[Miriam]

Thanks for the reply.

Wow that's great that you had it removed- I hope it helps you to get pg and carry to term.

I can't seem to get my local docs to even acknowledge the septum is a problem, let alone remove it! I think because me IVF consultant wrongly diagnosed it as an arcuate uterus, which is slightly heart-shaped and doesn't cause problems. But after my own research, I confidently know that it is a complete septate uterus.

Even with my long history of infertility, mcs and failed IVFs, no doctors i have seen will even consider doing anything about my uterus.

Yes, I have also heard that it depends on where the embroyo implants, so I hope that it doesn't cause problems for this preg, but I will def look to get it removed soon after. Do you think my hospital consultant or GP will be able to refer me to st mary's?

 

[Miriam]

Hi Lisa

Reading your post reminds me of my own experience with my NHS doctors. My fertility consultant too said that removing it would cause more problems- internal bleeding, scarring, damage to womb. But everyone else I've spoken to says that as long as the surgeon is experienced, this should not occur. In fact, ive read that the success rates with removal are much much higher than leaving it in.

Yes I agree that septates look a lot like arcuates- the weight of the septum pulls the uterus down from the top, making it appear arcuate from the outside. And on the nhs they will not remove it, except as a very last resort, and they make out that's its not a big issue.

But there's nothing we can do about it now that we are pg- I'm now 18 wks and just trying to hang in there. Lets hope that we are the lucky few who do manage to carry to term with a septum. This is the furthest ive been so far, and fingers crossed for you too. Keep me posted on your progress and I will too

Miriam xxx

 

[Miriam]

Tbanks Sheila and Lisa,

yes I'll keep you all updated. It just seems to be dragging on and on!

Lisa: I'm so happy to hear you found success stories of ladies with similar conditions- all the ladies Ive heard from had to have their septum removed before they successfully carried to term. I does give me hope.

I did request a cerclage to my consualtant, but he refused. He said because my other mcs were very early- at 5-6 wks, this does not prove cervical incompetence. They will only put one in at 12-16 wks if you have had a mc in the 2nd trimester. This is because there are lots of risks associated with the procedure and its not worth the risks unless you absolutely need one. But even having one fitted does not guarantee that you will not mc- my sister did twice when she had one fitted. And you mc was at 8 wks, so I don't think they fit one either.

I keep being told by everyone to stop worrying about everything and just try to relax. I think I will try now... maybe this time is our time...

Miriam 

 

[Miriam]

Well it's not good news for me. I went for my 20 week scan yesterday and was told the pregnancy had 'collapsed'. Apparently they was no amniotic fluid and the baby seems to have withered and died a week or 2 ago. My husband I could tell straight away something was not right- on our previous scans we could clearly see the baby, but yesterday there was just nothing there, just a mass. The fluid must have been slowly leaking out - i did feel some wetness over the week but I assumed this was normal vaginal discharge, and was told earlier that it is normal to have more of it in pregnancy.

Absolutely devastated - I don't think its fully sunk in yet. I have to go in today to take a tablet which induces labour. It sounds really scary but I think its best to get it over with so that we can start again.

I am going to push the doctors to refer me to see a specialist in uterine anomalies, to get my septate uterus resected and try to persuade them to insert a cerclage next time, if I ever do manage to fall pregnant again. I really hope they listen this time and do something- having a miscarriage this late on is not common is it?

Vickytick, you mentioned that you went to St Mary's RCM, did your hospital consultant refer you there?