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Hi

Can  anyone tell me what the symptoms of endo are? Im seeing a consutant on 23rd, i would like to go fully armed....

:)
 

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Hi. There are som many different and varied symptoms for endometriosis, which is why it often takes so long to diagnose.

For instance my symptoms consisted of cystitis (three weeks out of every four) and lower back pain on my right hand side for almost all of my cycle. Ironically, the only time I was relatively pain free was during my period.
The only reason I was diagnosed with endo so quickly was because my GP trained as a gynacologist and was quick to spot the fact my symptoms coresponded with my menstrual cycle.

I found this site quite helpful for endo information and support. http://www.endo.org.uk/info.html
 

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The only symptoms I had from endo was an aching pain from day one to about day 4-5.  Although it's in my bladder, I've never had any of the problems the endo specialist asked about - never had a water infection or cystisis.  I've also got in the pouch of douglas but that's never caused me any problems.
 

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Hi My symptoms included , extremely heavy periods (with clotting), hot flushes, mood swings, pain concentrated down my right side (including numbness in my legs), painful intercourse, nausea, dizziness and stabbing pains in various parts of my body (abdomen, back, legs).. But I know things vary for different people.
 

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Hiya here are my symptoms

painful periods
heavy periods
painful intercourse
painful ovulation
backpain
pain in legs around period only
headaches
vomiting
diarheoa/constipation

hope that this helps

having a laparoscopy is the only way of being diagnosed with endometriosis.

If theres anything more i can do to help feel free to send me an instant message or add to the thread

good luck for ur appt

 

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Hi!

Emily72 got it in one with her list!  I sometimes get a migraine around when a period is due and can faint when the endo pain is particularly bad as well!

Other than that you might feel like curling up in ball with a hotwater bottle, trying really good painkillers, which are anti-inflammatories, prescribed by you GP and a large glass of brandy can numb the pain a little!

Men have it easy!

Love,

ElaineR x
 

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Hi Mowgli

It took me 5 years to get anyone to take my symptoms seriously & get a consultant referral.

He diagnosed it immediately from my symptoms then perfoirmed a laparoscopy to be sure & to look at the extent / location.

My symptoms were agonising pain with some (but not all) AF's, that would come on the day AF started and last for 3-5 days.  So bad I was bedridden & in constant screaming pain that no painkillers touched, plus diarhoea.

I had this misdiagnosed as cystitis and having to small a cervix.

If you think you may have endo a decent gynaecologist will soon spot it.  It's the GP's who are seemingly clueless.

Good luck!!

Vicky x

 

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crikey!!

am new to the site, and came looking for info re endometriosis, and all my symptoms are here!!! We had 1st appt with consultant to start investigations for infertility, and after many questions, he has suggested I may have endo.

I have struggled with many bizzarre symptoms for 18months since stopping the pill, e.g nausea, dizzyness+faints, abdo pain, hot flushes, diarrhoea+constipation etc, and have lost count of the times my gp has suggested a course of antidepressants!

Do they not have training about this, or do they think that we are all irrational, 'hormonal' and need prozac???  ( ;D have now got off my soap box! sorry!!)

many thanks chics x x

Rach
 

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Hi Rach

I feel just as frustrated as you when it comes to GPs lack of knowledge of endo.  I've had endo symptoms from the age of 21 with persistant low back pain and severe stabbing pain in my bowels during af.  I was finially dx 15 yrs later during a lap.  I spent a lot of those yrs feeling 'soft' for not coping with af when other woman manage fine.  I was also told I had ibs.  The thing that naffs me off the most is that I told my GP that I was scared before af as I knew the amount of pain I was going to be in.  All he did was add pms to my list of misdiagnosed ailments.  This does seem to be a common theme amongst endo sufferers. Anyway moan over  ;)

I feel I've learnt a valiable lesson and that is to be more assertive and not to accept what drs tell you if you feel it's not right.

I'm gald you have found this site.  :)

Good luck Rach

love

Becca
x
 

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Hi Girls, :)

I've always suffered with extreme pain at the start of AF, which affects my legs and back particularly. I too have fainted with the pain in the past and at the very least have had uncrontrollable cold sweats with nausea. My GP's never took me seriously and I too thought I was a wimp for not 'dealing' with period pain like everyone else.

I've just had my laproscopy and was surprised to hear that I only have minimal endo. So it seems that either I am a wimp or at least its not the endo causing my symptoms!

Don't know what to think but at least I don't have to add endo to the list of things wrong with my repro organs!

Cathya ^wave^
 

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Hi Cathy

You are definitely not a wimp.  The severity of endo has no bearing on the amount of pain it can cause.  Sadly it is nt unusual for minimal endo to cause severe pain. 

I had a few adhesions snipped during a lap and that made all the difference and stopped me having stabbing pains.  So I think the amount of pain depends on where the endo is. 

I hope that your lap has been able to ease the pain for you.

Bye for now  ;)

love

Becca
x
 

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Hiya Cathy

I just want to say no u r not a wimp!!!

No one with endo comes into that category

The amount of endo does not always correlate to the amount of pain

IE................minimal endo can cause maximum pain and maximum endo can cause minimal pain and no symptoms

I have had endo diagnosed for 3 years but suffered the unpleasant symptoms since i was about 15 (diagnosed at 29)

If theres anything that u want to ask at any time either leave a message or send me an instant message.

We have a endo chit chat in the inbetween section where a few of us with endo get together for a chat about endo infertility and life in general.

You would be more than welcome to join us

Best wishes
Emilyxx
 

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Thanks girls ^afro^

I'll check out the inbetweenies message board as thats what I am right now!

Isn't this website great - no more thinking I'm slowly going mad on my own!  Instead I can share my loopy moments with you all! ^spin^ ^spin^ ^spin^

Cathy
 

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Hi There,

My first symptom of endo was getting very bad colic on the day before and 1st day of period! It took a while for GPs to realise it was cyclical and related to periods etc  ::)  But, then a lady GP said maybe I had Fibroids so sent me to a gynae. Eventually had a lap and dg with endo in Pouch of douglas, left and right ovary with bad adhesions sticking ovary to bowel (hence colic pains!).

I also had extreme fatigue, dizziness, migraines, bloating and painful sex!

I've had to excision laps.  Also, now sometimes get pain on periods, backache and legache.

But, there are MANY symptoms of endo and we are all different. But a lap is the only way to know for sure!!  TC.  Jo x
 
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