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New Home Ladies ....

Good Luck ... Bels x
 

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ooo we are on a new thread!!

No real news for me, deciding to ditch ARGC and Dr Sher's views and have another monitored cycle with Mr Trew using the viagra suppositories and oestrogen patches AF should be here in . I went to acupuncture today and told him of my consults and plans, he was in agreement. He was slightly dubious of Dr Sher's claims that he could get me an embryo of my own to match that quliaty of a young DE- as he said why aren't their stats the same as DE cycles in Europe.

really hope that you are all doing ok

Lou- what have you decided to do?

Twiz how are the endocrine tests going

Hi to you all
L x

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Hey JJ1 - was wondering how you were doing. Glad to hear you are picking yourself up. Can I ask if you would now recommend argc in light of everything? You know I've been thinking of moving there next cycle. Wondering if I should do that or just go abroad or stick with Care. Can you PM me with how you order the viagra from the US? I hope with all my heart this can work out for us all.

Tizz - how you getting on?

I've been off FF for last few weeks. I go through phases like that. Especially with me not doing much but wait. Not talking about it it seems to go quicker. But I have been working my behind off and chasing from kent to London with no time for myself.

I finally finally got AF. My first since Jan. Did two HPTs in between when I foolishly thought for a moment I could have managed it naturally. Oh well.

Really takes so long to go from one cycle to another like this. Looks like I've got a longer wait until I cycle again because of DH's uni finals. I don't want to cycle again until I've done my courses of LIT. Can't get started on that until June because DH can't take time off to come to athens for the day. But that's only a month away now. But I'll have to go back a month after for another one before testing for the all clear.

My test results came back all normal. Normal ERPC test and normal sperm dna fragmentation test.

My flat sale is being delayed by my toad of a freeholder who's slow timing on the paper work. I'm risking losing the sale because of him. Not much I can do about it though.

Lou
x
 

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"ENDOMETRIAL ATROPHY"

Hi Ladies

I'm from the Land Down Under and am hoping to join your group :)-I don't have much time  at present so this will be brief.
Since tracking for IVF I've had persistantly thinner linings 7-8mm and lighter AF's and have always had a gut feeling that something wasn't quite right in that area although my FS seemed to think that this was OK.
I had a hysteroscopy last week which was clear except that the lining looked pale. A biosopy was taken which showed that I have 8% NK cells and what appears to be "endometrial atrophy"- Have any of you heard of this?
I don't know if it's a permanent thing or whether anything can be kick started. I was on Ethinyl Estradiol for 3 weeks when the sample was taken. I have also read that GNRH agonists such as Synarel may cause this and I used it for both of my stim cycles. I could have had a problem for a while as I have had 2 miscarriages(unknown causes) but then I had a PG that actually stuck but had chromosome issues.

These are such complex issues huh ::)

I'm hoping for a phone consult with an reproductive immunologist later this week who may give me some direction. I live in a regional area and only have access to 1 IVF centre that's run by 2 very overworked FS's who only cover standard stuff.

Looking forward to getting to know you all ,but hopefully not too well ,as I'm sure we all want to escape this forum sooner than later ;)

Rach :)

 

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Hi ladies,

I lost this thread for a while and now you all seem to have disappeared! :'( :'(

JJ - I'm really glad that you are able to listen to all these points of view from different doctors and then make your own mind up.  Re Dr Sher saying that you MUST have got an infection between m/c and ERPC - well I think that is rubbish!  Plenty of women have got AS simply from an ERPC/d&c.  I did have an infection though and I certainly DID know about it - very smelly green blood (who could miss that!).

Londonlou - I did a monitored cycle with the ARGC but decided not to pursue treatment with them (or anyone for that matter).  I really found them to be "the best of" but also "the worst of".  I mean I think their intense monitoring when cycling is excellent and there if you need immune treatment in London it is obviously the place to be.  But I hated the fact that I saw a different doctor each time I went there, you were never given appointment times (just had to turn up and wait your turn which could take hours) and you never had any privacy.  I felt a bit like a number.  Still if I had decided to cycle again I probably would have wanted to do it there (but they weren't keen on treating me).  I have heard though that CARE is great.  Why do you want to switch.

Rach - Hi Rach and welcome to the thread.  I hope that the other girls will be back soon to chat to you.  I'm just a hanger on here really having managed to conceive (and give birth to a daughter) on a lining of 5-6mm.  My lining was damaged by an infection/d&c a few years ago.  Have you ever had an op or anything where your lining could have been damaged?

Sam



 

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Ladies wondered how you were all doing?

