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Discussion Starter · #1 ·
Hi I have multiple fibroids and was advised by my clinic to get rid of my them before embarking on IVF or IUI.  However when i went to see my NHS gyn she did not recommend it and now i am confused.  she said many women give birth with larger fibroids and my uterus may scar making it impossible to get pregnant.    has anyone had a successful myectomy at my age and still given birth?  my fibroids are distorting my uterus and i am not sure how this will affect my fertility?
 

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Hi Shad

Sorry to hear about your 'broids.

My consultant was very clear on this.  Anything above a small fibroid that distorts the cavity of the uterus will have a negative effect on embryo implantation and should be removed where possible.  I still have some fibroid matter within the cavity of my uterus despite my recent lap but I have had a 3D scan to check how much this is distorting the cavity and apparently it is OK and would be too risky to have further surgery as it is so close to the muscular wall.

I am obviously not a doctor and therefore cannot comment on your docs recommendation, I can only tell you what I was told.

Wishing you luck x
 
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Discussion Starter · #3 ·
CookieSal said:
Hi Shad

Sorry to hear about your 'broids.

My consultant was very clear on this. Anything above a small fibroid that distorts the cavity of the uterus will have a negative effect on embryo implantation and should be removed where possible. I still have some fibroid matter within the cavity of my uterus despite my recent lap but I have had a 3D scan to check how much this is distorting the cavity and apparently it is OK and would be too risky to have further surgery as it is so close to the muscular wall.

I am obviously not a doctor and therefore cannot comment on your docs recommendation, I can only tell you what I was told.

Wishing you luck x
Hi what did your consultant define as "small"? the largest fibroid i have is 5cm and i was told that is quite small
 

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Shad
From what I have learned in the two years since my myomectomy (and 7 months researching the subject before my operation) I have come across 1 lady who has gone on to have a successful pregnancy with a large(ish) fibroid left intact.  Everyone else here has been told that large fibroids need to be got rid of before treatment.  But as you have multiple 'broids, they may be quite small in comparison to some of the whoppas some of the ladies have had here.

If the fibroid(s) is within the uterus - it is extremely unlikely that the fibroid and baby can live in perfect harmony - the fibroid (as happened in my case - and sadly a number of other ladies' experiences here) grows with the blood meant for the baby and invariably results in miscarriage.

Yes the NHS gnae is right - it is not "impossible" - just very extremely unlikely.  I'd push for the operation and get cracking with treatment.....wishing you all the success in the world.
Any queries etc - post here - welcome to our happy little band.
Sheila - waiting for my first ever ICSI with fingers and toes crossed for a miracle.
 
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Discussion Starter · #5 ·
Sheilaweb said:
Shad
From what I have learned in the two years since my myomectomy (and 7 months researching the subject before my operation) I have come across 1 lady who has gone on to have a successful pregnancy with a large(ish) fibroid left intact. Everyone else here has been told that large fibroids need to be got rid of before treatment. But as you have multiple 'broids, they may be quite small in comparison to some of the whoppas some of the ladies have had here.

If the fibroid(s) is within the uterus - it is extremely unlikely that the fibroid and baby can live in perfect harmony - the fibroid (as happened in my case - and sadly a number of other ladies' experiences here) grows with the blood meant for the baby and invariably results in miscarriage.

Yes the NHS gnae is right - it is not "impossible" - just very extremely unlikely. I'd push for the operation and get cracking with treatment.....wishing you all the success in the world.
Any queries etc - post here - welcome to our happy little band.
Sheila - waiting for my first ever ICSI with fingers and toes crossed for a miracle.
my gynae would do the op if i asked for it. i think i am more concerned about the side effects. are there doctors that specialise in fibroid treatment since i wouldnt mind a second opinion? i am not sure what size a fibroid is considered large? my largest one is 5cm and intramural.
 

