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Oh and I would look and see if zlin does MACS and use that as well.
 

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Hi Ladies,
How is everyone doing?

Serendipity - Did you decide on doing a cycle? It is pretty tricky with the current situation alright. I got a Covid test done before departure... I had to book 6 flights , kept getting cancelled , rent a car as I  wanted  to limit my use of public transport as bit more unreliable during pandemic and had to Quarantine for 14 days after I returned ( taking boys out of school ) ... I retested Neg 5 days after I got back ... BUT I hope it was all worth it. I was a bit shocked the waiting room was full over in Zlin. I refused to sit in it, after getting off a plane I thought I'll wait in the corridor . I don't need Covid right now on top of all the meds I'm on.... I was really careful on the plane ( 3 masks ) and happy to say it was safe as I am Covid free thank God. I'm not getting the Flu Vaccine but I will in a few weeks.

So I got a BFP. HcG 3700. 20DPO ... 5714. 23 DPO.  Squeeky bum time for me as Ive had 4 losses between 5-8 wks . Cramping last night, heart in my mouth . Wish I could have a big glass of wine but Alas that is not an option. If Zlin is ever going to work for me this will have been my last time as I've not much confidence in them, they haven't been the best (in my situation) I found them not too helpful with lots of issues .
I got OHSS , which I should never have gotten , there was only a 1% chance as they increased the dosages of Gonal F every few days  so not sure if these eggs were ever any good. Time will tell.

Hope everyone doing ok.
Flower - How are you doing?
Stacey - How did your consultation go?
 

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Triona you sneak I had sent you a message on social media to see how you were going, this is awesome news, understandably can’t get too excited, but great hcg numbers so far ! Hopefully a good scan update 😁
My appointment is this coming week, so that will be a 9 wk wait, hopefully things will start moving along with some type of plan.
Hi to eoe
 

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Mimi can’t reply to you your inbox is full and it’s full again .....
 

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Hi Ladies,

Hows everyone doing ? Just a quick update from me.... 6 wks 1 day today. I had awful pains, bowled over, dizzy and bleeding yesterday so wasn't looking good. I got a scan done in the hospital today. Theres an embryo there with a heartbeat and in the right place. Bleeding has stopped today. I'm a nervous wreck , just want to get on with life but its hard every twinge, pain and toilet trip is a worry ...  ^pray^ that the next few weeks flies by uneventfully ! Have terrible nausea since 3 wks which is strange for me but I will put up with it , its making me stay away from all the normal chocolate I eat so maybe thats a good thing. would be nice if it wasn't all day long though , oh well , i can't complain at all feel very lucky if this works. I won't be able to relax properly until I get to December but its a big step in the right direction!
 

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^pompom^ ^pompom^ ^banana^ ^banana^
 

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Hey everyone!

I am lurking here still  ;D

Flower im sorry to hear of your failed cycle. I’m frustrated for you as to why??

Stacey it’s awful that you have been misdiagnosed  and for how long as well. It’s not like LO was born 6 months ago. Why has it taken so long?? For gods sake I wonder sometimes about the medical professionals in general. What are you thinking after your appointment??

Triona everything crossed for you, I had a lot of bleeding with both successful pregnancies. With the twins I was soaking through jeans every 5 minutes to hospital and it was bruising bleeding out. You’ve got this 💪🏻💪🏻💪🏻

Hello to eoe xxxxxxxxxx
 

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Thanks Johns Kimberlina!
Im nearly 7wks now ,wondering if i should get a second intralipid done..im on steroids already...not helping that my insurance refuses to cover anything ivf related due to my treatment abroad not being an.approved centre and my scan here not being ivf related and.only covering egg freezing not embryo freezing.honestly insurance scam i.dont know what im paying for ...they dont want to pay for anything.i hate parting with another 350 for something thats not scientifically proven..why isnt there more studies on it..but i also dont want to have wasted 2k if its the last thing i need to keep this pregnancy....Also id have to travel beyond my 5k limit but i guess for medical reasons they cant fine.me 500...
What to do....waste of money or not..seems tricky here to get done.if i was still in zlin id just pop into clinic but here i have to liase with 3different places and.order the stuff myself in pharmacy..Honestly the older i get the more i cant be bothered having a baby is such  hard work! ALso im sick night noon and morning ,a sign i dont need any.more stuff pumped into me ?.im on 18tablets a day..sorry im just fed up.rant over...ill be in a better mood tomorrow maybe...
Hooe everyone else doing well.i know im an.awful moan better doit onhere than at home eh:).
 

