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Anyone had a BFP with PCOS

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Discussion Starter · #1 ·
Hi All,

A few facts about us. TTC for nearly 7 years, me 30 & DH 34.

PCOS diagnosed when I was 24 years but probably had well before then, NHS hospital Clomid 9 months, ovulated once, had lots of other drugs to make me ovulate, still didn't work, several Cysts on ovaries due to PCOS, went to London NHS hospital & they were useless as well.

Now at The Essex Fertility Centre ( Private) since Nov 2003, had 3 failed IUI's, just had BFN (Yesterday) for 1st cycle of IVF, we feel absolutely devastated & we are so upset. Will we ever a child/children, doesn't seem possible.

Thanx for listening, I feel like time's running out, I'm 31 next month. ?:(.

Lisa
 

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Hi Lisa, welcome, come and join us in the PCOS threads, you'd be more than welcome.  You will find all the ladies on this site as great, also on the PCOS threads you can read some messages from PCOS sufferers who have had the BFP's we all want.  x
 

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Discussion Starter · #3 ·
Hi Nikki,

Thanx, I will have a look at the PCOS threads.

Lisa xx
 

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Hi Lisa,

Don't fret time is not running out for you - 31 is young and you shouldn't be worrying about that at all.  I am 36 and have 5 ICSI treatments that have all failed!  I am also at Holly House - had my first 2 treatments at UCH Hospital but then moved to Holly House and have had my last 3 attempts there.  What do you think of them there?  I think they are all very lovely but sometimes I feel like they are not giving me enough information and that sometimes they come up with things too late?!  We have got another consultation with them in a couple of weeks time as they've told me I probably need donor eggs (and did my last treatment with donor eggs which didn't work) but I want to be sure that it's donor eggs that I definitely need and not donor sperm?  They just don't seem to be able to pin point the problems.  I have the same feelings as you in that 'will i ever be a mummy' but we just have to try and stay positive and think that some day it will happen. 
 

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Discussion Starter · #5 ·
Hi RubyRoo,

Thanx for your email, I know I'm still youngish but we have been TTC for 7 years, I'm 31 next month & it plays on my mind alot, but there's nothing we can do about it.

I have been at H.H since Nov 2003, they are good at what the do but as you said they sometimes come up with thing too late & they also do not give us information we always have to ask questions, they also don't give us any hope that it will happen one day.

What is your fertility problem? low sperm count or your eggs, hope you don't mind me asking?.

How long have you been at H.H?.

I need to ring them tommorow for a follow up consultation to start IVF again.

Take Care

Love Lisa xx :)


 

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hi lisa, did you fix up your consultation with HH?  i'm going to see them next thursday to discuss what to do next.  basically our initial problem was low sperm count - hence the ICSI - but after 4 treatments and not really producing any grade one embroys they now think it might be a problem with my eggs too. i find it a bit strange to be honest that i should have a problem with my eggs.  anyway on the last treatment we used my cousin as  a donor but she annoyingly only produced 5 eggs and we still didn't produce grade 1's.  so now not really that sure what to do next.  i think they will suggest using donor eggs again but i feel a bit dubious about it all to be honest.  i have basically had my last 3 attempts at holly house so i suppose have been with them for the last couple of years.  sometimes i just feel like they same the same old thing every time i see them and don't really come up with anything new until they are really pushed!?  i'm sure when you see them for your follow up though they will pretty positive about you trying again.  did you produce a lots of eggs on a low dosage of drug - people with PCO usually do.  did they mention what grade your embroyos were or what your womb lining was like?  gosh i'm really waffling now so had better go.  let me know how you are feeling and how you are getting on. love x
 

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Discussion Starter · #7 ·
Hi Rubyroo,

Yeah, we have our follow up on Monday, which is very quick, so will discuss the next cycle of ivf.

I produced 30 follicles but they only got 5 eggs, the others were fluid as they were not mature enough, they were 16mm approx, the bigger ones were 21mm, yeah, pcos you do produce more but in my case fluid.

The lining was fine I think it was nearly 8mm which is good, the embryos were grade 2 & grade 2-3, they don;t have to grade 1 thou, do you think they have to be?


I started on fostimon 225 mg then towards the end William said to have 175mg of fostimon as I produced lots of follicles, I feel for the next IVF they should start me on a lower dosage to get lots of follicles at the right size.

I glad I'm not the only one who has been there a long time, I talk to ladies on fertilityzone.co.uk & there are so many of them had ICSI who get pregnant first time, I thought it was easier if it was low sperm count, obviously not in your case. It's so expensive isnt it but as long as we get there "it's only money"!!!

