[Mrs Butterfly]

I have only ovulated 5 times in 18 months and had my first gynaecologist appointment in April. She done a scan which showed I didn't have PCOS and sent me away for 3 months. I went back having not ovulated and she gave me Clomid.

I've just finished my first course of Clomid and been for my first scan today. I hopped up on the bed and the nurse said "oh, so you've got Polycystic Ovaries then" and I said - erm no. She said it could have been caused by the Clomid and that I might not actually "have" it.

I'm totally devastated and don;t know what to do - has anyone experienced this??

 

[Witchie Poo Cat]

Hi Miss B

Sorry to hear your news.  I know how you feel.  I had a lap and dye in May 04 and in Feb when I saw a consultant after 6 months of Clomid he didnt even read my notes and talked about my PCOS and how he was going ot put me on Metformin.  Im like "hello, I DONT HAVE PCOS"

I cant answer your question as to whether clomid can give you pcos, i know it can overstimulate the ovaries but, if you werent ovulating on your own (like me) and started on 50mg of Clomid then I think its unlikely, although not impossible.  Its more likely that the nurse PRESUMED you had PCOS.

Try and speak to your consultant.  Were you having your progesterone levels tested after 7 days past ovulation to confirm ovulation had taken place?  You really need to know if the clomid made you ovulate or not.  Both times Ive started on it they always start me on 50mg even though they know it doesnt work!  However, 100mg works just fine.

Its likely they will put you back on clomid for another 3 months, maybe altering the dose if required.  However, only your consultant can advise if you have PCOS for sure and if it was caused by the Clomid.

Best of luck, sorry I cant be of more help.  I know how frustrating it is, my consultant is hopeless and have had the runaround for the last 18 months.  I finally found my voice and complained and am seeing an infertility specialist in November on the NHS so hopefully we can sort out the IVF waiting list thing.

Take care and sending you lots of 

Hugs

Witchie Poo Cat

 

[Mrs Butterfly]

Thanks!

My husband also thinks she just "presumed" and didn't read my notes (she asked me what day I was on 'cos she hadn't checked!).

I have another scan tomorrow to see if I've ov'd - if the nurse still claims I have PCOS I'm gonna get on the phone to my consultant straight away and demand a proper diagnosis (even if it means chaining myself to her desk!!)

Sorry if TMI, but I had some egg white today, which I have NEVER had before so here's hoping!!

 

[Witchie Poo Cat]

Good luck with the scan and hope you can get some light shed on the PCOS thing.  When I asked my own consultant "do I , or do I not, have PCOS" and told him what happened with the appointment with his colleague he jsut hung his head and shook it and said "no, you definitely do not have PCOS" - it was like he knew but wouldnt admit the other guy made a mistake.

aaarrrggghhh!!!!  Why are things never straightforward eh? lol 

take care and best of luck

Hugs

Witchie Poo Cat