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Tiona I would take the plunge and to the intripilds, I wouldn’t risk not doing it to be honest, you may not need it but if you do, it would be more of a waste of money not to have it done.
Jk good to see your still kicking around.
Yes a total pain in the ar*e to say the least. I’m not sure if I will go ahead with the surgery, it will cost about $18,000, I have to go to a cardiologist, not for the surgery at all, just because, and I need to get a letter from an OB to say I’m ok for a pregnancy, and to be honest I won’t be able to find anyone to give me that letter, and all this just so the dr will do the surgery, doesn’t matter if I can’t travel overseas, or if none of the embryos work, this is what he wants just to do the surgery. Just really annoyed that I have to jump through all these hoops for a pregnancy that may not even occur, if I didn’t have this uterine problem, I would just get pregnant and not have to ask anyone for permission, really irks me that I have to ask for permission to do something with my own body 🤬
 

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Triona I second what Stacey says but I can see your reservations as well. Also will you go through the ‘what ifs?’ In your mind?

Oh Stacey, ball ache. I had to get a letter from my neurologist to say that the drugs I am on wouldn’t affect me not carrying a baby to term. Ridiculous really but they seem to need these things don’t they? I suppose they won’t treat you without the letter? Hypothetically if you went over and had a transfer what would happen? You deffo wouldn’t get pregnant? Would it be dangerous to your health and baby’s?

Hope everyone is ok. Has anyone had covid? We have had it in our house but funnily enough only mrjk, me and Zara. Eliza and Hugo tested negative. I deffo think people have an immunity!

The uk is a total shambles at the minute anyway...

Xxxxxxxxxxxxxxxxxxxxx
 

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I wouldnt get to a transfer because I have blood in my uterus all the time, I could hypothetically wash it out with saline then go onto do a cycle, my only worry is then a scar eptopic or a ruptured uterus if the defect is big enough, but I wouldn’t have to jump through all those hoops, one dr wants me to do all those tests before he will operate, the other doesn’t, I’d go with the one that doesn’t but the internal state border is still closed because our premier is a d*ck, so I can’t travel there atm, the other one is in our state, but still a 2 1/2 plane ride away. Thing is, I have no health problems, so he is just being a pain because of my age.
You know those pcr tests have up to 70% false positive rate and they pick up any old corona virus you have previously had, so if you have had the flu or one of the other cv’s you’d test positive to covid, alll such a scam really as they haven’t even isolated the actual virus to test for it properly. All just to keep the numbers up and the fear going.
 

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How funny Stacey that age can have such an effect. I mean ok success rates are lower but only in OE cycles really aren’t they? Yeah atm you can’t do anything that’s true but still gives you time to think 😔😤 what does hubby think?? 

Aus is in a better state than the uk though. We are taking it easy but will be spending Christmas with family. We are arranging a funeral for a pet turkey. That’s how we are getting round it!

Shhh 🤫 don’t tell Boris Johnson though 😂😂😂

Hello to eoe

Xxxxxxxxxxxxxxx
 

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Even with de the success rates drop with age, so he is all puff and smoke, just trying to put me off from doing the op because he doesn’t agree with my age.
Just can’t be bothered with them anymore tbh, they shouldn’t be putting their personal thoughts anywhere near the treatment, but they do, no wonder som many ladies go o/s for de treatment here.
 

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Hi everyone,

Thanks for the advice re intralipids. So after much humming and hawwing I decided to do them just for peace of mind and hubbie wanted me to do it too so we can say we tried everything. My problem is now I can't find anywhere that will actually do them. A lot of places won't treat you unless you have cycled with them or they say they don't do it anymore/ theres no scientific evidence it works etc and a lot of Drs not too bothered so to cut a long story short I can't actually get it done here. Seems ridiculous but Covid hasn't helped either ,surgeries are very busy so I guess I am not having it done now. I did have it done here before by private nurse but I can't find a consultant to write the script and someone else to administer it.  ::) 