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Shad,
The myomectomy isn't as bad as some web sites lead you to think.
I was only in hospital 2 nights - I'd strongly advise you not to look around the internet regarding this procedure - there are some scary place and some scary stories about complications - but honestly anything you need to know about the operation - please ask - we're only too happy to help.
Best wishes
Sheila
 

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Hi Shad

My experience is similar to what the others have said.  We were actually down to start IVF in Feb and were just having a number of final tests beforehand, when my fibroids were discovered.  I had two - one around 7cm and a small one at 2cm.  My consultant was very clear - he said the chances of conceiving with IVF had now reduced to well below 5% and he didn't believe there was any point in going ahead.   He said it was the 7cm one that concerned him - his advice was anything 4cms and above he would generally recommend removing.  He said that although 7cm wasn't massive (he'd known women with them upto 15cms) he believed the chance of IVF working was exdtermely slim. As Sheila said, he was also concerned that if by some chance I did conceive there was a much higher possibility of miscarrying later in pregnancy (after around 20 weeks) as the space and blood supply in the womb would be taken up by the fibroid rather than the baby.  

Of course, to caveat that, he did say that we could go ahead and try the IVF if we wanted and, as your consultant said, there were women who had fibroids and had gone on to have successful pregnancies.  However, in his experience he didn't recommend it.  So for me that was enough advice!  I had the myo to remove them 3 weeks ago and am now recuperating at home.  And I can honestly say it hasn't been anywhere near as scary as I thought it might be - all teh ladies on here will assure you of that.

There are a certainly a number of women on this board who have had successful myomectomys and gone on to give birth - read back through some of the older threads and you'll see.  (I don't know about their ages and the impact that can have.)  In fact we have had a recent BFP - Northern Fox had her broids removed a few months ago and is now pg with twins through IVF.  

It is confusing as consultants do seem to give differing advice - I guess based on their personal experience.  Good luck with your decision and let us know how you get on.

Minni x  ^hugme^
 

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Hi

I don't really know anything about fibroids, but a friend of mine had embolisation to get rid of her enormous fibroid. She has since had children.

The process is along the lines of blocking the blood supply to the fibroid, and it then shrivels and dies. There is no surgery involved.

I don't know if it applies to certain types of fibroid, or where they are positioned.

Might be worth looking in to, though.

Good luck.
 
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Discussion Starter · #9 ·
Sheilaweb said:
Shad,
The myomectomy isn't as bad as some web sites lead you to think.
I was only in hospital 2 nights - I'd strongly advise you not to look around the internet regarding this procedure - there are some scary place and some scary stories about complications - but honestly anything you need to know about the operation - please ask - we're only too happy to help.
Best wishes
Sheila
looking at your stats you had your daughter before the OP - it this correct?
 

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Sadly not quite correct Shad,
My large fibroid caused me to miscarry - and was also the very likely cause of me having taken soo long to get pregnant in the first place!
I was unable to have the fibroid removed whilst pregnant - (I didn't want a surgical or chemical end to the pregnancy) so just had to wait for nature to take its course, and the fibroid to murder my much loved and wanted baby.
I had my myomectomy done approximately 6 months following my miscarriage (with 3 monthly shots of zoladex to shrink the fibroid in readiness for the operation).

I was given 6 months to recover fully from the surgery before I was allowed to try to conceive again naturally - and even then I was given another year before I would be considered for infertility treatment.  Now coming up to two years post myo - I'm still awaiting my first ICSI treatment on the NHS - I've got hope - but I wouldn't have it if I wasn't fibroid free!

 
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Discussion Starter · #11 ·
Sheilaweb said:
Sadly not quite correct Shad,
My large fibroid caused me to miscarry - and was also the very likely cause of me having taken soo long to get pregnant in the first place!
I was unable to have the fibroid removed whilst pregnant - (I didn't want a surgical or chemical end to the pregnancy) so just had to wait for nature to take its course, and the fibroid to murder my much loved and wanted baby.
I had my myomectomy done approximately 6 months following my miscarriage (with 3 monthly shots of zoladex to shrink the fibroid in readiness for the operation).

