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Discussion Starter · #1 ·
Hi.

My name is Joanne. I am 31 years old and have turner syndrome. Im looking into IVF and would love to find someone with turners who has any experience or success story with IVF. I would love to hear from someone that can give me a bit of hope :/

<3
 

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^wave^ ^hello^ and welcome to Fertility Friends ^hugme^ ^hugme^ ^hugme^

FF is a lifeline for everyone and anyone, seeking support, information and lasting friendship whilst going through fertility issues. FF members are fantastic listeners when when family, friends, doctors and sometimes even partners just don't "get" what you're going through and feeling.

I've included some forum boards that may help answer some of your questions ^reiki^ ^reiki^ ^reiki^
Have a look round the site and if you get a little stuck with the navigation side of things - please ask and we'll do our best to guide you.

What Every New Member Needs To Know (includes a list of common abbreviations) ~ CLICK HERE

FERTILITY INFO GUIDES ~ CLICK HERE

Starting out & Diagnosis ~ CLICK HERE

Investigations & Immunology ~ CLICK HERE

You can also "meet" and chat with people in your local area through the Location boards. This is especially useful to find people who may be using the same clinic and or in the same PCT area. CLICK HERE

FF's chat room is a fabulous place to 'meet' and chat with others. Our newbie chat is every Wednesday. A great chance to meet other new members and find out a little more about how the site works:
Newbie chat ~ Click Here

All the best - our paths may cross again in other areas of the site.

Good luck,

^reiki^ ^reiki^ ^reiki^

Tis xx
 

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Hi Joanne. Well that is me! (wonder if there are some others here?) I totally understand your concerns. I think it depends on your general health / medical conditions and I guess every individual is different. I saw my consultant annually anyway for monitoring and we just talked to him about it. I am 35 but have a young 25 year old donor (anonymous) but hopefully that will stand in my favour.) Things have gone well so far but I'm just in the thick of it at the moment (transfer planned for next week eeek) so we'll see what happens. You're welcome to hold my hand!
 

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Discussion Starter · #4 ·
Wow... im excited after reading your message! I go to a clinic in london once a year and they are great so im generally in good shape. Iv just arranged a blood test with my doctor to be tested to start the whole IVF process so im very excited although we both know we have to be prepared for any outcome.
Im so happy to hear of another turner lady about to go through this!!  I hope it all goes well for you, i really do WE DESERVE THIS ;)
I would love if you can let me know how you get on !! fingers crossed for you. Its lovely to have someone in my position!!

WOW IM EXCITED FOR US :)  xxx
 

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Thats great. It can be a lonely journey so its great to have found someone with TS here. I tend to hang out on the egg donors thread for first time cycles as well as the Leeds thread. Anyhow we got a call this morning we have 6 embies fertilised. Fingers crossed they keep going!
 

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Discussion Starter · #6 ·
I really hope it all works out for you this week  - exciting times. How long has the whole process taken to get to this point. Have you had private treatment or NHS?
Hope you dont mind the questions.

:) xx
 

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Discussion Starter · #7 ·
Iv just had a blood test today to check my hormone levels, kidneys and liver and booked to see the doctor for results...... started the ball rolling  :) ...... xx

 

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Thats great Jo well done!
I'm afraid its taken a year from first enquiry. The NHS go slow (but free!) method.
Transfer happened yesterday so I'm going to try and keep my head down now for the 2ww!
 

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Discussion Starter · #9 ·
1 year is long but better than i thought. Wow transfered yesterday!! - iv really got my fingers crossed for you!! Its really helping me believe it is possible.

You take it easy and hopefully the rest will fall into place :)


GOOD LUCK!! - FINGERS AND TOES CROSSED  ^pray^ XXX



 

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Just to let you know, tested this morning and all looking good so far  :)
 

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Discussion Starter · #11 ·
Iv been wondering how your getting on - That is absolutely fantastic! - very pleased!! Thanks for keeping in touch its lovely. Hope all goes smoothly. take it easy <3 xxx

 

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Hello,

Wow! I am another Turners woman about to start my first cycle of IVF.  I am using my sister as a donor and we are hoping to do our first transfer in new year. I'm incredibly nervous and would find it very helpful to share experiences with other Turners women. It seems you're a bit like buses because it's taken ages to find any of you and now I've found a whole bunch of you at once  ;D delighted to see  some of your success stories and would love to talk further so please feel free to PM me or something,

All the best,
Jess xxx
 

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Discussion Starter · #13 ·
Hey!! aww great to hear from you!! This is great to have someone else in the same position as me! (my first cycle too)
Iv had tests at the doctors for hormone levels and things and now im just waiting to be referred to the hospital.
How far are you into your first cycle?

So glad you messaged  :) :)

Jo xx
 

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Discussion Starter · #14 ·
Sorry i read that a bit quick lol ..... your using your sisters egg and transferring in the new year! wow!

What an amazing sister you have! good luck .... I hope all goes to plan!!

Defo keep in touch  :)

Jo xx
 

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Agree with Jo. What an amazing sister. We have a brother each (no sisters) and thats not so useful at all! Best of luck.

Jotill4: Hope you hear some more news soon. Don't be afraid to nicely ask (nudge them) if needs be to make sure they know you're waiting. I had the advantage that I was already attending the same clinic for check ups. Same clinic, same consultant, sure I still got a bit lost in the system somewhere! :)

Anyone else out there?  :)
 

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Just thought I'd write a post in here to keep this thread alive and make it noticable to any lovely Turners ladies out there.  Wow, it feels like my journey is just beginning now as I am hoping to go for ET in about 2 weeks...eek! Good luck to all you TS ladies out there and please introduce yourself if you're hiding out there somewhere.  Would be lovely to hear from you  ;D xxx
 

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Good plan. x Exciting times for you. Sounds like you could be testing just as I'm giving birth... eeeek!
 

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Hi all! I am Suze a Turner's Girl new to the site and I am looking for others who might be able to answer my questions and possibly provide some much needed advice/support. I saw my registrar today who is referring me for a cardiac MRI and back to my consultant and an endo specialist. So nervous we've taken this first step! If anyone who feels up to chatting about things would like to PM me I'd really appreciate it. <3 all.
 
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