Hi. There are som many different and varied symptoms for endometriosis, which is why it often takes so long to diagnose.
For instance my symptoms consisted of cystitis (three weeks out of every four) and lower back pain on my right hand side for almost all of my cycle. Ironically, the only time I was relatively pain free was during my period.
The only reason I was diagnosed with endo so quickly was because my GP trained as a gynacologist and was quick to spot the fact my symptoms coresponded with my menstrual cycle.
The only symptoms I had from endo was an aching pain from day one to about day 4-5. Although it's in my bladder, I've never had any of the problems the endo specialist asked about - never had a water infection or cystisis. I've also got in the pouch of douglas but that's never caused me any problems.
Hi My symptoms included , extremely heavy periods (with clotting), hot flushes, mood swings, pain concentrated down my right side (including numbness in my legs), painful intercourse, nausea, dizziness and stabbing pains in various parts of my body (abdomen, back, legs).. But I know things vary for different people.
Emily72 got it in one with her list! I sometimes get a migraine around when a period is due and can faint when the endo pain is particularly bad as well!
Other than that you might feel like curling up in ball with a hotwater bottle, trying really good painkillers, which are anti-inflammatories, prescribed by you GP and a large glass of brandy can numb the pain a little!
It took me 5 years to get anyone to take my symptoms seriously & get a consultant referral.
He diagnosed it immediately from my symptoms then perfoirmed a laparoscopy to be sure & to look at the extent / location.
My symptoms were agonising pain with some (but not all) AF's, that would come on the day AF started and last for 3-5 days. So bad I was bedridden & in constant screaming pain that no painkillers touched, plus diarhoea.
I had this misdiagnosed as cystitis and having to small a cervix.
If you think you may have endo a decent gynaecologist will soon spot it. It's the GP's who are seemingly clueless.
am new to the site, and came looking for info re endometriosis, and all my symptoms are here!!! We had 1st appt with consultant to start investigations for infertility, and after many questions, he has suggested I may have endo.
I have struggled with many bizzarre symptoms for 18months since stopping the pill, e.g nausea, dizzyness+faints, abdo pain, hot flushes, diarrhoea+constipation etc, and have lost count of the times my gp has suggested a course of antidepressants!
Do they not have training about this, or do they think that we are all irrational, 'hormonal' and need prozac ( have now got off my soap box! sorry!!)
I feel just as frustrated as you when it comes to GPs lack of knowledge of endo. I've had endo symptoms from the age of 21 with persistant low back pain and severe stabbing pain in my bowels during af. I was finially dx 15 yrs later during a lap. I spent a lot of those yrs feeling 'soft' for not coping with af when other woman manage fine. I was also told I had ibs. The thing that naffs me off the most is that I told my GP that I was scared before af as I knew the amount of pain I was going to be in. All he did was add pms to my list of misdiagnosed ailments. This does seem to be a common theme amongst endo sufferers. Anyway moan over
I feel I've learnt a valiable lesson and that is to be more assertive and not to accept what drs tell you if you feel it's not right.
I've always suffered with extreme pain at the start of AF, which affects my legs and back particularly. I too have fainted with the pain in the past and at the very least have had uncrontrollable cold sweats with nausea. My GP's never took me seriously and I too thought I was a wimp for not 'dealing' with period pain like everyone else.
I've just had my laproscopy and was surprised to hear that I only have minimal endo. So it seems that either I am a wimp or at least its not the endo causing my symptoms!
Don't know what to think but at least I don't have to add endo to the list of things wrong with my repro organs!
My first symptom of endo was getting very bad colic on the day before and 1st day of period! It took a while for GPs to realise it was cyclical and related to periods etc But, then a lady GP said maybe I had Fibroids so sent me to a gynae. Eventually had a lap and dg with endo in Pouch of douglas, left and right ovary with bad adhesions sticking ovary to bowel (hence colic pains!).
I also had extreme fatigue, dizziness, migraines, bloating and painful sex!
I've had to excision laps. Also, now sometimes get pain on periods, backache and legache.
But, there are MANY symptoms of endo and we are all different. But a lap is the only way to know for sure!! TC. Jo x
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