I was given 6 months to recover fully from the surgery before I was allowed to try to conceive again naturally - and even then I was given another year before I would be considered for infertility treatment. Now coming up to two years post myo - I'm still awaiting my first ICSI treatment on the NHS - I've got hope - but I wouldn't have it if I wasn't fibroid free!
sorry to hear that Sheila. but what you are saying is it took about 18 months for you to completely recover and then try for a baby? i dont have this long at my age if i want to try with my own eggs - that is why i want to avoid op. was your fibroid large? is it necessary in all cases to take zoladex to shrink fibroids?
 

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No, I was back to work again after 7 weeks (but I was still a little tired very occasionally) - but my consultant advised me that I shouldn't try to conceive again for 6 months... as the incision was large and that I would need to give my womb time to heal...(my fibroid was 11 x 13 x 9 cm and also within the womb). 

However many of the other ladies on here at the time were advised that they would only have to wait 3 months before trying to conceive again/have infertility treatment.

So I threw a bit of wobbler at my cons having to wait 6 months - when everyone else I knew was being told 3 months !  I was told in no uncertain terms, yes get pregnant within 6 months - or risk losing your womb altogether - no brainer for me .... but I had more time on my side 2 years ago.

So get the op done, recuperate for a couple of months - get your cycle back on track and start treatment.  If you are given any drugs to reduce the size of your fibroid - it plays havoc with your periods anyway - so clinics won't do anything until you get your period back following surgery (I think I waited about 12 weeks for my periods to start up again following surgery).

I think it was my consultant being over cautious telling me to wait 6 months!
If we had known that there were other fertility issues for us as a couple, we would have been in for IVF treatment well before now though. 
Honestly Shad, hand on heart - get rid of those fibroids and give yourself the best possible chance of conception/ successful pregnancy.
 
 
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Discussion Starter · #13 ·
Minni said:
Hi Shad

My experience is similar to what the others have said. We were actually down to start IVF in Feb and were just having a number of final tests beforehand, when my fibroids were discovered. I had two - one around 7cm and a small one at 2cm. My consultant was very clear - he said the chances of conceiving with IVF had now reduced to well below 5% and he didn't believe there was any point in going ahead. He said it was the 7cm one that concerned him - his advice was anything 4cms and above he would generally recommend removing. He said that although 7cm wasn't massive (he'd known women with them upto 15cms) he believed the chance of IVF working was exdtermely slim. As Sheila said, he was also concerned that if by some chance I did conceive there was a much higher possibility of miscarrying later in pregnancy (after around 20 weeks) as the space and blood supply in the womb would be taken up by the fibroid rather than the baby.

Of course, to caveat that, he did say that we could go ahead and try the IVF if we wanted and, as your consultant said, there were women who had fibroids and had gone on to have successful pregnancies. However, in his experience he didn't recommend it. So for me that was enough advice! I had the myo to remove them 3 weeks ago and am now recuperating at home. And I can honestly say it hasn't been anywhere near as scary as I thought it might be - all teh ladies on here will assure you of that.

There are a certainly a number of women on this board who have had successful myomectomys and gone on to give birth - read back through some of the older threads and you'll see. (I don't know about their ages and the impact that can have.) In fact we have had a recent BFP - Northern Fox had her broids removed a few months ago and is now pg with twins through IVF.

It is confusing as consultants do seem to give differing advice - I guess based on their personal experience. Good luck with your decision and let us know how you get on.

Minni x ^hugme^
Hi Minni
did you have an abdominal or laporscopic myomectomy? how long after the op can you begin to start TTC?
 

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Hi Shad

I had an abdominal myomectomy 3 weeks ago - a bikini line cut to remove the 2 fibroids.  Apparently because of the size and location of the fibroids a laparoscopic myo wasn't appropriate.    I don't really know the difference between how the two procedures are performed but I know that the recovery time for a laparoscopic myo is usually quicker - around 2 weeks compared to 6 weeks for an abdominal myo.

I have been advised to wait around 3 months from the op before ttc again.  After only 3 weeks I am feeling good.  I can get around no problem now, I have driven a short drive - more than anything I just feel tired a lot more than normal.  If I go out for a couple of hours I usually need a good sit down when I get back.  I am actually amazed at how easy life has been compared to what I imagined.