I have a scan booked for next Thursday so  ^pray^ that all is ok . I definetely still feel pregnant. I can't keep food down and struggling to function . Every time I eat I regret it 10 min later and if I don't eat I feel sick so I'm buggered! It'l be worth it if everything is ok in the scan. Its DH's birthday . I can't even join him for a take away as I'd puke if i smell food but I don't feel sorry for him. at least men don't have to go through this sh1t for weeks on end  , nature way of starving you just when you need to eat healthy? I've lost a stone in the last month! Stacey did you have any of this morning sickness business? Any tips ? Don't say eat ginger, i nearly gagged, disgusting like lumps of hot sugar  ;D

Ok enough moaning. Hopefully not getting the intralipid won't affect the baby. I'm on steroids which is keeping my immune system down and apparantly intralipids last up to 6-9 weeks. I had them 4 weeks ago. I don't actually have NK cells but they seemed to work for me last time but it would be my preference to get them done just to be on the safe side but I've really tried my best apart from flying back to Czech which I just can't do now we are in Level 5 (top) restrictions for travel and I am just too sick to travel.

Stacey- I'm sorry to hear about the fluid collecting in your uterus, can you travel to that other Dr who will do operation or is it too complicated at the moment?

Johns Kimberlina- funeral for a pet Turkey ;D That is kind of handy you've had Covid and been ok. I don't know anyone who has had it here but its in the community alright. We've been locked down again for a few weeks so we are the only country in Europe where the rate is falling but at the expense of our businesses being shut down, tricky situation. I think things will open in Dec and then we will be in trouble in Jan again , what a long year its been! Sad on people in care homes especially who have had no visitors and don't understand why.

Hope everyone else doing well
xxx




 

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Triona good luck for your scan today, 🤞
Fortunately for me, even with the twins I don’t get morning sickness, I just feel a bit queasy in and off a couple of days a week, nothing regular, but aside from ginger, do you think you can drink ginger tea? Or grate a green apple and eat that, or dry saltine crackers, nuts like almonds etc.  hopefully something will work.
 

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Hello ladies,

Sorry that I haven't posted for a long time. Hope you are all ready for the holiday season!

Triona T-Congratulations! Good luck for your scan today. Sorry about the morning sickness. "Pregnancy is the happiness reason ever for felling like crap", isn't it?! Hope you can find a place to do intralipids. Many doctors in the US don't bother with it. I am trying to find a doctor that will do it for me but haven't found any.

Stacey--You got blood in you uterus. That's medically necessary. Can you appeal the insurance company's decision? Hope you can find a doctor to write you a letter for trying again. As long as you are healthy, it is really not their business to not let you do it. The same goes to age limit for IVF treatment at many clinics. But they do it anyway. Really make me feel frustrated.

Johns Kymberlina-Lovely pictures of the kids. :) The twins are big now. How are they getting alone with Hugo?

So we decided to go with Zlin for another donor cycle with PGS testing. They have already matched a donor for me and the scheduled egg retrieval is Dec. 10.  Stacey, thank you for suggesting MACS. It will be added to the protocol :) 

I have also booked an appointment with a well-known reproductive immunologist in the US. The appointment is in March which means that I can't do the transfer until April/May so I am not sure if I want to wait that long. She is very expensive if my insurance doesn't cover it. She is in a different state.  Depends on the covid situation if I will need to go to her office. The appointment is almost 4 months away so I have time to decide if I want to see her.

I consulted a local IVF doctor (who has been doing the monitor for my transfers) and he said that all I need to do is keep trying. He is the doctor who found out that I have thyroid peroxidase antibody and anticardiolipin IgG and also the doctor who did the ERA. I am on levothyroxine for the thyroid antibody issue and  an anticoagulant medication Lovenox (enoxaparin) has been/will be used during FET and pregnancy. I don't know what more the immunologist specialist can do. 

My lining for the recent transfer was 7.4 mm so I will add estrogen spray/patch. Apparently estrogen spray works better than the patch but we don't have it in the US.  It seems that Pharmwell in Brno may be able to send it to me so I will wait until it is close to transfer to order it.  Zlin also recommended intralipids but I haven't been able to find a doctor near me to do it. It seems the intralipids is optional. They also want to increase progesterone and monitor my thyroid activity during the cycle. So basically there are some small changes in the protocol but not much differences. Of course, I will continue the thyroid medication and use the anticoagulant medication. What do you ladies think?

