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Discussion Starter · #1 ·
Hi,
I'm waiting for our second appt at JCUH with Mr Mohamed.
We had our first in December and he put me on clomid for 3 months.
I have stage 3 endometriosis and we've been trying for 14 months now, with no success.
Hubby has had 4 SA's and all are fine.
Presuming when we go back in March, they'll do a Hycosy (?) and then maybe suggest other help?
Look forward to talking to you all x  :)
 

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Discussion Starter · #2 ·
Hi Mandy,
Thanks for replying and for the welcome!
Good luck to you with your IVF journey.
Hope you hear from them soon x
 

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Hi and welcome floofymad,

youve joined a great thread here, a lovely bunch of great girls for friendship, advice and a good laugh when needed.

have a look on the thread, we have a meet up section normally once a month at a venue in Durham, great opportunity to meet other ladies going through similar

also have you found the endometriosis thread? again over there we have month chat nights which are great and i always find supporting and helpful

looking forward to getting to know you xx
 

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Discussion Starter · #4 ·
Hi Nicky,
Thanks for the reply.
I popped over to the endo thread earlier. I see on your sig that you have it too...
Mr Mohamed says he thinks we'll be 'unexplained' infertility rather than blaming my endo, however I blame the endo! It's a horrible disease  :( 
Talk to you soon! x
 

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I floofymad!
Welcome to FF! I'm pretty new too! We are waiting for our first appointment at James Cook and I wanted to ask you what to expect from this first one? We've been TTC for about 14 months too. I had irregular periods following coming of the pill ranging from 26-40 days which I thought was the prob but they have settled down a bit now. Husband had sperm test and was inconclusive so this will have to be repeated I would think. Feeling sooo desperate for a little bundle-I'm so impatient and every month is a disappointment. Anyway, any prior warning about first appointment would be fab.

Good luck with your next appointment. x
 

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Discussion Starter · #6 ·
Hi NP
Sorry I haven't replied sooner. Not very good at navigating around on here yet!

At our first appt, we had to fill in forms with medical history etc and whether we had any children, and how my cycle was.
FS was supposed to have results of DH's sperm count from doctors, but they hadn't bothered to send it.
He asked me questions about my endometriosis and we came up with a plan. He said he would write to my gynaecologist for details of my laparoscopy in July, write to our docs for blood results and DH's sperm results. He also arranged a scan for me and yet another Sperm analysis for DH!
He also gave me 3 rounds of clomid to try.
We're going back on 7th March to see what's next.
What about you? Have you had an appt yet?  ^hugme^
Steph x x
 

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Hey! Had appointment today took husbands bloods, my height and weight and went through my blood results etc. I have to ring up next week to book in for a scan and hubby needs yet another sample! Next appointment with dr Mohammed 15th march. How are things going with you? X
 

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Discussion Starter · #8 ·
NP said:
Hey! Had appointment today took husbands bloods, my height and weight and went through my blood results etc. I have to ring up next week to book in for a scan and hubby needs yet another sample! Next appointment with dr Mohammed 15th march. How are things going with you? X
We had the same things at our first appt. We have our 2nd appt 7th March. Not sure what to expect. He said something about a Hycosy to check tubes, or another laparoscopy, but I have so many questions to ask! On CD9 at the moment, on last cycle of clomid. Catch up soon!
 

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Hi,
Just seen your post and that you're taking clomid too.
I've just finished my 3rd cycle of 50mg from CFL and now I'm not allowed any more till after my HSG : (
How have you found it? I don't think I've suffered from any side effects, at times have been weepy but with so much goin on it's hard to know whether it's due to the clomid lol.

Do you mind if I ask about your endo?
Did you have any suspicions you had it before the diagnosis?

Reason I ask is because I suffer from terrible period pains - vomiting, fainting etc...
It's normally only on day one though.

Look forward to your replies xxxxx
 

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Discussion Starter · #10 ·
StarGirl1980 said:
Hi,
Just seen your post and that you're taking clomid too.
I've just finished my 3rd cycle of 50mg from CFL and now I'm not allowed any more till after my HSG : (
How have you found it? I don't think I've suffered from any side effects, at times have been weepy but with so much goin on it's hard to know whether it's due to the clomid lol.

Do you mind if I ask about your endo?
Did you have any suspicions you had it before the diagnosis?

Reason I ask is because I suffer from terrible period pains - vomiting, fainting etc...
It's normally only on day one though.

Look forward to your replies xxxxx
Hey Stargirl,
I'm on my last cycle of 50mg clomid too. I'm day 15 so just waiting for AF now and our next appt at James Cook in 2 weeks. Our Fertility Specialist said he'd arrange a HSG for me too, when we go to see him, so we're about the same there! I've found clomid ok although its made my endo pains a lot worse. Last month seems to have been worse than this month pain wise. The week running up to AF was horrible! I've had hot flushes on it and not slept too well.
I knew there was something wrong before I was diagnosed with endo. I had pains on and off during the month, spotting before AF and a swollen bloated stomach. I kept going back and forth to the doctors, but they wouldn't do anything. Eventually I went private and had a laparoscopy which confirmed stage 3 endo.
Do you have any other symptoms throughout the month?
^reiki^ ^reiki^ ^reiki^ to you!
 

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Hi!

No other symptoms or pains throughout the month. It's always just day 1, so maybe it's just period pain afterall.

