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Thanks Dizzi. Our own little spot that's lovely! x
Hi Suze! Sorry I've only just got to this. Don't know if anyone else has PM'd you I hope so! I was diagnosed with TS aged 9 and had IVF last year with twins born by section on 30 January. Life's busy but will try and keep in touch a bit and send you a PM. xx
 

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Hi there I am a turners syndrome lady and I have just had a BFP with a donor egg cycle.  Obviously very happy but terrified.  Would love to be in tiuch with  TS ladies who have had a pregnancy and what their experience was. X
 

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Kashers hello! Sorry I haven't seen this until today. Just wanted to say congratulations well done amazing! As you can see I had twins in January (did things the hard way!) so had an awkward pregnancy probably largely due to that rather than the TS. Everyone's different anyway of course. Have you had a scan yet? Take it easy. If it helps I just kept telling myself every five minutes We've done well to get this far, and didn't think ahead much at all... right up to the point I was in theatre for my c section!
 

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Thanks togetherness.  I really think I would be terrified if it was twins.  I only had one embryo in as they didn't want to risk it.  I have my scan on Tuesday so two more sleeps.  I can't wait.  Just want to see heartbeat and then it will be a bit more real.  Don't know how I feel.  Happy, scared, overwhelmed.  I feel fine.  No sickness just pulling stretching sensation in tummy and huge tummy!  Going to the toilet weeing all the time and the last few days headaches.  Other than that feel fine.  I have hypothyroidism so they have altered my thyroxine dose.  I am normally fit and healthy so fingers crossed.  X
 

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Welcome kashers. I'm afraid I can't share your experience of pregnancy yet but I thought I would introduce myself and give the site an update on how I'm doing. I'm a 28 year old lady with TS. It's been a bit of a roller coaster year so far. After over a year of jumping through hoops  ::) my fiancé and I did our first cycle of IVF at the beginning of this year. We used my absolutely amazing sister as a donor and expected good results as she has 2 children of her own which she conceived without any trouble (she is actually now pregnant a 3rd time as well falling pregnant very shortly after doing this for us..  Typical  :)) In a nutshell she didn't respond very well to the treatment. We got 5 eggs but by day 3 there were only 2 embryos which we're looking pretty sorry for themselves. In addition to this there were issues with my endometrial lining. It had developed fluid which is pretty bad for your chances. Anyway, we had no choice but to transfer as neither embryo would have survived a freeze so we went ahead knowing really that there wasn't much hope. Sure enough the pregnancy test was negative. It was a difficult decision but after how poorly this went we decided not to use my sister again. I knew that she wanted more children so couldn't let her put her own life on hold any more plus we couldn't be sure it wouldn't go just as badly on a second try. We only get one try on the nhs where I live so we knew we'd have to fund our next try. After doing some research we went for a cycle in Spain, the reason being that the donor system is so much more favourable there and leaves you open to much better chances of success. Anyway, we went to Spain a couple of months ago. The embryo preparation was a lot more successful. We transplanted 2 blastocysts and have 6 excellent blasts in the freezer. However, we had the same problem again with fluid in my uterus. The doctors did a couple of things to relieve it and give me the best shot but I think it spoiled our chances as again the pregnancy test was negative. So now I'm kindof in limbo land. I have 6 perfect embryos but apparently a uterus that doesn't want them  ^idiot^ We are a bit perplexed as to where we go from here to be honest but at the moment I am just giving myself time to lick my wounds and get over the fact that motherhood is not going to happen for me at least for another year or so. I am very near the end of a medical degree. This time next year I will be a qualified doctor so want to put everything into that before we try again. We want to do a frozen transfer when I have some free time next summer. In the meantime, I have been to see another specialist in london for advice on my lining issue and she has been very helpful and I am positive that she will help me prepare my endometrium as much as it can be before our next try. All I can really do now is focus on finishing my course, look forward to meeting my new niece/nephew and hope that next year is a better year for us.

I do hope you get good news at the scan. Please feel free to pm me. We can add each other on ******** too if you like. Lovely to hear from you and good luck xx
 

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Kashers - hope you're doing ok hun. I had trouble with my thyroid during pregnancy so I'm glad they're keeping an eye on that for you. x
Jessica - good to hear from you again. To be nearing the end of a medical degree is an absolutely amazing acheivement! so sorry that you've had a difficult time. Hopefully things will work out for you next year in lots of exciting ways... xx
 

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Hi togetherness.  Unfortunate it wasn't my time and scan showed no continuing pregnancy. I'm a lot better now after horrendous bleed and pain last weekend.  More myself now.  Hubby and I have booked a holiday in October so we can have time to ourselves and work out our next move.

Jess hope you are well x
 

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Kashers - I'm so sorry my dear  :(
You are so strong in what you wrote here, but after going through that I hope you have some lovely holiday time together to recover. Take whatever time it takes and feel free to keep in touch. xx
 

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Hello hun. Like you I had been seeing prof B at Seacroft for ages before we had the guts to try for IVF. I think I was just avoiding the issue thinking it had no chance of working. We had egg donor and it worked for us, forever grateful to her whoever she is! Everyone is different though so, eg my lining really thickened well during the preperation so I expect that helped. Now have two nearly three year olds running us ragged...
 

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SLB1984 - I am sorry to know yr story and wish you all the best with yr journey. Haven't you considered undergoing ivf oe with PGS NGS? My knowledge here is limited but from what I have read PGS NGS detects 45, X (Turner syndrome) Here is more

/links
 
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