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Discussion Starter · #1 ·
Hello,

My dh and I would like some advice from anyone who may been down this route.  A brief history.  Dh had testicular cancer 13yrs ago and due to a hospital blunder i.e. taking sperm after the op but before the chemo the body had suffered a large amount of stress from the op that no sperm were fit to freeze even before chemo.  13yrs on there is no sperm present in a semen analysis and dh has raised FSH at 43.9 and LH was 10.4.  The doctor told us that because of high FSH it was unlikely that any sperm would be recovered during TESE.  However I have been reading on this website of men that have had no sperm in the ejaculate having some when a TESE was carried out.  Is there anyone who can give us some advice as to whether, given dh's results, it is worth trying the TESE or not?  Also is there anyone who's FSH have been high and still found sperm?
Many thanks for your help and advice
Jo&JJ 
 

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Hi Jo

The doctors told us that if my DH had an elevated FSH of above 15 then there was a chance that they wouldnt find anything and if it was to high they wouldnt even bother with the TESE.  His result came back as 12 so we thought we were in luck unfortunatly following a TESE there was still no sperm so it goes to show that the doctors dont know it all.  It didnt work in our favour but maybe it will in yours though the FSH does seem very high.

It is very difficult to know that you may not be able to have your DH genetic child but there are other options open, the DI route possibly.

I hope you and your DH achieve your dream of a baby one way or another.
Love Hobbs x
 

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Dear Jo,

I am so very sorry to read of your predicament. We were in a roughly similar boat.  Testicular cancer and no sperm banked before tx.  My DH had a testicle removed with a tumour in '99.

The Consultants advised us not to try a TESE after the cancer and put obstacles in our way. My DH has only 1 testicle left and it is small/was undescended.

His FSH was 22 (ref range 1-9) and his LH was 18.7 (range 2-8). He had no sperm in his ejaculate after the op and still doesn't 5 years later.

On the first TESE enough sperm tissue was found for one cycle of ICSI. On the second we got more. The tissue had to be incubated overnight before they found anything.

Our ICSI cycles have "worked well" except that implantation failed but this may be due to immune issues on my side. Lack of money is currently stopping us from proceeding.

The worry about the TESE for my DH was that he could lose what hormones the remaining testicle is producing and it could cause problems due to the scaring from the operation (i.e. with sexual feeling). We have been relatively lucky in that hormone production is OK. The sexual feeling side is still recovering and we have not got to the bottom of an explanation for this i.e. was it caused by the cancer tx, the operations or psychological etc.

In our case it was worth the gamble even though we do not as yet have a successful pregnancy and may never succeed. You and your DH need to know about is current hormone production (i.e testosterone) and make an informed choice about the possible side-effects.  IF your DH does have the TESE and it goes badly he may need to use hormone patches for the rest of his life.

If you do not already have one I would suggest an appointment with a proper Androlgist and would recommend Dr Ralph at UCH London.  He did the second op on my DH.

Please feel free to IM me direct if you would like further info.

With warmest regards,
 

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Hi Jo Jo,

Even though we are awaiting our first go at SSR I wanted to share our story with you.

My DH was diagnosed with azoospermia in June this year which came as a total shock to us as we were pregnant in 97 but sadly this resulted in a miscarriage.  My DH has had nothing happen to him to him wither that allows the doctor to explain how ha has developed azoospermia.

We live in South Wales and the first Urologist we saw in Cardiff tried to put us off having SSR from the start due to my DH having an FSH level of 29.  This made my DH break down as he thought we had no hope as we were told the guy we had seen in Cardiff was the best.

I am a stubborn sod and would not take this as the end for us especially since we were pregnant once.  I spent hours searching on the net and speaking to various people on here and made a couple of appointments with specialists in London (this seems to be where all the Andrologists are located).  After narrowing it down to Dr Ralph and Dr Balet we went with Dr Balet as our appointment with him was earlier that that with Dr Ralph and I had spoken with Ermey on here who's DH had a level of 34 and Dr Balet still managed to locate sperm in SSR.

Upon meeting with Dr Balet we were instantly reassured and he informed us that FSH levels were all Dr's used to look at in the past but with medical science advancing so much this cannot be used alone as a guide to weather or not sperm will be present.  He also told us that no two men are the same no matter what their results were before SSR. 

Where we were told we had a 5% chance of success with the Dr in Cardiff Dr Balet told us he would give us a 50% chance at our SSR being successful (50% compared to virtually nothing is good enough for me).  We now go back on 20th Nov for my DH to have SSR.

What I guess I am trying to show you is that no two cases are the same.  You have to give it your best shot while you can or you will go through the rest of your life thinking 'What If' and in my opinion what if's are the hardest things to come to terms with.

Try and stay positive and get a second opinion you have to keep pushing doors until all doors in front of you are locked and only then must you admit defeat.

Please, please don't give up hope.  If you need anything else I am always here to help.

Lol & luck.

Fin
 

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Have to agree with Fin any chance is a positive  ^reiki^ my Urologist said due to size issues it was unlikely my balls did anything other than produce testosterone.

We had SSR and got a BFP from ICSI, I hate to admit it even if the docs said there was a 5% chance I'd just like to exhaust the possibility.  :mad:

Good luck Jo

Regards
Andy
 

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Jo Jo

I am so sorry to hear about all you and your DH have been through, cancer is enough for anyone to face with out the added effect of IF.

I have to agree with all the replies you have recieved so far.

We, like Fin, were given virtually nil chance at finding sperm on SSR from our initial clinic. The consultant there was a MF specialist too which left my DH feeling distraught.We were told that he wouldnt even give us a percentage of our chances as if he had said 99%, we would probably be the 1% that it didnt work for. He filled us with utter dread and took away all our positivity and hope that we had tried in earnest to build up.  He said he wouldnt even recommend going ahead with surgery as we would probably be disappointed.
I wasnt going to take that as an answer and pushed for him to do the op. The clinic eventually agreed And we are waiting for an appointment for SSR at the mo.
In the meantime, I have contacted other clinics, told them our situation and recieved nothing but hope from them. We are now having a second opinion from another clinic. This one can show me their success rates whereas the first clinic had none! I know that you mustnt go on those records, but it shows they have had success in the past and thats enough for me.
This new clinic also looks further ahead than SSR and is testing/checking me out to make sure Im ready for ICSI. That positivity can only help couples like us in this situation.

What Im trying to say....like Fin and myself...push for the answers you want. You must take cotrol of the treatment you are recieving. Its you and DH future and you must fight for it til there is no fight left.

Wishing you the very best of luck with everything.

We usually post on the 'male factor' thread on the ICSI board. Why dont you come and join us as we are all facing the same thing.

lol

mae :)
 

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Discussion Starter · #7 ·
Dh and I want to thank you for sharing your experiences, you have all helped make our minds up and we are going to find the best Urologist in the country and take the test.  I guess it is save, save, save, now as private treatment is so expensive.
Good luck to everyone.
We will report our findings.
LOL
JJ&Jim
 
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