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Discussion Starter · #1 ·
Hi

I had my Nuchal Fold Scan on Wednesday and the midwifes first measurement was 2.7 but when my partner came in and she was scanning again she noticed that at a different point it was 3mm, she said we had to see the midwife straight after the scan as 3mm is the cut off for the normal range.

I had my blood test and am now waiting for the combined results, I am 24.

Has anyone had this before and gone on to have a low risk result, I am really worried and I just don't know how to feel about all this???

Sorry for the rambling and thanks for listening

Andrea xxx

 

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Andrea,

I did not want to read and run, I can not offer you any advise. But I do hope your MW can put you at ease immediately ^hugme^ ^hugme^ ^hugme^.

Take care of yourself
Mummy P x
 

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Hi Andrea

I also didn't want to read and run - I think the best thing to do is try and wait for your blood test results and then maybe get a second opinion. 

I haven't been there before but everyone talks about the Fetal Medicine Centre in Harley Street where they specialise in all these tests.

I really, really hope everthing is fine and by the way yes I have heard of lots of people who have had higher results than yours and everthing is fine!

^hugme^

Axx
 

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Andrea  ^hugme^

You are not out of the normal range, try to wait until your blood results are back to give you a overall risk factor before you start worrying ( i kno weasier said than done!)

That measurement is only as good as the sonographer measuring it........you think they would only need to be very slightly out and it will make a big difference to the measurement.

I have heard of ladies having a much bigger measurement and having healthy babies.

Fingers crossed for you xxxxxxxx

Please let us know how things go

^hugme^

Nic xxx
 

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Lou has just given you the link I was about to post :-* so I won't repeat.

A think nuchal on its own is only an indicator that they 'may' be something worth looking at. The nuchal fold screening will only give you a risk, not a diagnosis.
The bloods and the fold result together will give you a basis to decide (or not) to have further invasive tests which can give you an accurate diagnosis.

Try hard not to jump to conclusions yet as the scan is not foolproof and you could be worrying about nothing.

Wishing you the very best ^reiki^

Deb
 

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Discussion Starter · #6 ·
Thanks Lou & Debs for your messages.

Sorry I didn't mean it was done by the MW it was an advanced practitioner.

I am trying to stay positive until we get the combined result, as I know once my age and the bloods have been factored in the results can completly change, but I am also trying to prepare myself for what comes next if it comes back as high risk......It is going to be a long few days  ^idiot^


Thank you for the link, I am going to take a look now

^hugme^

xxx
 

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Discussion Starter · #7 ·
Hi Mummy P, Amelia & Nics and thank you for your messages.

The practitioner told me that it recently changed from 3.5mm down to 3mm for the Nuchal.

I am trying to stay positive as I know until all the risks are factored in (age/blood + nuchal) I have not got an answer and it can all change.... It is going to be a long few days ......

I will keep you posted

xxxx

 

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Hi Andrea

Hope you are feeling okay this morning.

If you have a look back at my old posts from January, you'll see that we went through a similar thing to yourself at our nuchal scan.  We had a measurement of 3.1mm I think, and came out at very high risk at 1 in 26, although when they applied the blood results as well it came down to 1 in 47. 

It's a very difficult time, but you've already been given some really good advice from Aweeze and Charlie's Mum.  Suffice to say, all turned out absolutely fine with us.  After getting those odds, we made the decision to have another more detailed nuchal, and then a CVS (an early invasive diagnostic test, like an early anmio) at the Fetal Medicine Centre in London.  It came out fine i.e. no chromosonal abnormalities and we were very relieved.

That said, CVS was the right decision for us and it isn't for everyone.  My age (36) no doubt had an impact on our results, and as Aweeze has said, size of baby is also relevant.  We've just found out that our baby is huge and measuring 3 weeks ahead at 28 weeks, so looking back maybe that had something to do with it as well.

Nuchal fold is just one indicator of chromosonal issues, and at the FMC they looked for not only nuchal fold but also other factors like the presence or otherwise of the nasal bone, and the leakiness or otherwise of the tricuspid value in the heart, results which they combine with your age and the blood tests.  They are able to build up a much more accurate picture of the risk factors this way.  Our nuchal at the FMC improved our odds to 1 in 100, but we still decided to go ahead with the CVS as we just wanted to know for sure.

I hope I've been clear, I find that reading back on these posts I often tend not to be, despite my best efforts.  Please do PM me if you'd like to chat, I'd be happy to.  For what it's worth, our current NHS hospital doesn't think 3mm was anything to worry about - they only refer for further investigation of result above 3.5mm and they regard 3mm as just the upper end of normal...