I am awiting AF (typically won't show up!!) to start yet another monitored cycle with viagra suppositories and HRT patches to see what  happens and if I can explore DE's I have an appt for Baracelona at the end of June if this monitored cycle can give me hope.

L x
 

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Ladies just wondered how you were doing?

I am in the midst of this monitored cycle with viagra suppositories and oestrogen patches but my lining is not as thick this time around as it was previously, only 4,.6 mm when it was 5.8 on cd 8 last time.

Still going to Barcelona for appt at the end of the month for DE appt but need to get the lining sorted out first before I can go ahead.
L x
 

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Hi L,

So sorry to hear your lining is not playing ball. Have you had advice from Barca on what they think can be done?

I'm not posting much on FF these days. Just concentrating on other life stuff. Not sure how I will cope with cycling at ARGC if that's the next move. I will no longer live in London after next few weeks and I'm getting my puppy. Perhaps I'm drifting away from treatment, or as I like to think about it, drifting away from miscarriage.

L
x
 

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Lou glad to hear that you are getting on with life and have a puppy coming. We're off to Barcelona IVI on 26 June.
When are you thinking of doing ARGC? 
I do think it is good to get off the TTC rollercaoster ever now and again and see life outside the fertility bubble.
L x
 

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L - not sure when I'm going to the argc. depends on my LIT treatments and when my flat sale goes through. Thinking of doign 3 x months of ttc naturally with immune meds following LITs.

Lou
x
 

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well my final scan on day 15 wasn't any better the thickest my lining reached on viagra and HRT patches was 4.6mm, I wasn't that sure about the patches as my oestrodial only got to 600 despite 200 mcgs a day.  Anyway I still going for appt in Barcelona on 25th June for DE to register and just see what they have to offer me.

Off to Marbella for a long weekend with friends this weekend.
Hi to everyone Lou, sam, rachel, tizz, wss and everyone else

Take care
 

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JJ,

Really sorry that you are struggling with your lining.  I do hope this is just a poor month but even if it isn't I have heard of women conceiving with that little.

In my case my lining improved over time.  Nothing drastic but when I had my very first scan after my Ashermans op my lining at that point was only 2mm (and that was on hormones).  Over time it got to 5mm with natural hormones and that is how I conceived.

Hope you had a great weekend.

Sam
 

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Hello again Ladies

Hope you're all going well.
Well since I posted last I have been on ethynil estrodiol for aboout 2 months now and have had another 
biopsy which showed an improvement so it looks like I will be having another stim cycle with estrogen priming. I will also be using nitrogylerine patches in an effort to "open up" my vascular system, along with
clexane and prednisone. I will be doing an antongist cycle this time and using lucrin instead of  syneral. My FS also wants to use Viagra but we don't have it in a suppository form here and from what I've read taking tablets doesn't do much at all. I'm a little anxious about it all as this is the 1st time my FS has used this regime and wasn't comforted when he said that he woudl recommend pain killers to assist with the side effects particularly  with the nitrogylerine!!!!!-
Has anyone tried this type of protocol??
It has been a bit quiet in here so I'd like to think that everyone is doing well and not obessessing too much!!!!- hard to do!!

Thanks
Rachael
 

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Rachael Good news that you have responded.  I have done 3 short protcols where you don't down reg with synarel and started stimming on day 2- I haven't heqard of lucrin but I used gonal F, puregon.  In the UK you can't get the viagra suppositories but I imported them from the USA via Fed ex, they get from California to London in 48 hours. I'll pm you the contact if you want to explore it.

Sam- thanks so much for the good luck pm.
My Baracelona trip seemed to go well, looking at DE's
I got back from IVI consultation in Barcelona on Friday night we had a few hectic but good days, I haven't caught up with all the news yet

I had a meltdown at BA check in desk  before we even checked in (we tried to check in online and their system kept going down!) then they said their flight was over booked they were looking for 10 passengers to go, if we got the next flight we'd be separated etc and to wait, offered us 600 quid to go on the  next plane but I wanted to get there  etc we were there hours before the flight.  Anyway my donor's partner went up to the desk, and came back with 3 seats together on the flight.

IVI Barcelona is an extremely modern and clean, we were met with out co-ordinator who spoke v good English as did the Dr, if we have questions we can email/phone her etc. They are very clued up on UK couples.

My donor went and did his sample, I was downstairs with his partner, and had a meltdown again, not wanting to be there, it brings all my thoughts of loosing my baby back, I said I never thought I'd find myself here, didn't want to be there I just wanted my baby back - but he is used to my tears. I was terrified of trial ET, so I took some Valium.

