I see you also have thyroid issues, I have Hashimotos and all the immune issues associated with it. What treatment have you had for it? I had the absolute lot of it for cycle #3 (Humira, LIT, steroids, IVIG) which is why when none fertilised it was soul destroying as I've been having tratment for my July IVF since April! Xxx
I’m just about to start a third cycle at the Lister after one failed attempt and a missed miscarriage last time around. I just wondered if anyone has any advice re sourcing medication please? I’ve always used healthcare at home as it was significantly cheaper but was advised by the Lister this morning that HAH is no longer supplying. I got a quote instead from their pharmacy and it is literally three times what I paid for the same prescription the last two cycles via HAH. Has anyone found any cheaper alternatives please?
Sorry for this short message as I’m just on my mobile at work but happy to help with any Lister queries anyone has when I’m back at home! Thanks so much ladies!
Hi Bumbo83, Sorry to hear about your last cycle that must have been mega frustrating! The Lister don't do Humira or LIT. It's steroids/intralipids/IVIG depending on your results. I have had IVIG on 3 cycles - the first resulted in our amazing son but the subsequent 2 were a CP and an early MC. Our last transfer we decided we couldn't keep justifying the cost so went with steroids instead and had another CP We're trying to decide what to do for our final transfer before we give up on trying for a sibling but money has definitely become a big issue now x
Honeybee17, have you tried Asda? I used to get quotes from them, The Lister and HAH. I agree HAH were always the cheapest but last time the Lsiter pharmacy wasn't so bad but it always depends on your specific drugs x
Hi ladies, Thanks for your advice yesterday about the pharmacies. I have made various calls this morning and so far the Lister is the cheapest which is fairly depressing. I just find it so strange that I paid under £600 in Jan and now it's over £1400. I could weep! What was interesting was that one company wanted to know the name of the clinic we were having treatment with as they have different prices for different clinics.. sounds like a bit of a racket to me but to give the Lister credit, they are the cheapest so far.
Anyway I've had a look at the thread and wanted to respond to those of you looking for opinions. You have already been given some great advice but just wanted to chip in as I know what an agonising decision it can be.
- What are the pros and cons of the clinic?
Very professional. Good lab, some very strong consultants who have been with the clinic a number of years. Sonographers are VERY experienced. Some clinics talk about nurses doing scans which made me nervous but Alison and Liz are radiologists I believe who have been doing this for years. Hospital facilities are nice but in the grand scheme of things, I'm not sure this is really a priority! There are also satellite clinics where you can see consultants and have monitoring scans closer to where you live/work, then have EC/ET at the clinic. That said, I recommend basing your decision on the location of your preferred consultant not the clinic. Downsides - I know some people like to get in and out quickly before work and I don't think they do very early appointments For older women in particular, I think post positive result monitoring could be a little better but if you specifically ask for it they will do additional tests. It's just not part of their standard approach I don't think whereas at ARGC for example, you're in almost as frequently afterwards as pre-transfer from what I've seen. I think that's the opposite end of the spectrum though and we decided it wasn't for us.
- Would you recommend it based on your own experience? Yes
- Which doctor(s) you recommend? I'm on my third round with the Lister. I was under the care of a consultant at one of their satellite clinics the first time but went with the clinic directly for 2nd and now 3rd. Two reasons: 1. To use Access Fertility (more later) you had to use the main clinic. 2. We decided to have future treatment under the care of Dr Taylor who is really wonderful IMO. She was highly recommended by a fertility acupuncturist. I have also had EC with Mr Faris and Dr Thum and transfers with Mr Nicopoulos and Dr Parikh and they have all been great. I'm almost 42 with good hormone levels and seemingly above ave. number of eggs collected, fertilised, etc. but a family has eluded us so far most likely due to chromosomal abs and my age :-(. What I like about Dr Taylor is she's very pragmatic. She has recommended various extra tests just to rule things out without going crazy and she's been very methodical. She never makes you feel rushed, takes the time to explain her rationale for her recommendations and instils confidence with a really lovely manner. I like her a lot!
- How much the overall costs are? The first round I think we worked out we paid about £7,800 all in incl. drugs, blood/semen analysis, etc. Next cycle we decided to use Access Fertility. This is def worth a look for both financial reasons and I think it takes some pressure off when you've already got a back up plan lined up and don't need to have the 'what next' discussion if you don't get the result you hope for. For people under 40 I think they offer a refund scheme (less refund the older you are) but over 40 you can have two cycles incl. all cycle (not screening) blood tests and scans, blastocyst culture, embryo freezing and thawing for a fixed fee. I think we paid £10,800 for 2 cycles a year ago. Drugs are on top and depending on the drugs you're taking I suspect you need to factor in between £1000-1500 / cycle now that HAH isn't an option. Happy to answer more questions about access fertility if you have any but it's been great for us and very easy to sign up.
- How flexible / open to tailoring the protocol and responding to failures you felt they were? Dr Taylor has been great. My first cycle with a different consultant we had good numbers but we had quite a bit of embryo fragmentation at blastocyst stage. Dr Taylor thought I responded well to long protocol so didn't want to change that but decided to use different drugs. Next time we had very little if any fragmentation. I also asked her opinion about ICSI as my OH had a comet test and one of the 3 parameters was very borderline and she was a little on the fence as it was so borderline she was trying to give us the best advice about whether it was worth spending money unnecessarily (which was actually reassuring) but we went for it and that time around I did get pregnant but sadly the baby's heart stopped beating at 8w. In summary I would say yes, certainly Dr Taylor will consider tweaks. I think they try not to make too many drastic changes at a time as it's good to learn from each cycle and just make tweaks here and there. I can only speak of my experience with Dr T though. I have to say I was a bit disappointed our consultant at the satellite clinic didn't suggest any changes for our second cycle with the exception of steroids in case it was an immune issue but that is part of the reason why we moved.