Another possibility is to use the protocol from my local IVF doctor. But I will probably not tell Zlin if I do so. His protocol is very similar to Zlin's. In the US, we use progesterone shots instead of pills.

Hello to eoe.



 

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Flower great that you have made a decision, hmmm, it always seems to be a wait involved, I’m over it lol, if this lady is good, I’d maybe wait and see her to see if she picks anything else up, you don’t want to waste embryos. You may have a partial dq alpha match with your d/h and if you do then you would need LIT amongst other things.
Our medical system runs a bit differently over here, we don’t have insurance unless we purchase it separately, we have a country run medical care system, which over here unfortunately means anything to do with fertility you can’t get done on the public system, you have to have it done privately and then you get a small rebate for out of pocket expenses, for example, if the surgeon quotes me $4000.00 for the surgery, I’ll get about $500 back from the government, but nothing for the hospital care, so the hospital is say around $6000 and I get nothing back for that, then there is the anaesthetists fees, which id get a small amount back etc, if it wasn’t for fertility I could have it done on the public system, but they wouldn’t repair the scar, they would just flush my uterus out and at my age not do anything else, if it was a younger persons they would give them some type of bc where they don’t bleed. So it all hinges on the fact that I need to get this fixed for a possible pregnancy. I went to my regular dr yesterday who attempted to do the saline flush under instruction from the surgeon who is out of state, all went well apart from the fact that the saline solution just dribbled straight out again, so she thinks I have a long cervix and she needs a longer catheter, she is going to speak to him again to get his opinion, so like you flower, more waiting around, now I think I’ll have to wait u til my next cycle as the blood starts to get thick and won’t just flush out now anyway 😐 ugh
 

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Stacey---Yikes about the flush procedure. How often do you need to flush it out? If you don't do the flush, will it increase the chance to get an infection? I remember that you had some infections going before, was that related to the scar problem? This all sounds medically necessary to me, even you are not planing to get pregnant. I don't like our health system but it does give me the flexibility to chose different doctors. My health insurance premium is covered by my employer but my husband is on my plan so we pay his premium every month, which is $350. We have a very high deductible ($5000 for each of us) so pray that we don't get sick. Insurance companies offer different plans for different companies. Because my company is small so we don't get a good deal. When I worked for universities, because of the large amount of people enrolled in the plan, the deductible was only $250.

This immunology specialist is affiliated with a university and she does a lot a research. I don't know exactly what types of tests that she will run. So far it seems that there are 3 tests that have to be done at her lab. She will try to make my insurance cover the cost but with a deductible of $5000 I am expecting to pay all the cost out of pocket, but will be at a contract price.  It is ridiculous how the system works here. For example, I did a progesterone test during one of the FET cycles, I did not pay attention to how the doctor coded the lab order. It turned out to be infertility treatment so my insurance didn't cover it. I ended up paying $150 for it. If the insurance covered it, it would be $15, which means that the lab would only get paid  $15 from the insurance company. But I had to pay a different price.  I can pay $30 to the lab at the blood drawing if I don't use the insurance.  It really doesn't make any sense.
 

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Yeah all sounds confusing as fk lol, all my blood tests are free, the government covers those on our healthcare, so are my u/s etc, but I have to pay out of pocket  to see a specialist like a gyne etc then I get some money back as long as a dr has referred me, if not I pay the whole lot.
The purpose of the flush was to see if both the saline and the blood would come out, if so then that dr said the scar defect is probably small and I could do that on my cycle before the transfer, then go on to transfer as my uterus would be clean and I could get away without doing the op, but I would still be high rush of scar eptopic or rupture because the fault is still present, I would obviously have to be closely monitored in the 3rd trimester if I managed to get pregnant.  But that is obviously the cheaper option by about a million $$ as just my regular dr could do the flush if it worked. Yes I’m at an increase risk of infection as the blood just stays pooled in my uterus, which then recognises that there is something in there that shouldn’t be and it releases mucous so by the time my period comes around the “fluid” has doubled in size. So it’s a vicious circle. 😬
 

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Triona just saw your update on the other thread, really excited for you  :)
 
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