Take care

Love Lisa xxx
 

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hi lisa,
glad you found the site, it sure does help.
i too have pcos and have been ttc since i was 19 and a bit before that too,i'm 33 now,
we are about to go down the d/e route after 2 failed ivfs and a m/c.

the age thing really does get to you somtimes but age really is just a  number.
sorry your treatments have been unsucsesfull,wishing you the best of luck with future treatments
Dizzi
 

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hi lisa, hope you are ok and great news about you getting a follow up appointment so quickly too.
i've never heard of fostimon - perhaps it's one they use for people with PCO?  i am usually on gonal f which i think quite a lot of people are on.  i don't think all embryos need to be grade 1 and keep being told that not everyone produces grade 1 embryos so i don't think that's a massive problem although i do believe the best chance is having grade 1's, perfect womb lining etc etc. but then again you can never really tell.  as they always tell me people get pregnant with low grade embryos and poor quality womb lining and people with perfect treatments sometime don't.  it's all so confusing and it's just a complete lottery i reckon.  anyway hopefully we will both get there in the end - it just seems so sad that it takes all this to get us there when it comes so easily to others.  let me know how you are getting on anyway. hope you are having a good day x
 

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Discussion Starter · #10 ·
Hi Rubyroo,

Fostimon is the exactly the same as gonal-f, I had gonal-f on all of my IUI's, but fostimon is cheaper & as I needed lots of it it worth having.

Suprecur (down regg) is good for PCOS as our consultant told us.

No, you don't need grade 1's, a lady I talk to at Essex Fertility Centre has a friend who Had grade 4 embryo's poor & conceived with twins, so as you say it's the lottery game!!!, my lining was nearly 8mm which is normal. Why didn't the embryos stick then!!!!, yeah your right why do we have to be put through all this when there are other popping them out!!

chat soon

Love Lisa xxx
 

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Discussion Starter · #11 ·
Hi Dizzi,

Yeah, it does help lots.

I thought had been TTC for a long time, you have for a very long time.

Have you been advised to have d/egg? or did you have enough of IVF?

Our follow up consultation is Monday 18/4 so prob start cycle 2 IVF in May.

I know age is just a number, but it does play about in my head!!! to much of course!!

take care

love lisa xxx

hi lisa,
glad you found the site, it sure does help.
i too have pcos and have been ttc since i was 19 and a bit before that too,i'm 33 now,
we are about to go down the d/e route after 2 failed ivfs and a m/c.

the age thing really does get to you somtimes but age really is just a number.
sorry your treatments have been unsucsesfull,wishing you the best of luck with future treatments
Dizzi
 

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hi lisa, how you doing & feeling? how did you follow up go today?  we've got ours on thursday so i'm really hoping that i'll be clearer on what to do next after that.  had to spend friday night and sunday night with a pregnant friend of ours and by the end of it i felt like i couldn't even look at her anymore.  she got pregnant first time with IVF and her baby is due in 7 weeks time - it's SO unfair!  anyway i really hope your appointment was good and that you got some answers too. have you decided on next steps.  anyway roll on thursday that's what i say.  love x
 

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Discussion Starter · #13 ·
Hi Rubyroo,

The follow up yesterday went really well, William tried to give us all the info as to why it didn't work. He said the Embryo's were a good quality but were slow at dividing into cells, they go from (as you prob know) 2,4,6,8 & so on & ours went into 5 cells which means only 1 cell divided, they have to be grade 1 to go to Blastocyst which is more successfull in a pregnancy as they live longer, there were lots of small follicles (16mm) which obviously were not mature enough, hence, only getting 5 eggs. Lining was 10mm which is really good, (& I did not have Viagra this time to help).

I was on the Stimms (Fositimon) far to long as I have very sensitive Ovaries, 18 days in total, so he said he will try & reduce that by half & give me a very high dose at the beginning to get lots of 18mm upwards follicles, I will be having Gonal-F this time & for the down reg I will be having one injection which covers the whole cycle of IVF, i've forgotten the name of it, it begins with "P", is it Purgeon? :-\, they don't give this at the start as they don't know how your body will respond but it's the same as Suprecur down reg, it saves having injections every day other that gonal-f. (but it's more expensive, typical!!)

I had 10 questions to ask & he answered all of them, which is good, I will need to have a natural AF first then can start down reg drug. My periods are not regular & I haven't had a natural one for a long time, have been taking Provera to start them so if I haven't had one in 6 weeks to give them a call & I will have a scan & start provera.

He said we will be taking a risk next time to get lots of mature follicles but hopefully to prevent OHSS (Scary!!!!), he did say it will cost alot more this time (GREAT!!!!)

Feel more positive, I know the first time is a "Lottery Game" but hopefully the 2nd time it really does work.

Angela (receptionist) was so lovely, we chatted with here for about 10 mins & she was going through the whole devastating period when you look at the preg test, & how they have so many new couples. she's really nice.

