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Hi I thought I’d be the first one to post on here.

Queenie - sorry you ovulated before collection that must be frustrating. I think katkat’s given some good advise there on natural cycle collection. Still it’s positive that you’ve had 2 chemicals out of 3, I understand you worrying about implantation issues now.

Onelastchance - your MIL sounds awful, what a thing to say! I hope trying naturally will work for you, it maybe give you same chances as Ivf is it’s just DOR and no other issues.

Katkat- I’m going to Nepal on family holiday. I’m actually originally from there but haven’t been back in years so will be going to the Kathmandu valley and then explore further afield, maybe to Pokhara, haven’t decided if we’ll go elsewhere.It’s DH’s first time he’s northern Irish and is excited about going.  Thanks for your advise regarding vaccinations that’s helpful. I figured I can’t keep my life on hold during this journey and not do things ‘just incase’I get pregnant, you never know when it’s going to happen...
Congrats on the 24week milestone!

MAC - sorry for your BFN trying naturally, that’s strange though on day 32 no AF. Are your cycles normally long? Thank you also about your advise on vaccinations that’s really helpful.

Dorchester - you asked me how I found ARGC, they are intense for conventional ivf, daily blood tests, sometimes twice a day on week 2, you have to take your medication at specific times, they’ll call you daily to give you instructions on when to take your medication. I’m not sure about natural ivf, if they do same intense monitoring I can imagine it’ll get quite expensive there for natural ivf as the cost of the bloods will add up, plus they like to do immune testing so that’s another whack on top. However I did prefer them to Create, hence I’m transferring my embryo there for FET. I think FET there isn’t as intense but they will tailor/ monitor you more than Create.

AFM- not much to report, I’m still waiting for Create to sort out paperwork to transfer to ARGC. I’ve also made an appointment with nurse for vaccinations to Nepal so will find out what I need. I think I’ll need hep a/b, typhoid, meningitis, possibly vaccinations against rabies...


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Babyhopeful - sorry about your last cycle, I know how you feel at abandoning the last cycle and put in what you’ve already got. I felt the same when my on second cycle there was no fertilisation. Esp as I’d had surgery and a miscarriage in between! I did get better result on my 3rd cycle even though it was a BPN. As the others say you never know, and it is a chance to get egg/s when you’re still younger.

Katkat - sorry to hear about your liver issues, hope it’s not too bad. Just wondering, question for both you and sunshine really, when do the nhs take over to start monitoring you and when are you able to start getting prescription on the NHS? I was thinking as we’re complicated cases and possibly high risk due to age, history of infertility, miscarriages, (also endo in my case), are they likely to monitor you earlier?

Sunshine - I’m glad you are not putting too much pressure on yourself for another and enjoying and thankful for your little one. TTC years really aren’t easy. So it’ll be nice to take some time off to enjoy what you have.

Mac - good luck with your incredibly long cycle

Emsy - welcome

AFM - I’m in a bit of a limbo. I’ve finally had my embryo transferred to ARGC last week. I’ve had typhoid injection today. (Couldn’t get appt at gp surgery for ages), need to get rest on Monday at a travel clinic. I need to have a consultation at ARGC. I’m not sure if it’s worth getting a scratch. What do you think? And I’m still not sure about when to do the FET, mainly cos not sure if I’m ready, and if there’s even enough time now. I could start acupuncture and try naturally if I do FET after holiday...I’m also not sure when to start looking for a job. If I start working now as a contractor then I’ll need to ask for time off for holiday for the 2WW, I’m also not very motivated to do much at the moment. I think I need to get my mojo back.


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Hi All I hope everyone is doing well during this crazy time!

Mac - thank you for your advice about waiting for a while after my holiday. Also regarding the issues you've been having with DH, I don't think it's uncommon in this journey. As Saltysea and Katkat put it beautifully, men are just wired differently. I've also been having a bumpy ride with my DH, partly I think I was over stressed when I actually started thinking about all the fertility stuff and partly over thinking things and as I am currently not working, my mind is working over time and becoming negative. What sparked it off was he made a dinner that was so HOT that my stomach was hurting all evening and I got really upset about it as I've told him numerous times before not to make the food too spicy but he's done it a few times. He obviously didn't do it on purpose, he had forgotten what I had said and didn't realise it was going to be so spicy, but the pent up frustration that had built up led it to be a full blown argument and brought up other things. I started saying we don't BD often enough around the time I'm ovulating. He said he doesn't want it to be completely stressful either. And like many of us, I do all the organising and research and he just turns up when I tell him what to do. I felt like he doesn't listen to me when I tell him about my findings but when a professional tells him, he's very attentive and alert, like its a light bulb moment! I don't even think its about the money that he is like that as its actually me that pays for the IVF as I earnt more and have more savings. I even started feeling resentful about this, thinking why couldn't he be better off financially so I don't have to worry about the finances, but that's stupid as that isn't our relationship and I had always insisted in the past that I would pay for the IVF with my savings. Then I realised he does also do some research but doesn't get obsessed with it like I do (which probably isn't very healthy) and when he does do some reading he gets anxious as well, that's probably not helpful if we're both anxious. I also realised that I was passing on my stress and anxiety onto him, sometimes I wish he would be more involved which I would find more supportive, but actually there's probably nothing right he could do as this isn't an easy situation and there's nothing he could do that'll make things better. He was really upset and said the last thing we want to do is start blaming each other for why we're not getting pregnant as we don't know the exact reason, and I realised that he is right and I felt really bad. And he does always come to appointments with me even if I tell him he doesn't have to as he doesn't want me to feel that I'm doing this by myself. Never the less I think it is good to air things out and tell each other how you feel and not bottle things up. We are back in a good place now. I'm glad that you and DH are also.