I know this is a really difficult time, but fingers crossed all will be absolutely fine and I'll be thinking about you.

MC
xx
 

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Discussion Starter · #9 ·
I have just got my results and we are high risk - 1 in 217

We have a midwife appointment this afternoon to discuss it further ..... I just feel numb  :'(

x
 

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Andrea, sorry to hear your results were not what you were hoping for.

I hope that you get good support and advice from those around you and are able to make the right choices of further tests or not for yourself.

Others here with much more experience than I in these matters have already given you some great pointers, but I just wanted to send you  ^hugme^

Jane
xx

 

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Honey

I am so sorry for all the worry

Is it worth you checking out the Fetal Medicine Centre in Harley Street - I know people have had lots of help from them?

Axxx
 

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Hi,

So sorry to read your post  ^hugme^

I had a high risk nuchal last year - mainly due to large nuchal measurement - and did opt to have an amniocentesis done. The results were fine and I gave birth to a very healthy baby boy in February.

Before you went for your nuchal assessment, did you and your dh discuss what you would do in the event of a high risk result? We had and found that in the shock of getting a high risk result, we already knew what we would do and stuck with that decision rather than letting the shock of the result change our mind - if that makes any sense?

It's true what others are saying in that it may be worth going for a 2nd opinion at the FMC as they are the pioneers of this assessment, BUT if you do, you must consider that they may come back with the same, better or worse results. That's why we didn't go and get a 2nd opinion (and the MW who did ours was accredited by the FMC which I think they all must be do carry out a nuchal assessment). If you are thinking you cannot go ahead with an amnio or cvs then it might be worth getting a 2nd opinion though just in case if does give you much better results and helps you relax and enjoy your pg without the worry you may have with the results you currently have  :)

Do remember though that all this is just a risk - it is not a diagnosis and the chances are very much stacked in your favour of your baby being perfectly well. At the time, I did question how they arrive at 1:250 being the cut off for high risk and was informed by the consultant that it is to do with how many cvs/amnio's the NHS can afford/have the time to carry out if everyone who has a 'high risk' result went ahead with the invasive tests. I think it used to be different than 1:250.

I do hope that the MW can help you and your dh arrive at the best decision for you. If I can help at all, or answer any questions concerning cvs or amnio as someone who has had one then please do pm me or post here.

Good luck  ^hugme^

S xxx
 

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If I remember rightly my was 1 in 300 - although he was born sleeping he was 100% healthy.

keep strong.

XX
 

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Hello sweetie,

Try and look at it this way, the risk is less than 0.46% So the chances of bubs being healthy is 99.54%

Big Hugs

Bell xx
 

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Hi,

I think Bell has put it really nicely into perspective - we are waiting for our triple test result and I am fully expecting our risk to come out similar to yours due to our ages. Our hospital doesn't do nuchals although our sonographer did take a measurement as junior was lying in the perfect position and it was very low (1.1mm) but I am not taking that into consideration as it wasn't an official test.

1:217 means that if you put 217 couples in a room, 1 of them MIGHT have a baby with down's - which is another way to look at it. 0.46% risk sounds even better.

We have already decided not to have any further tests and that what will be will be, but this isn't for everyone and is a very personal choice.

Take care and good luck.

Karen x
 

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Discussion Starter · #16 ·
Thank you so much for all of your replies, I went to see the midwife and she just went through the options we have.

Taking on everyones advise I have called the Fetal Medicine Centre and I have an appointment tomorrow at 3pm, as I am 13wks and 5 days tomorrow I only have a short space of time to be looked at again. I will let you know the results when I come back

Thanks again for all of your support it is so much appreciated  ^hugme^ xxx
 

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Hi Andrea

I am so sorry your having to go through this. 

^goodluck^ for tomorrow  ^reiki^  ^reiki^  ^reiki^

x x x x x
 

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Will be thinking of you tomorrow

^hugme^

Jane
xx
 

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Andrea ^hugme^ hope tomorrow brings you answers.

Do contact ARC www.arc-uk.org if you need someone to talk to. Can't reccomend them enough

^fingerscrossed^ for you

Deb

/links
 

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Andrea

Good luck for tomorrow.  You'll be in really good hands, the FMC were wonderful with us.  It's worth ringing ahead to check waiting times as they rarely run to schedule, we went in about 4/5 hours late, but it didn't matter at all as I knew we were in the right place and I was just so grateful they had fitted us in.

For what's it's worth, your results came out much better than ours, and we were fine in the end.  Fingers crossed all goes well tomorrow.

Sending  ^hugme^ ^hugme^

MC
xx
 
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