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Discussion Starter · #1 ·
Hello,

I'm very new to this site, just registered a few minutes ago. Best wished for you all out there.

Hoping I might get a bit of feedback from my story below;

Everythings started 3 yrs ago when I was diagnosed with a fibroid (but I suspect more than one) measuring 4.5 x 5.5 cm.  Suffering from incredibly heavy bleeding and much pain.  It was recommended that we try for a baby as I expressed that husband and I really wanted a family.

Specialist agreed that we should start pronto, as surgical intervention would definitely be needed since my symptoms would only get worse.  1 year later had out of control bleeding resulting in blood transfusion, and increased dose of tranexamic acid.

After 2 months more of trying, we were referred to a fertility clinic - had a  hysterosalpingograph with results showing blocked tubes.  The radiographer did not want to go into detail regarding blocked tube treatment or what would be recommended in my case, so we are waiting to for our next appointment at the Centre for Life Dec 20th.

In the meantime have had sever bleeding - hgb just under 10, but feeling completely exhausted.  GP spoke to specialist who recommends Zoladex injection ASAP before my next period (left message at the surgery).

My G.P is unavailable until Monday (4 days away), maybe I'm panicking, but I'm really scared.  Zoladex sounds "scary" a bit like a mental health patients drug ...I know I'm going mad!...is this a safe option...will it affect...fertility...does anyone have any advices or just a few kind words.

I feel like I'm really in a hole and I would be pleased to hear from you

Thanks Gen
 

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Hello,

Don't panic - Zoladex is an injection of hormones which should temporarirly stop your periods (like taking the pill). Zoladex is frequently used in the treatment of endometriosis to try and suppress/ regress chocolate cysts and endometrial patches. The injection is admittidely quite scary as the needle contains a slow release pellet which is inserted somewhere below your belly button (but on the plus side makes the fertility treatment injections seem really easy peasy!). If you decide to have Zoladex ask the GP to give you some local aneasthetic (either you can collect a cream in advance or they can use smaller injections ... I prefer the cream). If you go to the endometriosis bit of this message board I think there may be some threads on zoladex.

Hope this helps,

C x
 

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Hiya Sweetie

I am sorry that ur feeling worried

I am due to start zoladex again (this will be my 5th course)

It sounds worse than it actually is

You can have a local anaesthetic or emla cream to numb the area be4 the injection

It should put ur body into a temporary menopause.

If theres anything else u would like to know send me a IM and i will be happy to tell u of my experiences

Wishing u lots of love
Emilyxx
 

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hi

i have severe endo this was diagnosed 2 years ago. was in the worst pain ever since i started my periods age 11. i was told after my lap that i had a large cyst on my right ovary and that they would try and burn and treat the endo...sadly for me they could'nt do this during the lap as it was a lot worse that they ever imagined it to be. so i was allowed home to carry on with my suffering. i was in and out of the hospital every other week with the pain and it was only getting worse. so this is when they decided that it was time to put me on the doladex (through no choice of my own i might add).


they told me i would be on a course of 6 as this is all that they are licensed to give you at any one time....needless to sat it never worked out this way fof me and 2years later  here i am still having the injection!!
i would love to say to you that it has only got better but it has'nt....i have every side affect that has come with the drug i went from bad to worse but the consultant said that i could'nt be taken of doladex as i would'nt know what had hit me!!
i have put on so much weight, still have bad pain in the stomach and also the aching in the back, headaches and everything else that comes with it.
the needle is the almost the size of a knitting needle and it is as thick as one. every 28th day i get mine and for over a week after i have had mine i am left with a badly bruised tummy.......i just received mine the other day and everytime that i get my injection i take a very bad headache almost instantly.
i an being taken off zoladex in january as we are having our 1st ivf cycle in march. i am a little nervous as to what i will have to expect as i have been on this drug for a very long time and im just dreading incase i go from bad to worse. so im keeping my fingers crossed anyway!!

hopefully you won't be like me and you will have none or hardly any side affects. ill be thinking of you, let me know how you get on with it all?

welcome to ff, it's good to have you here!


tracey xx


:) :) :) :) :)
 

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Hi
I had Zoldex last year for 6 months and it wasn't too bad at all.
Side effect wise, it's like anything really, I had a headache in the morning for about a day or 2 after having the implanty thing put in.
It does seem to work on most patients and takes effect in about a month. The injection is monthly and puts your body into a temporary menopusal state, so you may be offered HRT as you can get night sweats and insomnia, I took the HRT and never suffered with these.
You cxan have an anaesthetic spray as well if you are worried about feeling anything.
Chick
 

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Discussion Starter · #6 ·
Thanks so much for each of your messages.

I am so glad I found this site.  You're messages are so encouraging and really made me feel better... (that's after I let out a few tears when I saw all or your responses...didn't know if any one would respond!)

I think I've calmed down a bit and accepted that my condition is leading me down this path.

The saving grace is knowing that I'm not alone, and that there are some wonderful people out there who are going through similar experiences, willing to contribute to messages like mine.

Thanks for your responses.

Love and best wishes with your treatments,

Gen xx
 

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Just wanted to add, Gen, Zoladex was probably the best non-surgical treatment that I had for PCOS and endo combined and that although I had side effects, I also benefitted from having Zoladex.

You aren't alone and remember there is always someone here when you need them

Chick
 
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