I'm next seeing the doctor at CFL in 4wks and I'm hoping to have had my HSG before then so we can discuss "next steps"

Has your doctor told you how many cycles of clomid you'll be allowed and have you been having scans?
They don't do scans at CFL but I've read most other places do

^reiki^ ^reiki^ ^reiki^ to you too!! xx
 

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Discussion Starter · #12 ·
StarGirl1980 said:
Hi!

No other symptoms or pains throughout the month. It's always just day 1, so maybe it's just period pain afterall.

I'm next seeing the doctor at CFL in 4wks and I'm hoping to have had my HSG before then so we can discuss "next steps"

Has your doctor told you how many cycles of clomid you'll be allowed and have you been having scans?
They don't do scans at CFL but I've read most other places do

^reiki^ ^reiki^ ^reiki^ to you too!! xx
Hey,
No scans or monitoring for me. Had 3 cycles. Not sure if they're going to tell me to up it to 100mg, but I'm not sure that's a good idea. I have Endo Stage 3 and clomid will just be feeding it and can't bear any more of the pains. Had reflexology and woman said not to take clomid and she's getting me some chinese herbs to try.
 

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Hi floofymad,

So I've got my appointment for the HSG.
It's next Friday!! Feelin a bit nervous/scared but also pleased to be moving forward.

How are you gettin on?
Do you have your HSG date yet?

Xxx
 

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Discussion Starter · #14 ·
Hi Stargirl,
I have to wait for a letter from hospital and then ring up to arrange the HSG. Mohamed said he knows it'll come back clear though, and then we'll be classed as unexplained and will have to wait another 1 1/2 years just to get on the list for IVF. Then the waiting list is 8 months.
We're not sure what to do at the moment.

Had a horrible appt at the hospital yesterday.
Was so frustrated, angry and sad yesterday.
FS appt was this morning at 10.40am. We arrived at 10.30 and had to wait until 12pm to be seen. When we finally went in to see FS he didn't have any of the information ready. He said he was waiting for a letter to come from my gyno about my endometriosis, which they'd had to re-send off for. They also said they couldn't find DH's SA results on the system or my ultrasound scan. Eventually, after trawling up and down stairs and looking on the computer they found the info. By this time, I was already trying not to cry.
DH's sperm are above average. 79 mill per ml, and 71% rapid progressive. My ultrasound was fine. My blood results FH and LH were fine. Letter from gyno finally arrived, which was dated from January, so they'd blatantly lost it.
Letter from gyno was read out, which went something like this....
"I saw the above named patient in July 2010. She underwent a laparoscopy where I found multiple 1-2cm adhesions, on the utero-sacral ligaments, outside of uterus and bladder which were corterised. She refused further treatment as she was seeking a pregnancy"
FS then said because there are no cysts on my ovaries from the scan or lap, that I've only got mild endo  and therefore we're unexplained infertility. Because of that, he'll do a HSG, but then we can't have IUI for at least 2 years, and IVF for 3 years. (in total) and that's only to get on the list. The list is 8 months long. He said people with mild endo are usually sent straight for IVF. So we have to wait another 20 months just to get put on list and then 8 months wait from then.
I was told I have stage 3 endo, not mild endo.
Am just so frustrated. Being told there's nothing wrong with us, but no help available. I told him no more clomid cause pains are too bad on it.
DH walked out and told me I have no right to cry because there's nothing wrong with us. He said "I'd better ring the mortgage company and ask for another £10,000 hadn't I?" He didn't sound happy about it at all.

Sorry for the big rant Stargirl,  but that kind of sums up how I'm feeling about it at the moment!

Good luck with your HSG hun.... How is everything else going? x
 

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Aaaww Hun it sounds like you've had a horrible day : (
It is such a stressful time and when you go for your appointments you expect to be moving forward so I totally understand how frustrated and upset you feel. It won't be helping either that your hormones are all over the place with the clomid.
Can you ask for another lap and have it through the NHS?
Maybe then they'll see how bad your endo really is? Or do you have any letters confirming that they'd told you it was stage three?
The ttc journey is different for men. I sometimes wish my DH was as stressed out about it as me but he is so laid back it's annoying!! I think they just deal with it in different ways and probably feel a bit on the outside. I'm sure your DH is just as upset about it as you are.

What is your post code area? I'm north Tyneside and I'm sure I can have IVF after we've been ttc for 2yrs.

I'm ok. Currently on day 21 and still haven't ovulated so I'll probably not have a period until May!
Still really p'd off they wouldn't give me more clomid when it was working but I spose there is not much I can do till after the HSG.

It might sound crazy but a part of me hopes they find something so that I don't get labeled as "unexplained"

Try and stay positive xxxx
I know it's easier said than done lol xx
 

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Discussion Starter · #16 ·
I totally understand. I'd rather they 'found' something so they can deal with it.

I'm not sure about having another lap. I don't mind having one, but I'm not sure anyone would do one for me.  :-\

Good luck. Let me know how you get on next week x
 

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Thanks and I'll let you know how it goes.
Xxx
 

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Hi everyone,




I havent been on here for ages-just figured out how to access forgotten username and password!


How are you all getting on on your fertility journeys? I tried 3 months of 50mg clomid then 3 months of 100mg with no joy. HSG etc... all came back clear so it's unexplained infertility. We were put on waiting list for IVF in September and went to an info evening about IVF last week.


Anyone have any idea how long the wait is for IVF? I should have asked at the meeting last week!


NP X
 
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