Also congrats on being PUPO, the number of good quality embryos you got sounds great! I think the others have already given you some good advice, the best thing is to try and stay relaxed if its possible, my acupuncturist would say keep belly, back and feet warm, you can warm your belly by placing you hand on it not a hot water bottle directly on it. And gentle walks are good for blood flow I think. I hope its a good result for you.

KatKat - thank you for all the information regarding the NHS, I hope you are taking extra precautions to keep away from this virus

Broodysingle - Did you start your cycle in the end?

Babyhopeful - I'm glad you had a positive consultation, it sounds like a good clinic to suggest the changes they've suggested for your protocol and also to try IUI before going to DE. How are you getting on?

AFM - I had to wait for until after my holiday to do FET, partly because I left it too late and I would have needed a medicated FET, ARGC also monitor you the month before and would like to do immunes i.e. test cytokine levels and get it controlled before starting cycle. I do have an appointment with Dr Gorgy to discuss the immunes treatment, I'm likely to need to LIT which ARGC don't do, however have been feeling nervous about suppressing my immune system with the whole coronavirus thing and Dr Gorgy's office also advises to postpone immune treatment if possible while this is going on. The other thing that has been bugging me since my excision surgery for Endo in April 19 is that I do still get pelvic pain, particularly on my sides. I'm worried its something on my ovaries or fallopian tubes, either they have left some endo behind or that it is something else like an infection, like undiagnosed pelvic inflammatory disease. I did ask my GP about this but she thinks unless I've been unfaithful I'm likely to be under low risk category. Never the less it still makes me feel uneasy and would rather have peace of mind. I did test positive for the Hidden C chlamydia test, does that make you more susceptible to PID, does anyone know? Anyone know how to get tested/diagnosed? The pelvic pain on my sides started after my first miscarriage which was particularly difficult as the whole pregnancy sac came out intact. The DR at A&E was trying to use forceps to get it out!
I'm also concerned I may have hydrosalpinx as they didn't do the dye test during my operation which is disappointing. I'm considering going to see Dr Davor Jurkovic for a scan and hycosy, but it's so expensive, especially as I'm currently not working, anyone manage to see him via NHS?

We'll have to cancel our holiday given the current announcement about no travel and restrictions, so I guess for the time being, all I can do is try and get a few things investigated and postpone cycling and immunes treatment. These are my last embryos before considering DE so I think that is why I'm more anxious and would like to rule out all other issues.
I do need to look for a job too, not that it's urgent, but I can't seem to get myself to do this at the moment as I'm worried about how I will deal with all the fertility stuff and work at the same time. I'm sure I'll get there somehow though..

I hope everyone is keeping well and safe during these uncertain times xx
 

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Congratulations Katkat!!!! That is really nice news and you truly deserve this after so long of trying and persevering in this tiresome journey. Lots of love xxx

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Hi All, this thread seems to have certainly picked up.

Queenie - Congratulations on the BFP and the scan with the heart beat!!!! Over the moon for you and keeping everything crossed and hoping you're managing to not be too anxious. What kind of thrombophilia issues do you have? Would you say prices at Serum were cheaper to UK or similar? If after using up all my frosties don't work I'm looking at options for DE.

Briss - sorry you're having a hard time of it late. What do they advise with regards to continuing with being peri? With regards to your DH's sperm and moving clinics, I think you mentioned a while back, have you thought about moving the frozen sperm if you wanted to move clinics? I can give you details if you need them. i had my embryo moved from Create to ARGC. the costs to move in UK wasn't too much, I'm not sure about international though.
Also with regards to being peri is sore boobs a sign. I seem to have sore boobs most of the cycle especially during the luteal phase

Dorchester - we already messaged. Create also suggested tamoxifen after my 2nd cycle where the egg didn't fertilise (1st time that's happened to us), I think they triggered me too early tbh, but when it came to the 3rd cycle they just said lets do bemfola and cetrotide again as I had good results in my first cycle with this. A day 3 grade 1 8 cell embryo banked. 3rd cycle had a day 3 grade 1 10 cell embryo transfered but it didn't implant. Good luck in deciding.

