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Discussion Starter · #1 ·
Dear All,

A newbie here looking for support and advice (and hope I will soon be able to reciprocate)! :-*

I wonder if any of you have insights to share with me? Here's me:

1) Diagnosed PCOS 7 years ago.
2) TTC 14 months now :mad:
3) HSG (V. PAINFUL!!) showed blocked left tube, which the doc said had a 'kink' in it, filled with fluid.
4) Laparoscopy, hysteroscopy two weeks ago, which revealed a mass of adhesions from a burst appendix (when I was 11). Surgeon said this covered 80% of my right tube, and that he was able to remove two-thirds of it.
5) Have been advised to consider IVF -- I am nearly 35 and DH is nearly 41 ^uts^

Am seeing consultant again on Monday, and wonder what kind of questions I should be asking?

Biggest worry is that I am currently London-based, but am moving to Cambridge very soon. Will this present any obvious problems? Have heard of Bourn Hall, but would be interested to read others' experiences.

Would love to share with others re: the above, or learn a bit more from you all. Am a bit up and down at the moment.

Love and best wishes to you all,

Jaffa
^sunny^xx
 

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Hey Jaffa,

Welcome to FF! You have defo come to the right place for support and advice.

If you take a look at the ICSI board there is a thread in there called 'Bourn Hall'.

Also, why not pop into the PCOS and Ivf boards?

Wishing you lots of luck.

Laine x
 

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;) Hi there!

I've just started my 1st ivf at Bourn Hall, so far my experiences have been very positive. I've met several girls through the site who've been there & had success, check out Norfolk/suffolk/cambridgeshire girls in meeting places as several of us are BH girlies.

As for your history, well how bizarre, as mine is;

* PCOS
* at least 1 blocked tube
* probable adhesions due to 2 gynae surgeries
* have been advised to have ivf (ttc 2 years)
* am nearly 35

Are you my unfortunate twin!!!!!!!!!!!!!!!!!!!!!!!!!!!

Keep in touch

Love P XXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
 

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Discussion Starter · #4 ·
Dear Laine, Pocahontas and Chick66

Thanks so much for your welcoming messages ! ;D

Am thrilled to see that I have two 'twins' (Pocahontas and Chick66), what with the PCOS, adhesions, tube nastiness and so on. I hope you have both got any problems you were having with these conditions under control. ^thumbsup^

Physically, I don't feel too bad, and was up and about pretty rapidly after the surgery. HOWEVER, a recent phenomenon has started with me, which is making me very sad and, I suspect, is what prompted me to check out this board in the first place ....

.... After the initial shock and surprise about the prospect of IVF, I am getting very nervous and low. I know it's only been 10 days and I have yet to see my consultant, but I feel frustrated and very out of control. I've even been snapping at my DH -- well, yelling -- as he is very sympathetic when it comes to the physical pain, but is not so good at the mental/emotional side. For the last two days I have felt as though I am cracking up: DH went for a job interview on Monday and it seems he was not successful. He has been preoccupied with this and is (understandably) disappointed. I worry that our need for IVF (and the obvious financial implications) are making him feel even more stressed about not being selected. In the meantime, I am trying to persuade him to read a bit about IVF so we can ask questions at the Doc's on Monday, but am probably being a little pushy. :-[

Please forgive my blathering; it must be frustrating for those who are already up to their necks in treatment. I just feel so nervous and confused right now.

Thanks for giving me an outlet!

Yours gratefully,

Jaffa
xx




 

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Hiya Jaffa

Welcome to the fertility friends site

Its a brilliant place and i love it!!

I too have pcos (diagnosed 1994)
I have endo too.
Just recovering from surgery after having adhesions removed and endo too!!

Havent had the hsg!! Had a dye test during my recent surgery

Only one tube and ovary lost the other one due to endo and adhesions.

Look forward to seeing you around
nice to have met u
positve vibes and baby dust coming ur way
 

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Discussion Starter · #6 ·
Dear Emily

Great to hear from you. It is good here -- I had a go on the chat room earlier (first time ever) and it lifted my spirits massively.