They then called us through my donor told me off for being too spaced out, could hardly make it up the stairs, so I explained to the Dr that I nervous and had taken Valium, she was fine.
I had the trial embryo transfer, and in fact it was fine I was most anxious about that part after being 'butchered' at the Bridge, my donor was ushered into the scanning room with me- but he coped ok and stayed at ‘the head end’ and watched the screen.

My lining was 5.3mm on day 13, which was great considering that on drugs on my  last monitored cycle it was only 4.6mm.

The plan is for another monitored cycle with IM oestrogen, and if it gets to 6 mm she will allow me to go forward for DE. She was suggesting I could be back end of Sept/Oct for ET. They usually put 2 embryos back but could do 3.  I think she thought I was mad when I asked for forms to sign then and there that if he died I could use it to get pregnant but we got them done.

We had a nice day after that exploring BCN.  That evening I had dinner a few drinks and then I got a cab home to the hotel at 0200, the boys explored the nightlife and came in about 0500.  I bought all the drugs she prescribed, and am going see Mr Trew who did my lining surgery on Tuesday to update him.

All in all it was a fruitful and hopeful trip.

Hope that you are all well

L x


I had my consulat
 

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we seem to ahve gone a bit quiet on here, thought I'd update you on my current status
I went of DE consultation at IVI Barcelona, they said yet another monitored cycle with IM ostrodial, viagra, some other cardiac drug and vit E,  I they wanted a lining above 6 mm before they would take me on.
My lining is now 6.3 mm on day 11 and by oestrodial levels 7000+ (higher than when I stim for IVF cycles on my own!!)
So fingers crossed all is going well and they will take me on
L x
 

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Hi all

Have just found your thread and hoped you wouldn't mind me joining in so wanted to say hi  ^wave^

I have had endo for a long time and have had several cycles of IVF.  As well as having problems with egg quantity and quality as I have responded poorly and often has high FSH, I have also has problems with my womb lining being significantly thinner than they wanted it to be.  One of the problems I have is that I live in Jersey so have to use a satellite clinic on the mainland.  The clinic did a hystreoscopy at my 4th ICSI cycle because they were concerned and diagnosed me with Ashermans.  However my con in Jersey has done follow up hysteroscopies and says he can't see it and that my lining is just thin.  In fact he says it is 'missing' in half my uterus.  I really don't know who is right and it's very frustrating.

I has Viagra suppositories on my last ICSI cycle, unfortunately will never know if this would have made any difference as none of my eggs fertilised.

We have just been trying naturally for the last couple of years to no avail as we couldn't face any more treatment.  I am having an hsg next month to determine if my remaining tube is still open then we are going to try superovulation.  If that doesn't work then I think it will be donor eggs but I'm obviously concerned about whether that would even be worthwhile with my uterine problems.

If anyone has any advice or recommendations I would really appreciate them.

Foxy x


 

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I usually suffer from a  mediocre lining but heres what I did last time and got it to 7mm...it seems to have done the trick for linings for a few of us at IM
Selenium tabs, brazil nuts, floradix liquid, hot water bottle (before tx only)
Also I use much more than the recommended level of oestrogen patches, but with the clinics approval of course
Nikki
 

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Hi ladies,

Im not sure if you will believe me or not, but I *lost* this thread in the switchover from the old on - ARRRRGH.  I had very wrongly assumed that things had gone quiet here when I the notifications stopped and I have been on a slow, sad waiting game so didnt feel I had any noteworthy news to contribute myself.

I am sorreee!

Anyway, I'm "back", and there is no news except that Ive had no further treatments since last posting but I know that I will  probably stick with my current clinic for any further work simply as I am happy enough that they are bearing my history in mind. Also I have moved jobs and the clinic is 5 mins walk!

On the period front the only change is that I notice they are worse when Im not having acupuncture.  So, for me, its a definitive ingredient to add in.

Lou - I resonate with a lot of what you say.  I agree also how much time flies when we take a break, so to speak.  Congrats on impending puppy and hurry up to silly landlord.    I got my viagra supps fine - let me know if you are still in need of details.

JJ1 - wow the latest results are making good readings and hopefully as Sam says it will get better with time.

Hi to everyone else who is still about (although Im rather suspecting that I'm not the only one who dropped off inadvertently). 


Tizzy xx
 

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Hi Tizzywizz

Please Do you have the address and the telephone nuber of DR Peatfield the endocrinologist and the web site where did you buy the suplements he gave you.  I don't want to start a fourth cycle of IVF and enup with BN result .  Iam on thyroxine since 2004 150MCG, I noticed that my thyroid antibodies have decreased fromm 600 to 180 but my problem is my mood and my weight I can't loose weight.

Thanks

Nassima

 

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has anyone had to womb test for nk cells done at Liverpool?
Nikki
 
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