Sunshine - lovely to hear from you! Amazing your daughter 1yr old already! It sounds like you had quite a bad pregnancy and birth? I imagine psychologically it can take a while for you to get over something like that. Is you body back to normal yet? I don't blame you for not wanting to put yourself through the ttc journey again, it is incredibly difficult. I was going to prepare to do my first FET in April/May but when Covid took over I was secretly quite relieved I didn't have to do it!

Katkat, Shady - glad you're both doing well and nice to have you back on the post

Mouse - for peace of mind I would definitely get your thyroid and thrombophilia checked. Go with your gut instinct. I would have thought most clinics check this before anyway don't they? I think its best to rule out these things before embarking on expensive cycle after cycle. I have endometriosis and have been pregnant naturally twice straight after surgery for endo (unfortunately miscarried), but I now know that its played a big part in my fertility. The fertility clinics all said to me that it doesn't matter but the way I see it they've not managed to even achieve implantation once, 40K later even with blasts and good quality day 3. Of course egg quality is likely to play a big part but how I managed to get implantation so easily naturally after surgery then is a mystery to me.
Also, doing the same protocol where you got a blast sounds sensible but if you're not getting many eggs the natural modified or mild might be suited for you also. Milder/more natural will give you better quality eggs and cost less. Although your last cycle sounds quite mild anyway

Sorry if I missed anyone

AFM - I've had my head buried in the sand a bit with all the fertility issues since Covid started. I'm slowly starting to think about it again. I had telephone consult this week with UCLH regarding pains I still have in my pelvic area (mainly sides and sometimes middle area). Currently trying to decide whether I should just go private and fork out the expenses to see Dr Jurkovic for ultrasound and HyCosy. The pain on my sides came about after my first miscarriage. However, I'm currently not working so also trying to be careful with money.
I do need to start looking for a job too. Its hard to get motivated when you've been off work for so long!
My main concern is as I have endo I will need immunes treatment, I have high natural killer cells and cytokines (although was lower with my last surgery), worried if I need something other than intralipids it'll suppress by immune system which may mean I wont have the immunity to fight Covid. I do have low paternal antibodies as well, for this Dr Gorgy last time gave me LIT therapy which is basically DH's white blood cells injected into my forearm. It made me feel really sick last time and I found I got colds more frequently after that. I'm not sure if I want to do that again...Is anyone else doing immunes?

Also I'm not going to do any more fresh cycles so worried about using my last ever frosties... ARGC like to transfer 3 embryos if you're over 40(!), especially as immunes meds can be v expensive, but I'm hesitant in using everything up in one go with them. So I'm currently just mulling things over unable to make a decision currently to move things forward, which isn't ideal!

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Hi All,

I haven’t posted here for ages but I have been reading the updates regularly. I put my fertility journey on hold (aka burying my head in the sand) during COVID as I only have my last remaining frozen embryos and eggs left I didn’t feel comfortable suppressing my immune system with the COVID situation, and as I have endometriosis I do need immunes treatment.

First of all congrats to so many people on here, there really have been a lot of good news! Queenie, Mac, Mouse and Babyhopeful, so many congratulations, and I’m happy that you have finally got your miracles!

Mac - thanks for your update on donor egg, it’s good to hear about your journey as it’s something I may consider if my FETs don’t work.

Babyhopeful- although very happy for your boy, I’m sorry to hear about the breast cancer and hope you have had this treated now.

Sunshine - good luck with Create and baby no. 2. I understand your hesitance to not to get caught up like before, I too realise I can’t get overwhelmed like before.

Briss - I hope you’re doing ok. I understand the grief of loss of fertility and the desire of wanting a baby doesn’t go away.

AFM - while waiting during COVID, my pelvic pain started to get worse so I had various consults with various surgeons/ consultants who specialise in endometriosis and decided to have another laparoscopy to remove endometriosis as my only 2 pregnancies have been naturally after surgery to remove endometriosis which suggests that it played a big part in my fertility. And continued pain probably meant that endometriosis had grown back, I was told pain means inflammation. I had my surgery on Friday and I’m currently recovering. I went privately this time to get access to a good surgeon who specialises in excising endometriosis. He was surprised with the amount of angry inflammation he found considering my last surgery was only 2.5 years ago. He thinks if that’s how my body/ immune system was working that may have contributed to my previous miscarriages…

He also removed a fibroid which had been there for ages and something attached to the fibroid which he wasn’t sure if it was a fibroid or adenomyosis. I’ll get the biopsy results back in the next week or so. He recommended downregulating for at least 2 months to control the endometriosis and inflammation before a FET which fertility clinics previously haven’t been keen on for some reason. After downregulating I’ll commence with FET with ARGC.
I wasn’t going to transfer 3 embryos as ARGC like to do, but as it’ll be 2 years we’ve had things on hold, I might transfer them all in one go which still feels like a big deal..but I also have a frozen embryo in Prague and eggs at CRGH.
Not looking forward to getting back on the fertility train but hope I’ll get my miracle one day soon as well xx

I hope everyone else is doing well.


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