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Discussion Starter · #1 ·
Hi all

We've just had our 2nd failed tx at BWH and I'm very happy with the care that they've provided, but obviously I still haven't had BFP.

Any of you that have gone to New York for treatment, I just wondered what made you opt to go to CRMI when you did? What could they do that you couldn't get here?


We don't seem to be getting great quality embryos (although 1 out of nine eggs was top grade this time, which is progress). They don't seem to think there's a problem with my eggs, so I can't help thinking that the poor sperm that have been taken out during an operation, then frozen and defrosted must be a bit traumatised, which probably isn't helping.

Thanks so much x
 

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Discussion Starter · #2 ·
Hi girls, I'm just bumping this, in case anyone can help! Thanks x
 

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Hi OneDay,
I think this is my first public post on the forum, but since no one else has answered, you've drawn me out of lurked-Dom!
We got our NOA diagnosis in 12/09, and one of the first this I noticed when I started Googling to learn more about NOA and treatment was that Dr. Schlegel's name came up repeatedly. The local doctor did a testicular biopsy in 2/10 and found 5 sperm (not 5 million, just ... 5). That was really all the confirmation I needed that we were dealing with something serious and I didn't want to mess around. I wanted to go to the best in the business for the first try (I'd read that the chance of sperm retrieval diminishes with each successive TESE, so I wanted to do it "once and right"). It took a bit to convince my husband, but after we went for a consultation with Schlegel, he agreed that he had a lot more confidence in CRMI than the regular doc.
Of course, since those early days, I've learned more bout IVF and realize even if everything goes perfectly and they find sperm, we still are very likely to end up childless. Nonetheless, we're slated for next month's cycle at CRMI and are trying to be cautiously optimistic about our chances. I am glad we are able to spend the money to go straight there rather than mess around with the local guy first.
 

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Hi onedayatatime

I think you have read my diary so have a good idea of why we went to CRMI. Basically we knew from a first biopsy that DH had sperm in his testicle, but our first proper TESE here failed to find any, because it was the standard blind biopsy technique (with a lot of samples). We were frustrated knowing there was sperm there to be found, so found out about Dr Schelgel on here, and got in touch with him. We sent him Dh's biopsy samples along with all his test results (including the fact that Dh has a Y gene deletion which Dr S specialises in) and he explained his surgical technique to us. Basically he has a special microscope plus masses of experience plus he is right next to the embryologists while he is operating looking for sperm, and has a far higher published sperm retrieval rate than anywhere else in the world (no one else seems to use his technique).  He gave us a 70% chance of getting sperm. We did more investigations into CRMI generally and their head of the embryology lab is the Belgian guy who invented ICSI, and their male factor pregnancy rates overall are far higher than anything quoted anywehre else in the literature/HFEA/clinic stats. We went over for a preliminary consultation and were really impressed with them. Not only did Dr S find sperm, but we got a BFP (although sadly later miscarried) and by the time our FET was negative we had run out of money and emotional energy to go back. We have not ruled it out as an option in the future, particularly if we inherit cash or win the lottery, as I have 100% confidence in the doctors nurses and embryologists at CRMI they are amazing, and in my opinion is the best place in the world to have treatment for NOA...........

It is always worth lining up a phone consult with Dr S, his team make it easy to fix up and although you do have to pay, it is really worth it for the really expert second opinion on the chances of success wtih your DH's sperm.

Good luck hun and hope more of the ex/current CRMI crowd come onto post!
lots of love
Ceci :-*
 

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Discussion Starter · #5 ·
Hi both, thank you so much for your replies!

Josey, I feel particularly honoured that I prompted you to post! Fingers crossed for your ICSI.

After lots of soul searching and obsessive research, we're going to ARGC and to see Mr Ramsay. As we've found sperm once and they can't seem to find any reason to say that it's NOA, (although they don't ever quite seem to fully commit to obstructive!) I'm hoping they will have a positive outlook for us.

Thanks again for sharing your experiences, it's really appreciated x
 
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