I hope your'e feeling much better after the adhesiolis. How long ago did you have it done? Are you up and about now? I didn't go out for a week, just pottered around at home taking it easy. I hope you're well on the mend! :-*

I HAVE had an HSG and for some reason I found it much harder than the laparoscopy. Sounds mad I know but I was not warned about pain relief and the procedure was problematic because of my blockages. I hate to sound dramatic, as I know most people's HSG's are pain and problem free. But for me the pain was unreal. Sorry to have to tell you that :( In fact, the HSG is putting me off the prospect of having IVF -- absurd I know!

Thanks so much for the positive vibes -- please accept bucketloads from me, too! ^Cuddle^

Hope to speak again soon,

Love

Jaffa
xx
 

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Hi again jaffa

Sorry to hear you're feeling low. I've felt like this alot, but felt better when 1) i found out what my treatment options were (ivf), 2) decided to go for it & initiated appointment at bourn for 2nd opinion & 3) actually starting treatment was a big relief, at least i feel like i'm DOING something. Of course i'll feel awful if it fails but at least the docs will know what's happening, ie did i produce eggs, did they fertilise etc.

It takes a long time to sink in & come to terms with the fact that we need IF treatment, it's almost like a grieving process as we've got to let go of our ideas of how it might have been. The positive side is that technology is there to help us! & there are many successes!

Keep as strong as you can but it's ok & natural to get down about it all sometimes. FF is there to help you back up!

So, am hoping that you too will feel better after monday when you see your doc, is he a regular gynae or fertility specialist? Are you having NHS ivf or self funded? i'm on the waiting list but is very long so we're scraping the £ from somewhere as i don't want to waste any more time.

It must be hard also for our DH, worrying about £ & us, mine doesn't really talk about it a lot, but hopefully this will change as the treatment becomes more intensive.

Good luck for your appointment, let us know how you get on.

Lots of love P XXXXXXXXXXXXXXXXXXXXXXXXXX

^daisy^
 

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Discussion Starter · #8 ·
Thanks for your kind response Pocahontas. :D I guess I'm just in limbo right now.

I'm just seeing my regular gynae on Monday, and am a little worried about how to play things: I live in London now but will be living in Cambridge by September. I don't yet know if we qualify for NHS funding under my London HA, and anyway we -- like you -- will probably self-fund in order to try and speed things along. Got the brochure from Bourn Hall today; they say 6-8 weeks before an appointment, but they look very professional. Incidentally, my poor old DH went to give yet another SA at Barts in London today, and he came home raving about how nice and cutting-edge the unit was. It's all a bit bewildering to be honest! :mad:

Am glad to hear that my up-and-down feelings are 'normal'; yesterday I thought I was losing the plot :-\ Poor old DH fled the house! :-[

You are impressively upbeat and determined ^clapping^ . Thanks for the pep talk and best of luck with your treatment. I look forward to hearing how you and DH get on, and wish you all the very best!

Love from

Jaffa xx ^sunny^
 

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Hiya again Jaffa, it's not long until you move in september! Maybe you can meet up with us, we've been meeting up in Bury St.Edmunds, about 30 mins from Cambridge.

I thought i would mention that i'm not sure if there's any funding for IF treatment in Cambridgeshire at the moment, maybe changing next year? (check this out with Hun or Floss as they are from the Cambridge area). This is so awful & ironic as you probably know the worlds 1st ivf baby was from Bourn! I live in suffolk, there is some funding, but not total & i've been told the waiting list is 2 years approx (hence the need to self fund, can't wait that long at my age!)

Are you on or near the top of the list in London, do you know what waiting times are? Will all this change when you move? Try & cover all your bases.
Have heard good things about Bart's too, girls in Norfolk, (NHS), have part of their treatment there (i think)

Was at Bourn yesterday, i always joke i think i'm there for a minibreak as it's so lovely! (if only!) Start stimms tonight!

Take care, love P XXXXXXXXXXXXXXXXXXXXXXXX

PS I lose the plot on a regular basis, though i'm sure DH thinks 'what's new' !
 
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