[Bloomoon]

Hi guys, 
Feeling a bit alone at the moment. Just wanted to share, hopefully make new friends.
Here's the story, as concise as possible. I have suffered from endo for as long as I have had periods, and have had different treatments for it (currently danazol). My gynae has referred me to a fertility specialist, as I just got married, and want kids, he seems nice, and (bonus) seems to know more about endo than she did. Still being told pregancy cures endo in this day and age  I ask you  If only it was that easy (both the pregnancy and the cure)
My first lap in 2001 confirmed moderate endo on my pelvic wall, mainly the left, and on the ligaments. No laser or excision, and then situation worsened over the next few years. Then danazol.
Going for my second lap and laser in a fortnight, and all he's said is he will be able to tell more about my fertility then. Afterwards, I go off the danazol, so he can check my hormone levels.
That's all I know but it seems quite vague. I have no one to talk to about my fears. My dh (who is amazing) says, wait and see, don't worry until it happens. All my friends either have kids, are pregnant, or too young too think about a family yet. I haven't ttc yet, but we had a period of not using any b/c and nothing. DH has been tested and is fine.
I feel emotional and scared. I'm avoiding pregnant friends. I can't get my head around what looks like a long road. Is this normal? Am I worrying about nothing? Any advice?

 

[sarahstewart]

Hiya

Welcome to FF !  I can't help as I don't suffer with endo but there are lots of helpful ladies on here that can help - think there is a starting out / diagnosis thread that will help you.

Just wanted to say Good Luck and feeling the way you do is normal - All my mates have babies and sometimes its hard to cope with all of it!  But it helps being here!

Sarah

 

[SWEETCHEEKS]

Hello Bloomoon,

Welcome to FF - Sorry i cant help with ur situation  , but im sure there will be someone on here who can give u lots of advise    - Iv heard of plenty of people who have got pregnant with Endo , so theres hope for you yet - and i agree with your DH - Worry about it too much, i know its very hard... but if ur doctor will be able to tell u more in a few weeks, u might well be worrying tooooo much  , so just wait & see - In the meanwhile, check other peoples posts with the same problems & see if u can find any info...

Hope everything works out 4u, keep us posted...

LOL , Sweetcheeks xxxxxx

 

[☼♥ Minxy ♥☼ ©]

Hi there

Sorry you've been diagnosed with endo But this site is great with lots of friendly ladies & loads of support

I suffered constant problems since I started periods at 12 but I was finally diagnosed with severe endo (stage 4) & dense adhesions when I was 19. Initially told I've never conceive naturally as so bad (both tubes stuck to both ovaries then all stuck to pelvis, both tubes blocked, endo cysts (endometrioma) on both ovaries, womb stuck to bladder, endo on bowel, in pod...everywhere a mess

I've had 4 laps/dyes over the years (excision, laser, diathermy, adhesiolysis) & since my last one 18mths ago I'm now living pain & endo free (tubes nolonger blocked but are still damaged)...something I'd never have thought possible. I took the pill from 16 & then back to back from the age of 19 until I came off to ttc when I was 34. And even though I was told it would never happen, I did conceive 15yrs ago although it sadly ended in termination. More recently we've been ttc for about 2 & half years now & I've had 2 early miscarriages this year. However, none of these are related to endo...I also have a bicornuate uterus (kinda heartshaped) & although had surgery to correct this, I have uterine adhesions...my 4th op (hysteroscopy) to remove these was in April this year when polyps (little growths) were also found...and just as an added extra, after numerous blood tests following 2 recurrent early mc's, I've been diagnosed with blood clotting disorder (sticky blood).

So what I'm trying to say is, even with the problems I've had, I've still managed to conceive...admittedly not sustained a pregnancy yet but that's not endo related & now consultant knows what's going on then he's positive it will happen for me.
I know it's easier said than done but do try not to worry too much about it...endo can effect fertility but hopefully as long as your tubes, womb & ovaries are uneffected then its more likely not to cause many problems.

There are many many women with endo who are able to conceive & go on to have happy & healthy pregnancies (if you check out message boards on
www.endo.org.uk
you'll see several ladies have recently had babies)...my mum had severe endo & had me (although she was 16 when had me !!) There's a separate forum on this website for women with endo who are ttc...it's under Starting out & Diagnosis.

Also, even though there may have been a time when you didn't take any contraception, there is only a 20/25% chance of a healthy couple conceiving each month...even without any medical problems it can take at least a year...I've some friends who have no known med probs (had all the tests) & one couple took 18mths for 1st & 2yrs for 2nd, the other couple took 3yrs with their 1st & have been ttc for 9mths with their 2nd).

I'm 36 (going on 37 ) & we're pretty much the only couple in our large group of friends who don't have a child...and 2 close friends told me this week that they're both pregnant with their 2nd...so I do understand how difficult it can be when everyone around seems to be popping them out like peas, but you will get there, just as I'm sure we all will...but really, do try not to stress & get over anxious & wait to see what happens at your next lap & then speak to your consultant about your options. There is also a window of about 9mths (sometimes even a year) following a surgical lap where the chances of conception are improved because everything beens "cleared out" so to speak.

Anyway, wishing you lots of luck
Take care
Natasha

 

[Bloomoon]

Thank you all for the lovely welcome and very kind replies.  Sorry to hear about all your difficulties, and I send loads of positive vibes and hugs  your way.  Guess I just felt a bit lonely, but I can see there is no need for me to feel like that any more. xxx I think you all could be right, I just need to relax and think positive, wait and see what my lap brings, and take things from there. I'll keep everyone posted, and just hope I can be this supportive for others at some point. Natasha, your story is inspiring, the way you stay so positive with this illness, I guess I'm lucky that this is only my second surgery for it, and hopefully will be positive. Good luck with you treatment, and thanks for your insight.

Sharon

 

[LizzyB]

Hi Sharon and welcome to FF

Here's the link to the endo chit chat if you want to join them:

http://www.fertilityfriends.co.uk/forum/index.php?topic=38044.0

Good luck with lap and laser tx......i was one of the lucky ones and it worked for me and i hope, hope, hope it works for you too

Much love, Lizzy xxx

 

[Bloomoon]

Thank you hunni  only one more question, Is it normal to feel so fluffy and girly when you're pumped full of synthetic male hormone? lol  Makes a change from aggressive and anxious. Glad you are all here xx thank you 
Cheers ladies xxx

p.s, you all gave me the courage to phone a pregnant friend tonite, just to be nice and check how she was. She was really touched, and it's all down to you!