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Hi Ladies

I don't know if anyone here might be able to help, but I am in a real pickle, and my doctor and others don't seem interested.

In a nutshell, I have just discovered I am 6 weeks pg (a very surprising 'natural' ). I have a factor 2 blood clotting disorder (heterzygote), and have had 3 previous mc's, which doctors think may, or may not have been caused by this. 18 months ago I saw Mr ******* who though it is a likely cause of the babyloss, and recommended low dose heparin and asprin, if I fell pg again. However, my GP and the specialist here in Newcastle refused to prescribe heparin for me earlier in the year when I had an unsuccessful DEIVF tx at Reprofit. Luckily the clinic gave me the heparin I needed.

Now here I am 6 weeks pg and with one packet of heparin left over from the IVF, however, I am unsure whether this dose is too much or too little : I am taking Fragmin 0.2ml. Anyone have any idea?

My GP refuses to have anything to do with me taking the heparin, claiming that too little research has been done into my thrombophilia to warrent prescribing the drugs, and Mr ******* won't discuss it with me unless I make another appointment to see him (which after paying £700 last year I feel is slightly unfair). I am hoping that I can continue buying the heparin from Reprofit (but I don't know... ???), but to be honest the clinic don't really know much about dosage of the drug, and - obviously - are interested in patients who are undergoing IVF treatment rather than someone just wanting to buy their drugs.

Anyone have any ideas on the correct amount I should be taking? I know this is a long shot, but am very grateful for any help anyone might have.

Thanks
Jo
 

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jo.m - I think it is a safe dose, the one you have mentioned in your post. That's the lowest dose trombophilia patients are prescribed. I suppose its pretty safe for you to use it, even women after repeated miscarriage without clotting disorders are taking it and its fine. Just rememeber to buy some calcium tablets in a chemists as heparin can deprive you of calcium
 

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Hello,
im afraid o dont have the answer to your question but thought i would just say that you can see Dr ******* in Epsom General Hospital in Surrey on the NHS with a referal from your local gp. Goodluck and i really hope this preganacy works out.
Best wishes
michXXX.
 

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Jo, another long shot, call ARGC explain the situation and ask if they can help you.

Good luck

Lx
 

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Not sure if this helps but for my disorder I have been prescribed 20mg daily up until 24 complete weeks of preganancy.

Hope you get sorted.

Susan M xxx

 

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It is hard but self medicating is a tough one, are you not under a haematologist or obstetrician for your condition and pregnancy. Ask your GP to refer you to EPU as a high risk case (which you are after your losses) and ask for blood tests- take your previous results.

I don't have a clotting disorder- saw Mr ******* after a m/c and then ARGC for 2 cycle- have NK cells and was precribed 40 mgs once a day my Mr S, and ARGC prescribed me 20 mgs twice a day. Other girls with NK cells at ARGC who got pregnant had clexane injections until 30 weeks.  Good Luck hope you get it sorted hun
L x
 
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