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I have been living with my tubal DX since Feb 2003 when I lost my baby to ectopic pregnancy.
We have been TTCing for ever with only the one pregnancy, our angel babe.
The DX at time was profound tubal damage and hydro. The consultants, two of them argued whether it was old PID scar tissue or old Endo that had burnt itself out. They said the damage was at least 15 years old. I am now 36.
My doctor wanted to take out my tubes because of the hydro/implantation/toxicity but he has changed his minds saying the risks were too big and i could lose my ovary and end up with a colostomy bag, so i am to cycle with my hydro, to my distress.
Anyway, just looking for answers to the whole damage puzzle.
Can endo burn out? Can you stop having it? When I was much younger my cycles could be horrendous (pain etc) and I'd just like to know what you all think. Nowadays, post ectopic, my cycles are regular with mild to moderate pain.
We also got bad news on monday at our IVF appointment, we have MF issues too, low motility and low morphology, so we are feeling bashed at the moment.
Thanks
 

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Hello Greygoose

I'm so sorry to hear about your ectopic and your recent news about mf. I'm sure the fertility clinic will be able to offer some tx options for this.

My understanding of endo is, yes, it can burn out but it can leave you with adhesions which can still block your tubes. I was the same as you, having had a terrible time when I was younger with af, but by my late 20's I was fine, not a twing. I could nt believe it! I did nt even need to take mild pain killers. It was nt until I was 34 that I started to have prolonged periods ( again with no pain ) that eventually led to me being dx with endo which I was told must have been there since my early 20's.

I'm don't know what a cycle with hydro is but I hope it goes well.

Please dont get disheartened. I hope my reply does nt make you feel worse. If it is endo then at least it has burnt out and hopefully wont cause you any further problems. If it was active then I'm sure the consultant would have been able to say for sure what it was.

Take care both you and dh.

Reb
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Hi Greygoose,

only saw your message now. Can't really offer you any advice just to say I lost both my tubes due to damage from endo. Do you know why there is a risk that you could end up with a colostomy bag? Is it due to adhesions? Have you seen a gyne specialising in endo? Maybe you should seek a second opinion.

Good luck.

Sushi
 
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