I'm sorry you are feeling  I hope your results are ok this afternoon.

Auntydrew I had a hycosy in March this procedure isn't that bad although I did have an injection to make me out of it as they were draining cysts off both ovaries.  They may give you a injection for the hycosy alone but not quite sure  anyway don't worry.

Emily Pot calling kettle black I know  but don't go back if you are not ready, I have decided to  go back to work after all I feel it's best for my sanity just spend ages looking through the bun in the oven site trying to get back that feeling I once had so long ago, too much time on my hands!!! But I promise to take it easy!!!

Natasha thanks for your wise words, I will come home if I get any pain or start to feel unwell.

Everyone else 

xxx

 

[thinkpositive]

Hi girls,

my CA 125 was 34.2 with normal values < 35. My white blood cells were ok no infection.So, I wont take meds and I will go for another u/s again during my next cycle...Lets see what happens!!

take care all
Stella

 

[Fidget]

Hi ladies,

Just a short line to Drew, I have my Hycosy a week thursday so will let you know how it was..... I am a big wimp so am dreading it, although when I had my HSG it didnt hurt and this is almost the same thing so am hoping it wont hurt 


Becca,  yes I am getting out of the washing up, the ironing etc etc  . What can you do the  is always late when you need her to be on time    its just  when I had told the admin lady that it had been early/on time for months so wouldnt be a problem and now they have to squeeze me in at 5pm in a weeks time to get it done, because its the first step towards IVF for us and lots of money for them  (ohh thats sounds b*tchy doesnt it) I hope you feeling ok sweetie and still positive 

Emily.......

It is a real pain in the  you dont realise how much you rely on your thumb until you lose the use of it  i have another 4 weeks minimum of this splint and then we wiull see if it has worked, i have suffered for over 2 years with this so I am not holding my breath that it will work!

Sam hun, I hope you make the right decision for you re the clomid and my  thoughts are with you..

Stella,

Thats good news of a sort at least, I hope you start to feel a little less sad hunni 

Frankie
Welcome  and yes take your own advice  . but seriously if you feel well enough to go back do so, but please, please take it easy 

Bless my DP admitted to me he is  about tomorrow (going to do his sa) bless him

Anyone else I have missed please forgive me  and I hope you are all ok

Love and hugs

Debs
xxxxxxxxxxxxxxxxxxxxxxxxx

 

[aussiegirl]

Hi Everyone,
Just felt i needed to contact people who i know understand as i don't know whether to cry or be happy.  Just found out that my best friend who stated trying 4 months after me and fell pregnant immediatley is pregnant again.  saw her when i was back in the uk in april and she was happy with one and wasn't wanting to try for a while so this is just a mistake. how do people have mistakes? When there are only a few days you can fall pregnant a month how does this happen (of course i know how it happens but why is it not happening for me )
Do we ever get used to hearing others good news or does it hurt each time? I've got to keep it togther tonight though as i'm out with friends who don't know about our situation- i can't even have a drink to top it all off
Sorry this is a me one but just had to tell someone
hope you are all well
Love
Andrea