- How would you rate your communication with them? Did they keep you informed and updated about your treatment? Very good. One of the adv of the Lister is you can email short questions to the consultant directly and I've usually had a response within 24 hours. While you do see different nurses each time, I've never had anything less than a positive experience. I would refer to the Lister as a finely oiled machine! You will see a fair few people each visit but they're all specialists in what they do and it moves quite quickly. e.g. for scans you'll see the sonographer, then see a phlebotomist for blood tests, then a nurse to discuss where you are in your treatment plan and what happens next. They will all tell you what you need to know at the right time.
- What was their approach to scans / uterine abnormalities? Mine were all fairly straight forward so can't really comment too much. My lining has always been good (I've had acupuncture religiously for this) but the Lister sonographer pointed out what she believes are patches of endometriosis on one of my ovaries. This can't be confirmed without a laparoscopy but once I started reading the side effects so many things made sense. I've now made changes to my diet and feel a million times better and have much less painful periods, etc. This was never mentioned by the original consultant who performed all my scans for my first cycle whereas she spotted it and called it out straight away.
- What did you think about the monitoring? Honestly I thought post positive result it could have been a bit better. If i get a positive result this time they said they will monitor my progesterone levels more closely.
- What's their approach to low ovarian reserve / low AMH? Can't comment personally
- Anything else you think would be good to know? TBH I think they're a great clinic but it's worth finding the consultant you will feel most comfortable with. As soon as I met Dr Taylor I just felt comfortable and as I said before she really instilled confidence. They see so many women but I really did feel like she cared about our success and took her time to give us what she believed to be the best possible advice.
- What's their approach towards embryo batching for e.g. 6 cycles, then starting with transfers? Can't comment on this either. sorry
Well sorry this is a monster but I hope it's useful. Have a good day!
Hi Honeybee - thank you so much for a really thorough reply! This is super helpful! Dr Taylor sounds like a really nice consultant and I'll be definitely looking into using Access fertility, thanks for the recommendations!
Hello everyone, hope you don’t mind me joining you on here...
I’m due to have a consultation with Dr Nicopoullis on Friday, previously had a consultation with a different Dr at the end of the last year who recommended long protocol which I wasn’t confident about, so we ended up doing a 3 cycle mild package with Create instead. Before this we had done 3 high stim cycles with LWC which looking back I just see now as a waste of a lot of money. We had better results with lower doses at Create. Anyway, I just wondered if anyone on here has done a mild protocol at Lister with clomid/letrozole and menopur/gonal f? When last tested about 18 months ago my amh was 4.6pmol, I’m 33. But as this will be our 7th cycle, part of me wonders if to bother at all :-( as I’m doubting that I will get any better results with Lister than Create. Xx
Sunshine, we have always used Dr Nicollopus and think he’s great - from my experience I wouldn’t say he was known for a ‘mild’ approach but of course put your thoughts to him but he is the expert so I would feel confident proceeding with whatever he says even if that was not the mild approach you are looking for. I was on a pretty high dose but I have a baby and two on the way to show for it so wouldn’t have done anything other than what he advised. One good thing about James is I’m sure he will make you feel super confident that this will work for you because of your age, he was the same with me just don’t count him out if he doesn’t advocate the mild approach you are looking for because he knows what he is doing xxxx
I'm just wondering how things are at the Lister these days? I cycled there five years ago and it was diabolical; nurses were overrun, everything was running late, the St. Paul's clinic was closed due to staff shortage, so I had to go to Chelsea. It got to the point where I said I was thinking of abandoning my cycle just so that I could talk to someone.
Thing is, although I am very grateful to have had a child at ARGC, I'm at the end of the road with them for a second and also I just can't hack the stress of cycling there anymore (e.g. I waited three and a half hours with a full bladder there for an embryo transfer), so I'm trying to pick between Create and returning to the Lister again. I want somewhere that will make the process as stress free as possible. Any views very welcome.
We cycled there 3 years ago and then again at the beginning of this year. Both cycles were successful but the difference between patient volumes has made huge changes there. This time we were generally seen quickly, had appointments for the full stimms process made up front (but tweaked if needed) and everything from a comma perspective was a thousand times better. I’m thrilled to have a little boy and now expecting twins, and we had dr wren both times, and have always had Liz as sonographer and while Dr wren is a bit loud and quirky, she absolutely had our best interests at heart and we can’t fault them at all. Honestly, so much has changed it was like a different clinic. I do wonder what made them change - but whatever it was has had a big impact.
Smallbutmighty - we cycled at the Lister last year and have just done a freeze all cycle and would recommend them. Definitely haven't had any issues like the ones you mention from 5 years ago. Things must've changed a lot and for the better!
Hi all, I'm thinking of cycling with Lister. What are your experiences? Is there much personal attention and monitoring?their results not as high as argc or crgc, but still good. Hubby and I can get pregnant but suffer early miscarriage so looking into immune stuff with Dr Gorgy. Thanks all!
Hi Sunshine. Personally, I've had good experiences with the Lister. We cycled last year with my partner's eggs which resulted in a BFP and then I did a freeze all cycle last month using my own eggs during my maternity leave. I felt like we were both monitored very closely, me even more so because my oestrogen levels were too high so I ended up going back daily for blood tests until I was ready for EC. I cannot comment on immune issues though, sorry.
Be careful of statistics because they may be manipulated. The LISTER, while they are brutally honest about your chances getting pregnant, they never reject anyone and don't handpick patients. They will let older women cycle with OE but will give you the chances