I notice you said you were worried about side effects.  Let us know your concerns - I can honestly say I haven't had any side effects that have really bothered me - that's from starting the injections to shrink the broid to the operation itself.

Minni x  :)


 

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The lap myo, I believe is done via micro surgery - with a few much smaller incisions and so recovery is much quicker.... but this procedure v's the abdominal myo is carried out depending on size, number and location of the fibroids.
Hope this helps a little.
 
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Discussion Starter · #16 ·
Minni said:
Hi Shad

I had an abdominal myomectomy 3 weeks ago - a bikini line cut to remove the 2 fibroids. Apparently because of the size and location of the fibroids a laparoscopic myo wasn't appropriate. I don't really know the difference between how the two procedures are performed but I know that the recovery time for a laparoscopic myo is usually quicker - around 2 weeks compared to 6 weeks for an abdominal myo.

I have been advised to wait around 3 months from the op before ttc again. After only 3 weeks I am feeling good. I can get around no problem now, I have driven a short drive - more than anything I just feel tired a lot more than normal. If I go out for a couple of hours I usually need a good sit down when I get back. I am actually amazed at how easy life has been compared to what I imagined.

I notice you said you were worried about side effects. Let us know your concerns - I can honestly say I haven't had any side effects that have really bothered me - that's from starting the injections to shrink the broid to the operation itself.

Minni x :)
Hi Minni

did you have your op done privately or NHS?
 

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Hi Shad,

I had a 6cm fibroid removed in March this year, this was after my first icsi failed with a possible chem preg, the dr said tha the fibroid was changing the shape of my uterus so therefore had to come out before any other tx.

Im now starting my 2nd icsi next month, i only had to have a 3 month break from ttc, i had an open myo.

I fel so much more positive now, they didnt cut into my uterus so no scar tissue and if tx was successful then i can have a natural birth.

I only had one shot of Zoladex too.

Since having my myo, i have found that i have now ovulated every month too which before was one in 3, my af before was really light and had alot of leg pain, now its a normal af and no leg pain just cramps :).

My myo was on the nhs

Love Lisa xxx
 

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Hi Shad

My myo was done privately although it would have been done by the same guy either way!  I was at the Nuffield in Leeds.  Luckily for us my hubby has Bupa with his work so we got it as part of that and I didn't actually have to pay.  I also wanted some control over when I had the op as I am freelance and so my work situation is a bit more complicated and I can't just take time off from contracts in the same way I could take time off sick.    ::)

Minni x

 
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Discussion Starter · #19 ·
lisa25 said:
Hi Shad,

I had a 6cm fibroid removed in March this year, this was after my first icsi failed with a possible chem preg, the dr said tha the fibroid was changing the shape of my uterus so therefore had to come out before any other tx.

Im now starting my 2nd icsi next month, i only had to have a 3 month break from ttc, i had an open myo.

I fel so much more positive now, they didnt cut into my uterus so no scar tissue and if tx was successful then i can have a natural birth.

I only had one shot of Zoladex too.

Since having my myo, i have found that i have now ovulated every month too which before was one in 3, my af before was really light and had alot of leg pain, now its a normal af and no leg pain just cramps :).

My myo was on the nhs

Love Lisa xxx
Hi Lisa
sounds a bit like mine - probably distorting your uterus. Where in the uterus was it?
 
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Discussion Starter · #20 ·
lisa25 said:
Hi Shad,

I had a 6cm fibroid removed in March this year, this was after my first icsi failed with a possible chem preg, the dr said tha the fibroid was changing the shape of my uterus so therefore had to come out before any other tx.

Im now starting my 2nd icsi next month, i only had to have a 3 month break from ttc, i had an open myo.

I fel so much more positive now, they didnt cut into my uterus so no scar tissue and if tx was successful then i can have a natural birth.

I only had one shot of Zoladex too.

Since having my myo, i have found that i have now ovulated every month too which before was one in 3, my af before was really light and had alot of leg pain, now its a normal af and no leg pain just cramps :).

My myo was on the nhs

Love Lisa xxx
hi Lisa how long after your first icis attempt did you have your fibroids removed?
 
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