How are you feeling???, god that's so unfair you having to spend time with a preg friend, did she talk about babies constantly?, it really hits you when you see preg ladies, what was her problem with TTC?
U take care

GOOD LUCK ON THURSDAY. (Who are you seeing)

Love Lisa xxx ;D :) ^hugme^
 

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hi lisa i'm glad your f/u went well,
theres so much info to take in,  i'm glad william answered all your questions.
so waiting for AF, then its kick off  ^reiki^

well best of luck to you both, keep us posted.
Dizzi
xx
 

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hi lisa,

sounds like your follow-up was successful then.  i know exactly the one-off injection you mean as I also had it - it's called prostap and it's much better because you do it on day 21 and then you don't have to worry about doing anything else until you come on again.  i think it costs £130 so it's not too bad.  why did he say it would be much more expensive this time though? is gonal f more expensive than the other drug you were taking before?  anyway it all sounds very positive and the 1st treatment is always a bit trial & error and then they can adjust things when they know how your body reacted and stuff.

i also saw william yesterday and had a good consultation with him.  he told us about a new sperm test they have started to do in harley street in the last few months and that might tell us a bit more about whether the sperm that they pick out for icsi have any genetic faults in (even though they look alright under the microscope they say they still might not be).  that way if they say the sperms are all no good then we will know that we need to do the next treatment using my eggs and a sperm donor.  we went through all the various options with him and he was very good.  hopefully my hubby will have this test done in the next week or two and then we might be a bit clearer on what to do next.  we still have the option of using my cousin as an egg donor too so it seems we have a few options but just not sure what one to take yet - but hopefully soon we will.

my other friend that is due in 6 weeks basically had blocked tubes (got pregnant naturally a couple of years ago and then had an eptopic) so they told her she needed ivf - which she had - and which worked first time which was very difficult for me!

anyway, it's friday - hoorah!  hope you are ok, love ruby x
 

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Discussion Starter · #16 ·
Hi Ruby,

William's lovely, isn't he. That sounds really good about the sperm, hope it turns out ok, that's good that he's having that done quickly.

Thanx, for naming that drug Prostap, I was thinking it was Puregon!! that's a stim drug thou, Angela (Receiptionist) said it's more expensive.
Fositimon was much cheaper, Gonal-F is 115.00 per injection & that covers 3 dosages I think, I know our IVF was 3200.00 so the drugs were 800.00 so next time it will be well over a grand!!!! I wished we win the lottery!!!!!

Take care

Love Lisa xxx
 

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Yes a lottery win would definitately be helpful wouldn't it.  We've spent £25,000 so far and have remortgaged our house twice already - and owe both sets of parents money too - what a nightmare!  Anyway at least we both felt pleased with William - I'll probably start treatment in a couple of months as I'm seeing a chinese herbalist at the moment and he has told me I should give it a good couple of months for it to get into my system to get the best results. He told me he can improve my womb lining and embryo quality. I'm a bit dubious about it to be honest but I have to have faith in him and give it my best shot.  If you are not starting for a while either maybe our treatments will cross over a bit?
Anyway have a nice day. Love Ruby  ::)
 

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Discussion Starter · #18 ·
Hi Ruby, OMG!!! how much!!!, we have spent 6500.00 so by the end of next cycle it will be 10,000!!!!! can't believe it, our's is sitting on a credit card!!! need to phone about putting it on the mortgage or re-mortgage, there's nothing else we can do to pay for this, I wish we were the lucky ones to have FREE ivf, the 1st go, I know ladies who had 2 free tries, so unfair!!!!!! but good luck to them.

I've always been dubious about chinses herbs but alot of women use them & they say they are successful especially in hormones, acupuncture is suppose to be good as well, it's more money thou, that we don't need.I'e tried Agnus Catus that was good it seemed to some good.

Do you go once a week or are you having the herbs at home, is it very expensive?
We will prob start in 5 weeks we may meet up in the waiting room!!!!
Have a nice Sunday

Love Lisa xx ^bye^  lots of ^fairydust^

 

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Discussion Starter · #19 ·
Hi Dizzi,

yeah, it af doesn't arrive within 5 weeks then I will have a scan then take Provera, hope af comes naturally tho.

take care

Love Lisa xx  ^bye^
 

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Hi Lisa,

Did you know though about the free IVF treatment that everybody is entitled to from April 1st this year?  I've been talking to my useless GP about it all but basically everybody is entitled to a treatement providing - they are under 39, have been ttc for at least 3 years, have no children etc etc. but I think that I do actually fit into that category and maybe you would too?  Not sure about waiting lists and stuff, am still trying to find out all the details - only problem is that the treatment has to be done at Homerton Hospital and I feel that as my case is so complicated maybe i should stick to Holly House for my next treatment even though it will cost another small fortune? Not really sure what to do?  Have you heard anything about all this?

Now about the acupuncture & herbs - i've started to see someone called Daniel Elliott in Harley Street who I've heard lots of good things about.  It's obviously another expense we don't need but it's not too bad compared to some other places.  His consultation was £60 and his follow up's are £45 which are every 2 weeks so not too hideous.  I have had acupuncture and he will start me on the herbs and stuff tomorrow I think (which are quite cheap i think also - something like £20)?  He keeps telling me that it will improve my womb lining and egg quality so I have to try and believe him but to be honest I'm not really that sure? Oh well, I can only try!  I've been taking agnus castus too but not really sure why? I just started taking it a few months back and have carried on.  What did it do for you?

Anyway, I'll stop waffling now and leave you in peace!

Hope you are ok?
Love,
Ruby x
 
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